TogetherForEvaRose
Donation protected
On Sunday 4th August, my beautiful Eva-Rose fell asleep in my arms for the last time
Since 2018 it has been what i can only described a rollercoaster ride of emotions and our world has been completely torn apart and broken. On Monday 22nd January 2018 we went to A&E and thought we would be sent away and told Eva has a ‘viral infection’ it turns out they were more worried about her and before i knew it she was being admitted and we were staying. We stayed the night and she went for a MRI scan Tuesday afternoon to look at her brain. In the meantime we were thinking it was meningitis, little did we know we were completely wrong. A few hours passed and we had the results from the scan which had come back ‘abnormal’ and we were being transferred to Queens Med for specialists to look at her scan. Unfortunately our beautiful Eva-Rose was diagnosed with an extremely rare condition/disease called Leukodystrophy which affects her brain - this is something she’s had from birth. Unfortunately this condition is that rare that there is no cure and is life limiting. We continued everything exactly the same as best we could and took it day by day to carry on making memories with Eva-Rose. We set up this page for anyone who wanted to help us in making the best memories with our girl a possibility & to help fund anything we may need.
She’ll forever and always be our beautiful daughter, Eva-Rose x
#TogetherForEvaRose
Since 2018 it has been what i can only described a rollercoaster ride of emotions and our world has been completely torn apart and broken. On Monday 22nd January 2018 we went to A&E and thought we would be sent away and told Eva has a ‘viral infection’ it turns out they were more worried about her and before i knew it she was being admitted and we were staying. We stayed the night and she went for a MRI scan Tuesday afternoon to look at her brain. In the meantime we were thinking it was meningitis, little did we know we were completely wrong. A few hours passed and we had the results from the scan which had come back ‘abnormal’ and we were being transferred to Queens Med for specialists to look at her scan. Unfortunately our beautiful Eva-Rose was diagnosed with an extremely rare condition/disease called Leukodystrophy which affects her brain - this is something she’s had from birth. Unfortunately this condition is that rare that there is no cure and is life limiting. We continued everything exactly the same as best we could and took it day by day to carry on making memories with Eva-Rose. We set up this page for anyone who wanted to help us in making the best memories with our girl a possibility & to help fund anything we may need.
She’ll forever and always be our beautiful daughter, Eva-Rose x
#TogetherForEvaRose
Organiser
Mica Morrison
Organiser
