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Kevin Monsell

$5,545 of $25,000 goal

Raised by 79 people in 1 month
This is my Dear Husband, Kevin Monsell! My name is Cathy and we've been married for nearly 23 years. Kevin was in a very serious car accident on November 22, 2017...the night before Thanksgiving. Unfortunately, Kevin's car was totaled, but really didn't sustain any visible injuries. However, after the hospital gave Kevin a CAT scan to check for a concussion...they found a brain tumor! Kevin's brain tumor is large (the size of a plum) very deep in the right hemisphere of his brain in the thalmus....and it's inoperable. Kevin is unable to work, drive or do anything that he did that was considered "normal," since the accident. We really need help from Kevin's Dear Friends, his Theater Friends, Co-workers and his Facebook Family for things that our medical insurance does not provide....that he needs. We wish we could do everything all by ourselves, but it just isn't possible, because I have been disabled physically for 17 years and counting. and Kevin took care of all of my needs and everything else we needed. Kevin is unsteady on his feet, and he has serious vision impairment due to the brain tumor. He starts radiation and chemotherapy on January 11, 2018, but Kevin's Neo-Oncologist at Sloan-Kettering in Commack, NY told us that this tumor is "life-limiting!" Even with treatment! Dr. Andrew Lin, told us that he has 15 months to live! We definitely don't want to believe that, but we were told that it's probable. The doctor said that 50% of people who have this kind of tumor can do better with treatment and that 50% do worse even with treatment, but that this cancer cannot be destroyed or cured! As you might imagine, this has turned our world and lives upside down and shaken up like a half-broken snow globe! We hate to ask you for financial help, but under these circumstances, Kevin and I don't really have a choice. Anything that you can do will be a tremendous help! With hugs, love and many many thanks! Kevin & Cathy
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We met with Beth from "Home Instead," this morning.

It's a home care service that can do all kinds of things that Kevin can't do and I can't do either.
It would SOLVE SO MANY OF OUR PROBLEMS!

Here's what stops us:

It will cost $240 a week to have the minimum amount of time they require per week, which is 8 hours over 2 days every week.

Unfortunately, we just can't afford that.

After Dawn, the social worker who comes to see us from Catholic Home Care who is on vacation this week comes back...we will meet with her and see if we can find a different agency that we might be more able to afford.

Kevin had PT today from Dawn at Catholic Home Care, and he did very well!

Things that Carrie tested Kevin with a stopwatch......meaning certain exercises and walking distances he did in half the time than when he first began PT!

She said Kevin's walking is much improved!

Dr. Lin Kevin's Neuro-Oncologist, increased Kevin's steroid medication again, yesterday afternoon to 4mg twice a day. Dr. Lin wants me to call and tell him how Kevin is doing this Friday.

We did a lot of phone calling in finding out about the Disability Benefit through the County contract that Kevin needs to apply for entails as it's supposed to be done at or after the 91st calendar day that Kevin hasn't been working.

Right now Kevin still has sick time through to approximately the 28th of March.

He has 3 months of vacation time which he can take and still get normal pay.

However Kevin can't receive the Disability Benefit unless Kevin agrees to get half-pay after his sick time is exhausted!

We need to get a full paycheck for as long as is possible!

We have to get the bedroom cleaned up like the rest of the apartment was cleaned.

Carrie the physical therapist was wondering why it wasn't done the same day...but earlier Rose said to Beth earlier that "the family gifted us with the cleaning up the 3/4 of the apartment," so I told Carrie what Rose, our sister-in-law, had said.

Carrie said it was very important to clean up the bedroom just the same and as well as the rest of the apartment was for both of our safety and cleanliness.

We plan to do that after Kevin's radiation is done on Thursday.... but before we go to see Dr. Lin on March 13th.

We're going to try to do our very best!

We're hoping to see more improvements in Kevin's hand and with walking after he's finished with the radiation and chemotherapy treatments.

That would make such a huge difference in Kevin's day to day life and in mine.

We have a lab appointment tonight at 6:45pm and radiation at 8pm.

We see the head Chair Radiation Oncologist whom we haven't met (I don't believe so,) on Thursday...at 6:45pm as well even though the times aren't on the MSKCC Patient Portal.

We still have so much to face!
No one said this would be easy.

In fact, it's so hard for me....because I can't turn off my pain or my disabilities. Kevin can't make his left hand and leg stronger just because he needs them to.

We desperately need a service like "Home Instead," but $240.00 a week is huge and we just can't swing it for more than 3 weeks maybe?

That's not including other expenses we have to pay for instead.

We have to start to get ready to go to Sloan-Kettering,so I'll be back in touch soon!

Thank you all, talk to you soon and take care!

Love,
Cathy and Kevin
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Update on Kevin 2 /30/18

❤️My husband Kevin is nearing the end of his final radiation and chemotherapy treatments of this 6 week course of after his last radiation treatment treatment this coming Thursday!❤️
YAYYYY! YAYYYY! YAYYYY!
Tonight after his radiation treatment was done...Kevin said "90% done...10% to go!"

We both really need a vacation or a "stay-cation," from Kevin's treatments of both the chemo and the radiation!

We will be getting a 2 week break, or "time off for good behavior, " which is what Sloan-Kettering said to us about that!

The staff at Sloan-Kettering are the very best people! They're incredible and such positive people who always greet us with smiles, amazing positive attitudes, and whatever we need or have to find out....they bend over backwards to find out for us!

As patients....that is so important to us!
I know it seems weird to read me write "we," a lot about Kevin's cancer.

We both are, and have been facing everything and fighting all of it together....all from day 1!

I know that the cancer is not in my brain, but we are always going to be together and I will never leave Kevin's side in his fight...which makes it our fight!

We like to see it this two weeks as a well deserved "vacation," to get actual rest from everything! Our "vacation," will be starting this Thursday night after Kevin's last radiation treatment!


We then get an MRI at Sloan-Kettering on March 12th then on March 13th we get lab work done and then we meet with Dr. Lin to go over the results of the MRI!


Good night Everyone!
With love hugs and luck!

Love you all!
Cathy and Kevin


Kevin Monsell
Cathy Monsell
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Dear All Friends, Theater Family, Coworkers and everyone who knows, cares and is praying for my husband Kevin....

Below is the link to Kevin's performance at "The Northeast Stage Benefit Performance for Kevin," on February 10, 2018.

Kevin's favorite Shakespeare speech is one he originally performed in the RW Stage Art production of "Hamlet," with the Director, A.D. Newcomer...in the role of "The First Player."

This speech is also known as "The Player King speech."

This video link is posted with the permission of Northeast Stage

Please Enjoy!

http://www.youtube.com/watch?v=cMLaIvBwZh0
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Update on Kevin 2/15/18:

We are near the end of Kevin's first course of radiation and chemotherapy!
After today's radiation treatment, Kevin has just 5 more treatments!

Then he will get a couple of weeks of rest and no treatments at all.

Hopefully... this will give Kevin's brain and body the time to "calm down," and hopefully the swelling and the problems Kevin has been having with his left hand, (which is completely numb) and left leg (which is pretty weak)....and really hopefully for the vision to improve in his left eye.... (what Kevin has is called Hemianopsia, which in his case....is a large cut in his field of vision!)

This is due to the tumor and due to the swelling.

On March 12, 2018, Kevin will be getting an MRI at Sloan-Kettering in Commack.

The next day, March 13, 2018, we will be seeing Kevin's Neuro-Oncologist Dr. Andrew Lee Lin...to discuss the results of the MRI.

We're hoping that this tumor has responded to the radiation and chemotherapy treatments!

After that appointment, we will be able to know what decisions we need to make going forward in treating Kevin's brain cancer.

We were told that this would be a long and difficult road.
No matter what, we're going to keep moving forward, one day at a time......with the same positivity we've had through the last 2.5 months; when we first learned that Kevin had a brain tumor.

We still need your love, prayers, kind words, good thoughts, and especially your support and your help!

It will be good for Kevin and for me to have that 2 week break before we see Dr. Lin in March!

Of course I will continue to update you all on what is going on with Kevin.

He really misses his friends, and he really misses his co-workers!

Kevin still can't really read and type in Facebook in the same ways he was able to before all of this happened....but please don't let that keep you from keeping in touch with Kevin!

We have a landline home phone, and Kevin has his cell phone.
One thing that is a challenge for me is to constantly check and make sure that all of his electronic devices are charged!

It's not an easy feat....but fortunately, we have all of the equipment to do it.

I'm really trying to keep all of Kevin's "plates spinning," so to speak. So please don't give up!

We do still need help with things that we can't do.

It was suggested by one of Kevin's co-workers, Katherine Payne Cardullo, who has been tireless, in her helping me with the Lotsahelpinghands page and calendar, and coordinating with people who do want to help us with local errands and other things that could be of help to us.

Sadly, we are having trouble with people not wanting to join the group lotsahelpinghands....where friends and family can sign up via email....to help us with food donations, to help us with errands, and other easy ways of helping both Kevin and me.

Thank you all so very much for being here for Kevin and for me!

We love you all so much and we are so thankful grateful and fortunate to have so many Family Members, Friends, Theater Family, Coworkers, Colleagues and for some of my Friends who don't even know Kevin....who are here for Kevin and are all praying for his recovery!

We couldn't ask for finer individuals who have come together to help make Kevin's life and my life just a little bit easier!

Love you so much!
Always,
Cathy and Kevin
Kevin on our Anniversary 2/10 /18 before the "Northeast Stage Benefit Performance for Kevin!"
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