The Battle for Savannah and Seattle.

$18,625 of $20k goal

Raised by 327 people in 32 months
Elle Dee Hawryluk   Bridge Ward, ENG
Meet two little super hero girls who have never met one another yet share so much in common.



Shortly after their first birthdays both Savannah and Seattle were diagnosed with rare, incurable, life threatening disorders, Savannah with Mitochondrial Disease and Seattle with Transverse Myelitis.




They both spent a long, terrifying time in Intensive Care and their prognoses were dire. If they survived at all, it was doubtful they would ever be able to talk, walk or function on their own.



But both of these girls are fighters with fierce, unstoppable determination and with the love and faithfulness of their families they both beat the odds and slowly started to recover.



Despite being told they would never walk or speak again they proved their doctors wrong. Seattle's incessant chant of "I walk, I walk, I walk, I walk" eventually became a reality. And Savannah's running commentary of her day, as well as the daily shenanigans of her imaginary friends, was music to her parents' ears.



Both girls are now 5 years old. They radiate joy and inspire all that get to know them. But their fight is FAR from over. And they need your help.



Mitochondrial disease is a debilitating medical condition most people have never heard of, but one that can dramatically shorten a child's life.

Mito reeks all sorts of havoc with Savannah's system. Amongst other things, she suffers from chronic bronchitis and fatigue. She uses oxygen at night while she sleeps, which has proven incredibly beneficial, but her doctors would like her to use portable oxygen tanks during the day. They believe this could help increase her energy level.

The tiny O2 tanks come with a hefty price tag. She needs $2000.00 dollars just to get started. Then the tanks will need to be filled regularly.



Seattle, desperately needs a new wheelchair.

After becoming paralyzed within a few hours of falling ill, its incredible that she is now able to walk. But walk she does! She dances whenever possible and even RAN in a charity event at her school a few months ago. But despite her best efforts sometimes she needs a little help. Her school is on a hill and she just can't make the steep climb on her own. She has a wheelchair but she's a growing girl and requires a new one that will better suit her specific needs. A new chair is going to cost at least $4000.00 and eventually she will grow out of it and need another one.

In addition to the wheelchair Seattle needs funds for therapies. So little is known about Transverse Myelitis that no one knows how to fully treat her. What we do know is that this little warrior is in for a lifetime of surgeries on her legs, feet and most likely her spine as well.



Please donate and help Savannah breathe a little easier and fight off deadly infections and help Seattle get the mobility she so desperately wants and the therapies she desperately needs. Please help us give these warrior Supergirls the future they deserve.



-AND NOW FOR THE GRAND FINALE-


An inspiring video of Seattle DANCING to Pink 's song Try!

http://youtu.be/IK3e38I6-rI


And some fabulous photos of Savannah dressed up as her favorite female tv heroines. Warning- Battlestar Galactica/Mary McDonnell fans prepare yourselves for the cuteness overload.



http://greenawaltfamilylife.blogspot.ca/2013/09/mini-mary-mito-awareness-more.html

....................................................................................

To learn more about Savannah, Mitochondrial Disease, her brother's battle with brain cancer and her family's daily adventures please like her facebook page or follow her mom on Twitter:

Facebook: https://www.facebook.com/pages/Saving-Savannah/118859238127327?fref=ts

Twitter: @Saving_Savannah


For more info on Transverse Myelitis, or to follow Seattle's daily adventures and to track her progress with her upcoming surgeries please like her Facebook page or follow her mom on Twitter:

Facebook: https://www.facebook.com/seattlesmomma4transversemyelitis?fref=ts

Twitter: @Seattlesmama

I also encourage you to read this beautiful article written by Seattle's mother - http://mytm.ca/wp-content/uploads/2013/08/Summer-2013-newsletter.pdf





* all donations will be split 50/50 between Savannah and Seattle. Our goal is $10,000 for each Supergal.


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Update 17
16 months ago
To the girls' delight the first letters have arrived and operation 'LIFT THEIR SPIRITS' is working!!

Thank you so much to everyone participating in the letter writing campaign!

We've had requests for a list of the girls' favorite things. I had a laugh when I saw that the lists were pretty much identical.

They both love
-Pink (the singer)
- The color 'Elsa Blue'
-Unicorns
-Superheroes
-Playing Dress Up
-Crafts

Seattle also loves
-Rocks/crystals
-Fairies
-Disney Princesses
-Stickers

Savannah adores
-Zebras
-The color pink/fuchsia
-Mary McDonnell!
-Musicals

We've also had people ask about the girls' siblings. As a wise, loving friend once said "siblings of sick children are also in need of love and support as well; they are so often forgotten and lost in the chaos that surrounds an illness".

Each girl has a brother and a sister. (I know, the similarities never seem to end)

Seattle's Siblings-

Maddox is 10 years old and loves:
-Transformers
-Iron Man
-Harry Potter
-Despicable Me
-Drawing

Harlow is 2 and loves Dora , Dora and more Dora!


Savannah's siblings

Sebastian is also 10 and loves:
-Harry Potter
-Despicable Me
-Red and Blue and Fuchsia
-Super Heroes
-Star Wars and Sci Fi

Siennah is 8. She loves:
-Elsa Blue, Pink and Lime Green
-Zebras and Giraffes
-Cooking
-Crafts
-Fashion/dress up

I hope that answers your questions. If you have any more please feel free to email us.

Thank you once again for all of your love and support.

Mail for Seattle may be sent to:
Miss Seattle Lennox
c/o Vista Community Services
104-540 Seymour St
Kamloops, B.C
V2C 2G9
Canada

Mail for Savannah may be sent to:
Miss Savannah Greenawalt
P.O. Box 411441
Charlotte, NC
28241
USA
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Update 16
16 months ago
Let's Mail Them Our Love and Support l!!!

Our girls are hurting.

Not just physically, but emotionally too.

While we can't heal their physical hurts, we can most definitely help lift and heal their spirits!

After the craziness of the last few months the girls have been feeling depressed, anxious, scared and alone. They are aware of how different their lives are from their classmates and the injustice of it is weighing heavily on both of them.

So lets send them some love, encouragement and joy!

I would like to ask all of you to mail something to each girl. Perhaps a heartfelt letter of encouragement or a postcard letting them know who you are and that you care about them. If you don't love writing, you may prefer to send them a packet of stickers, a magazine or some other small gift to keep them entertained during one of their doctor or hospital visits. It could be a photo of your family, a map of your country, a patch they could sew onto a backpack, anything at all to let them know how loved they are and that you are thinking about them.

Mail for Seattle may be sent to:
Miss Seattle Lennox
c/o Vista Community Services
104-540 Seymour St
Kamloops, B.C
V2C 2G9
Canada

Mail for Savannah may be sent to:
Miss Savannah Greenawalt
P.O. Box 411441
Charlotte, NC
28241
USA

Thank you friends!



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Update 15
17 months ago
The latest update on our girls brings yet more difficult and devastating news.
The New Year has brought some different and quite major challenges for both our superhero girls. Savannah is adapting to a new addition to her medical machines at home, and Seattle is going to be having not one but two major surgeries in the coming months.
This time last year Savannah was having pulmonary difficulties and dealt with a brutal respiratory infection, resulting in daily oxygen therapy being added to her routine. Now her Mitochondrial Disease is causing hypotension and tachycardia, severe enough to result in the last hospitalisation. After leaving hospital Savannah and her mum went on a round trip to see her dream team of specialists to see what could be done to help deal with this. So Savannah now has a new machine added to her arsenal in the form of a pump that attaches to the newly inserted Nasogastric tube or NG tube. Hopefully the NG tube will help keep her fluids up and also help keep her nutritionally well. This is the least drastic, non-surgical option available and hopefully it will do the job.

Unfortunately the update on Seattle isn’t a non-surgical one. The MRI that she was having in preparation for the already brutal 6-8 hour surgery of total reconstruction of her legs revealed that she now also needs brain surgery. A Chiari malformation, where the cerebellum part of the brain extends past the base of the skull, was discovered and would explain the constant headaches she has been having. This additional surgery involves removing bone at the base of the skull, add that to the leg surgeries and Seattle is facing a tremendously tough time right now.

Before the MRI and results were known she drew a picture of her mom, her sister and herself. Written near her mum it said 'I wish nothing but the best for mommy.' Near her sister it said 'I wish I had a big stuffed Dora.' And for herself it was 'I wish I was not sick.'

Your continued support, thoughts and prayers are much appreciated through these difficult and demanding times. Any donation is gratefully received as the challenges this year has brought already and will continue to bring take their financial toll on the families.
To get updates, news and more information on Savannah check out her Facebook page at
https://www.facebook.com/pages/Saving-Savannah/118859238127327
And for the latest on Seattle and any updates please check out her Facebook page at
https://www.facebook.com/seattlesmomma4transversemyelitis
Savannah and her NG tube and equipment
Before the news of surgery number 2
Seattle's greatest wish
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Update 14
17 months ago
UPDATE

I wish I were writing with better news regarding our little warriors but once again, that is not the case.


While Savannah is now home from hospital there are still a lot of unanswered questions and many concerns regarding her health. She is having a hard time with basic autonomic functions causing dangerous swings between very low body temperature and then fever. Her blood pressure keeps dropping causing tachycardia which then creates blurred/double vision. Right now she is spending a lot of time in doctor offices while everyone tries their best to keep her from another hospitalization.

There has also been new developments with Seattle.


The moment that we have all been dreading has finally come. Seattle needs surgery. Major surgery that will take her at least a year to recover from.


Her surgery will be a complete reconstruction of both legs plus reconstruction of her left foot/ankle and maybe her right as well. It will be a 6 to 8 hour surgery and for the first two months she will have casts up to her knees with screws sticking out of them with braces on top. Braces will also cover from just above her knees to her hips. She will be immobile and confined to a specialized reclining wheelchair.


Because her case is so specialized, she will need to do her post surgery physical therapy in Portland for two to four months. This means she won't be able to go to school. Her mom will have to rent a place for the two of them to live in Portland, meaning they will be a 12 hour bus ride from Seattle's father, 9 year old brother and 2 year old sister. This news has shocked Seattle's family, who thought the surgeries would be less invasive and not for a few more years. This is an excerpt from Seattle's mom FB page-

'There are still so many questions that I have no idea how to answer at the moment. What's going to happen with my 9 year old son and 2 year old daughter? Maddox may be able to handle being away from me for that long but Harlow sure won't; she can come with me but how do I chase a toddler and help Seattle at the same time? Family can make the trips down with the kids to visit but that's still pretty hard on everyone to make the two day trip down. But I guess that kind of stuff can be worked out. The hardest thing to deal with right now is that Seattle really doesn't understand what's going to happen. She was in the room when her team told us the plan and I am talking to her about it as well, trying to prepare her. Yesterday at school, she finally released her emotions and she burst into tears and told me she was scared, that she felt like she couldn't breathe. Holding my sobbing baby girl in the hallway while a crowd around us stared is hopefully a memory that vanishes soon because it was truly awful.'

Please continue to hold these girls and their families in your thoughts and prayers. If anyone, has any information about places to stay close to Shriners hospital or public transit in Portland please let us know!

Thank you for your continued concern and support. It means everything to these two special families.

To read more about Seattle's journey go to https://www.facebook.com/seattlesmomma4transversemyelitis?ref=br_tf

For Savannah's- https://www.facebook.com/pages/Saving-Savannah/118859238127327

Please note - All donations will be split equally between the two girls.
Seattle in her new night brace
Savannah at another doctor appointment
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$18,625 of $20k goal

Raised by 327 people in 32 months
Created November 20, 2013
PW
$100
Paul Willis
4 months ago
$50
Anonymous
8 months ago
$10
Beatrice Lang
8 months ago
$50
Claire Cowan
8 months ago

xox from Scotland

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RH
$25
Robert Hughes
10 months ago

Zombie Leader sent me -- wishing the girls wellness.

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MH
$20
Michael Hong
11 months ago
$100
Adi Dahiya
11 months ago

Inspired by Nicki Clyne and BSG, wish all the best to the supergals!

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$20
Anonymous
11 months ago
BN
$100
Bryan Nelson
11 months ago
$20
Anonymous
11 months ago
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