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Hannah's Batten Fund

$1,685 of $5,000 goal

Raised by 25 people in 9 months
Hannah is defying all the odds. She is so tenacious. She knows what she wants, and she is incredibly smart. So, she can tell the difference between what she can do, and what she used to do. But she can live a whole and happy life, as long as I can help her! Hannah has Batten disease, CLN-3, and she is getting younger in her mind, and we are doing our best to help her. There is no cure. We are lost but hopeful, for anything is possible through God. Hannah has a vivid imagination and I am her caregiver, but the state has given her one hour of paid service per day, and she is a full time kiddo. So we make $11.50 per day. We are almost able to pay our bills. I want the best for Hannah. She was a healthy and happy baby and child. She was only diagnosed a few months ago! I am so lost. I had a healthy child, and now she has a disease with no cure. Hannah plays well and loves toys and friends. She is regressing and would love a visit if she knows you personally. I am distraught. I cannot accept that there is no cure. She has such a pure soul. I would take this fate away from her if I ever could. Please, literally anything helps! Thank you!!! We just found out about glasses that read for you! But they cost $2999 plus tax (free shipping) And Christmas is just around the corner...Hannah is a girly girl that is obsessed with toys. She even does her own research on YouTube!! Thank you all who helped us get to Nashville this Summer!! It was life changing and we will never forget how that support helped us through the most difficult time, to date. Thanks to the BDSRA for getting the hotel room for us and all the wonderful experiences we were fortunate to have, thank you all!!! My number is 951-663-1361 Email: misolaura@yahoo.com
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Hello everyone!! We are gearing up for this years conference in Denver in July! please share and pass it around, Hannah made the pictures on the first page!!
Thank you to all of you who helped us
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Its a good day when Hannah is smiling :)
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Hannnah is super excited!!! Aunt Heather got the grandma's involved, they all pooled their $$ and got Hannah....a barbie dreamhouse!!! Please, if you can, meet us for a birthday lunch on September 16th, 2003 for her 15th birthday!!!!! Its going to be at johns incredible pizza in riverside at 1pm till ? I want to stay for dinner, and really make the entrance fee count ;)
Please please share!! Love you all! God bless you!!!

If you would like, you can tell me what you would like me to do for hannah with the funds. It all goes to her anyways but its nice to have piece of mind. She would rather have a playdate or a visit.
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Hannnah is super excited!!! Aunt Heather got the grandma's involved, they all pooled their $$ and got Hannah....a barbie dreamhouse!!! Please, if you can, meet us for a birthday lunch on September 16th, 2003 for her 15th birthday!!!!! Its going to be at johns incredible pizza in riverside at 1pm till ? I want to stay for dinner, and really make the entrance fee count ;)
Please please share!! Love you all! God bless you!!!
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$1,685 of $5,000 goal

Raised by 25 people in 9 months
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CC
$30
Clifford T Crabb
5 months ago
CC
$40
Clifford T Crabb
7 months ago
CC
$25
Clifford T Crabb
8 months ago
CC
$15
Cliff Crabb
9 months ago
$20
Steph Kopitch
9 months ago
BJ
$50
Bethene Jasper
9 months ago
CH
$100
Corinne Hall
9 months ago
JG
$200
Janet Gillespie
9 months ago
$25
Jen Fife
9 months ago
KS
$20
Kira Sidatt
9 months ago
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