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Aria’s Healing Journey Support Fund

$35,605 of $50,000 goal

Raised by 310 people in 7 months
Our family embarks on a journey in which we could use your support. Aria Cheyenne, 16, has been diagnosed with Ewing Sarcoma, a rare bone/soft tissue cancer.
Even as we begin our first steps in this new reality we noticed the variety of unexpected expenses occurring daily.

We are grateful for your support.
Please keep Aria in your thoughts.
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Dear friends,

Aria didn’t feel well last Friday and was feverish. We admitted to the hospital. That night she woke up with chills and shivers, and was transferred to ICU for closer monitoring.
The doctor said that besides fighting the common cold, and a stomach bug, she was also dealing with some bacterial infection.

After 24 hours in ICU we returned to the Pedeatric ward as she was stable. Antibiotics treatment was to be ensured at the hospital for a whole week. Passing time here includes lots of reading and binge watching.

We will be discharged on Friday morning, and planning on celebrating the Passover holiday with our family. Following that, another appointment with the surgeon for follow up, and the fourth round which is a short one night stay at the hospital.

Wishing everyone Pesach Sameach, and Happy Easter!
Sweet gatherings and sweet surprises, y’all!
♥️

In the photo: Aria at a tea party, 2010
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Dear friends,

This last round brought a much bigger challenge than all previous rounds. We think it happened because Aria was compromised by the common cold she dealt with as we arrived the hospital. The three extra days of isolation didn't help either.

The first day of chemo caused a great discomfort and brought about helplessness in face of this overwhelming reaction to the treatment. For the next four days Aria tried a new medication that helped her relax, and relieved her from the hardship of the first day.

After eight long days we returned home to recover. The next round is a short one after which scans will be taken.

This week is dedicated to good eating, studying, reading, hanging out on the patio, and walks to the park. Recovery, rest, and some routine!

Spring hugs to everyone.
Aria & Lee

In the picture: Just a short walk away, Bee Canyon Park.
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Dear friends,

After a normal delay in the recovery of Aria’s platelets count we arrived the hospital on Saturday. That night Aria had a low grade fever and was diagnosed with the Common Cold (Rhinovirus), although she doesn’t have much of its symptoms.

Yesterday was sunny and warm and we wanted to walk out to the outdoor area of the hospital floor. We were told that Aria is in isolation and cannot leave the room. She also could not start chemo until all the labs results indicated that no bacteria is present.

Chemo starts tonigt for five days. Still hoping to be able to walk outside and enjoy the sunshine...

Smiles and hugs.

♥️

In the picture: Sunshine eyes, March 2019
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Dear Friends,

Yet again, we hoped for a nice week or so at home before going back to the third round of chemo—yet due to neutropenic fever we stayed at the hospital for four days this week. These not-planned-but-possible visits demand an ability for a quick adjustment; Basically, stope whatever you're doing, pack bags for three days, load the pre-packed bag, and leave to the hospital, while calling the Pediatric ward to check whether they have a room available. Needless to say that it usually happens when we are busy with other stuff, like taking an online class, for example.

This Stop & Go mode is our life pattern now. It is a practice of detachment, surrender, and fluidity. It presents "blank patches" in our life's work continuity. We are now quite adjusted to this lifestyle, and even in this routine one can find a rhythm.

Sometime next week, once Aria's blood counts rise, we will go back for the third chemo round, which is again five days long. Meantime, we have been taking advantage of the beautiful Spring days to go outside, and take our daily walk to the park, which aims at developing Aria's leg muscles.
This will help in transition to using a cane or crutch, rather than using the walker.

Sending our love and gratitude to each and every one of you.


In the picture: Aria and Kiwi
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$35,605 of $50,000 goal

Raised by 310 people in 7 months
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$50
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$36
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$100
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19 days ago
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28 days ago
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29 days ago
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