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Chelsea Hodkins

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Chelsea had an MRI 5/4 to confirm a large (tennis ball size) tumor in the shoulder/arm pit area.  The tumor is about 5cm X 7cm.  It has grown rapidly over the past 3 months and is very aggressive.  A biopsy of the tumor was done 5/16 and was confirmed 5/18 that unfortunately, it is a malignant.  She has been diagnosed with a "Malignant Peripheral Nerve Sheath Tumor". 

Chelsea began radiation 6/7 and will be having radiation treatment 5 days a week for 5 weeks. She will be having surgery at the University of Utah Huntsman Cancer Institute the beginning of August.

We are trying to remain positive.  Please continue to encourage, love, and support Chelsea through this challenging cancer process.

The funds raised will be going directly to Chelsea's account and will be used to help with all the travel costs and any items Chelsea is in need of during this time.

This go fund me has been set up by Carrie Krainock, Chelsea’s aunt.

More info about Chelsea’s genetic condition which was a result of a genetic mutation that occurred in-utero. It is called Neurofibromatosis and she has Type 1 (there is a Type 1 and a Type 2). It’s also shortened and called NF1. Some common traits of NF1 are extreme freckling that can resemble birth marks, they are called “cafe au lait” spots and are one of the initial signs that someone has it that doctors look for. Also a larger head, eyes that are spaced further apart are good first indicators as well as mild cognitive impairment. Chelsea has a severe form of NF1 so she suffers from most if not all of the symptoms and complications from the genetic disorder. The symptoms and complications Chelsea has due to NF1 are: *Tumors of the eye, such as an optic glioma which cause vision impairments or blindness. *Tumors on the brain, spinal chord and organs which create a higher risk of becoming cancerous (malignant). Chelsea has had 2 brain tumors, one when she was 5 which she received 15 months of chemotherapy for and one when she was 11 which she received 18 months of chemotherapy for. *Large, soft tumors called plexiform neurofibromas, which may have a dark color and may spread under the surface of the skin that appear like a “pea” under the skin. Chelsea has these all over her body. *Severe Pain (from affected nerves) *Small, rubbery tumors of the skin called nodular neurofibromas *Large tumors under the skin (plexiform neurofibromas), which can affect the appearance and put pressure and cause severe pain and sometimes loss of function on nearby nerves and limbs. Chelsea had a large tumor that grew around her left eye that had to be removed. This caused her to lose most of her vision and movement of her eyelid on her left eye. Chelsea currently has tumors growing in her left arm and hand that are causing a lot of discomforts as well.

Organizer

Carrie Krainock
Organizer
Boise, ID

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