Help Amazing Emily get home safe

Emily is 7 with spina bifida, hydrocephalus, scoliosis, and only takes 1-2 breaths per minute whilst asleep on average. Because of her respiratory rate she is unsafe to live and sleep at home so has been living in alder hey children's hospital since April 18th 2016 and cannot go home until she can get an operation (diaphragm pacing) to make her take more breaths whilst asleep. The operation unfortunately is highly experimental with children and costs £100,000. NHS England keep refusing us the funds. She is a truly amazing little social butterfly who loves the world entire. Her breathing rate has deteriorated from 11 breaths per minute to only 1-2 per minute in only 2 years and she has seizures whilst awake if she becomes too upset or too excited so we have to keep her emotions balanced ! This operation could literally save her life but the longer it is taking the weaker she becomes. PLEASE can you help my little Angel even if it is simply a "share" to make others aware of our little miracle. Thank you for reading.