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Aria’s Healing Journey Support Fund

$33,346 of $50,000 goal

Raised by 295 people in 5 months
Our family embarks on a journey in which we could use your support. Aria Cheyenne, 16, has been diagnosed with Ewing Sarcoma, a rare bone/soft tissue cancer.
Even as we begin our first steps in this new reality we noticed the variety of unexpected expenses occurring daily.

We are grateful for your support.
Please keep Aria in your thoughts.
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Dear friends,

Last Monday we met with Dr. Taylor, one of the two surgeons who operated Aria's leg. He was happy with her progress and will see us in the beginning of March, at that point he may clear her for full weight bearing (currently at 50% weight bearing).
Aria will keep pushing in her PT sessions to strengthen her muscles and gain more mobility.

Consolidation chemo started on Wednesday morning and on Thursday afternoon we returned home. This was the first of eight consolidation rounds of the treatment plan. After round four there will be tests to check for any changes, hopefully the continuous shrinkage of the additional small spots that were responding well to the first six rounds of chemo.

In the meantime we keep sticking to making the good days very good, and being courageous through the more challenging ones. Going back to chemo after five weeks without it came with anticipation, resistance, and was emotional. Being at home and recovering, trying to get that appetite going again is where we find our answer to the challenge.

In the following ten days Aria plans on enjoying time with friends, playing on her new Nintendo, and keeping up with physiotherapy and school.

Sharing our love with each and every one of you.
Thank you for being here, with us.

In the picture: A tree hugger at our neighborhood park, 2011
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Dear friends,

We were to meet with Aria’s surgeons last Monday for follow up, yet we got to stay at the hospital on Sunday and Monday nights, due to fever. They didn’t find any reason for it (blood cultures and viral panel were all negative) so we went home on Tuesday.

While we were at the hospital an X-ray was taken and an orthopedic doctor checked it and said the implant in Aria’s thigh is well fit and well aligned.

We are going to meet with the surgeon this coming Monday. Meantime Aria is making good progress with her mobility, and becoming more independent.

Consolidation chemo will start next week with a two-day round. This will be the first out of the eight rounds on the treatment plan. This will take about four months. Much patience is needed for all this, and we hope to have many good days in between rounds for Aria to work with the PT staff and get back to walking unassisted soon.

There’s still a lot ahead but we were ready for a marathon and not a sprint. We hope you will continue walking it by our side.

Sending you all our love.
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Dear friends,

We returned home on Friday and started adjusting to our home, with a raised bed, with getting in and out of it, walking around with the walker, and cruising in the wheelchair.

Aria must watch the movements of her leg. She must not sit in a 90 degree angle, should not cross her left leg over the right, nor twist the leg.

So far we see more mobility everyday, as well as almost weaning off the painkillers completely.

On the last day at the hospital we received the pathology report. The tumor was fully extracted with clean margins all around. Great news!

Aria was told about another teen that had a very similar surgery a day before our last day, so she asked whether we could visit with him to offer encouragement. It was a sweet and empowering visit!

On Monday we’ll meet our surgeon for follow up.

Much love and warmth to all,
Us

Photo: Cute arrangement from the dojo members.
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Dear friends,

The first day after surgery was dedicated to finding the most fitting pain management plan. Aria was offered what most patients with hip replacement take, either nerve block or epidural. She declined both and is taking oral painkillers.

Also, she did some PT sessions to learn how to get out of bed, stand up, and walk with a walker.

The second day included more movement and lowering the dose of painkillers.

In the next few days Aria will work to regain more mobility and will learn more ways to work around the limitations and restrictions.

We are thankful for the surgeons, the nurses, and PT staff at the Orthopedics ward in Baldwin Park Kaiser Hospital.

We are grateful for you all, wrapping us in this amazing support you extend.

One step at a time. One day at a time.

With love,
Aria, Lee & Eli

In the pictures: Supported first step. A smile hanging over the bed.
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$33,346 of $50,000 goal

Raised by 295 people in 5 months
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