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Please Help Baby Paul & His Parents

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My grandson. Baby Paulie was born on 11-10-17. He was born with a rare and life-threatening genetic condition, which without specialized treatment is fatal. He has severe combined immunodeficiency disorder X pronounced 'skidx'. This is primarily and absence of T-lymphocyte and B-lymphocyte functioning. In essence he cannot make white blood cells on his own he will need treatment at Boston Children's Hospital for several months. His mother will stay with him at the hospital, his father will try to work when he can but be trying to stay at the hospital as well as maintaining an apartment their old car. They live all the way in North Brookfield Massachusetts, so the vehicle making the trip is of concern. Baby Paulie will need to sustain chemotherapy, Gene therapy, and potentially a bone marrow transplant. He has been in isolation since he was born. And he will be for several more months; likely until he's at least one years old if not older if all goes well. We are need to have faith but this is going to be a long and tough road for him and his parents. And their income is limited at best.

Organizer

Pauline Gallagher
Organizer
Spencer, MA

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