Assistance For Ongoing Recovery
Dx'd with AS and cancer at the same time, Spring 2013. Cancer is in remission but the damage caused by radiation and chemo is ongoing. The Ankylosing Spondylitis is not responding to any medications or therapies. Insurance does not cover more homeopathic remedies. I've now found out that due to the radiation, I have severe osteoporosis in my back and hips,have already gone through menopause, all of my internal organs are basically attached to one another because of adhesions, my eyesight is failing, I have a very ill-functioning immune system and with each passing day, I step closer to a permanent seat in a wheelchair.I have lost all control of bowel and bladder, my SI stays “out” continuously, every step makes me cry. Even sleeping is near impossible but exhaustion is constant. I can no longer shower or go downstairs if I am home alone. I only drive to drs appointments. With six surgeries scheduled for this summer through fall, I’m truly at a loss. I will never be able to work again and the strain of the bills and need for lifelong treatment is overwhelming. I pray constantly to not lose faith. And I am so grateful that people can find it in their hearts to help me any way that they can. God Bless and thank you for caring.+ Read More
I just wanted to share with you what keeps me going and ask if you would share my story and page. Every share helps. Every prayer. Every donation, if even a dollar. God bless. Merry Christmas.
I wanted to take a moment to say thank you for your ongoing love and support. Though I have been told I look well, and thank you for that, looks can be very deceiving! I recently got very devastating news about the condition of my spine from the AS. Everything from L5/6 down has no visible discs any longer. I am not a candidate for surgery. The late term side effects of radiation and chemo continue to grow worse every week. I will be rechecked for signs of new cancers after the new year. I am still recovering from the last three surgeries this fall. Please remember, if I can give you any advice to take to heart, if you think something is wrong, see a dr. If that dr doesn’t listen, see another and another. If the first dr had listened to me, my cancer would have been removed with the initial biopsy. A two minute procedure. If my back dr had done blood work instead of jumping to surgery, he would have seen all of the markers for RA and other serious autoimmune issues. You know your body better than anyone. God bless. Have a beautiful Christmas or Holiday Season.