As you may be aware, last night at 6:10pm, my beloved wife Kimm, mom to 8-year-old Martie and 10-year-old Keidon, passed away after a brave battle with brain cancer.
When Kimm was diagnosed, she got ready for a fight, like most young mothers would. I was so proud of the way she stood up and asked the government to make change not only for herself, but for all the Ontarians and Canadians who expect their government to take care of them in their time of need.
And in the process, she did find help. Help from the public. The listeners, viewers and readers who learned about her story and donated money so that she could get access to the Avastin drug that allowed her to have more time with our children. The drug that was covered in three other provinces, but not in Ontario.
With that extra time, we created many memories with our children. This was a priceless gift.
And when she got to Great Wolf Lodge on March 27th to celebrate our daughter's 8th birthday, she was at peace. She was ready to accept what was to come.
Two weeks ago, she made the decision to enter Ian Anderson House hospice, which gives great dignity to people in their final hours. Quilts on the beds. Home baked cookies every day. It enveloped you in the kind of comfort you would find when visiting your grandmother's home.
Kimm touched so many people, and many of them came to visit her at the hospice. Classmates from high school. Colleagues from jobs she held years ago. Family and friends.
She had planned to visit the Atlantic Ocean to dip her hands into it, but didn't have the chance. So her friend Kimberly from Newfoundland sent her a mason jar with Atlantic Ocean water in it last weekend. They brought the Atlantic Ocean to Kimm. The same way Kimm brought hope and inspiration to so many others.
It's been a long journey home, but we have met so many wonderful people along the way. Thank you to everyone who supported us with your thoughts, your prayers, your donations and your offers to help. Thank you to the media for sharing Kimm's story. Let's keep the conversation going.
It's time to heal and find our new normal. We will share the details of the arrangements to come as soon as we know them. In lieu of flowers, Kimm would ask that donations be made to the Cancer Assistance Services of Halton Hills ( www.cancerassistance.org) or the Ian Anderson House ( www.ianandersonhouse.com).
As we hit the 8 month mark of Dr. Perry giving me only months to live with out treatment, I reflect on the outpouring of support, love and prayers if have received in order to have the treatment needed. I am great-full to have these months and the new friends that have entered our life. To my friends and family it has been an incredible journey and for those you I may have helped and inspired, it is your pain and struggle that I look to to help me continue my fight. As of Thursday I will be going to Ian Anderson House to continue my care. I am not quitting or have given up but I have to help my family be one without them as my caregivers but my husband, my son, my daughter and my family. Thank you again,
Another MRI, continued good news as per Dr. Perry, telling me to keep going with Avastin and also has added the chemo drug Temodal with it. That's great news because I was taken off the chemo Lomistin back in January. Although my L.S. Deficits are not slowing down, neurology everything is ok as per the MRI, so the fight is still on!
Thank you again for everything 6 months and counting
Had my Avastin today! Hoping to see some improvement on my left side. I am also going for a therapeutic massage to improve blood flow. Have not rested yet, early night for me folks! Good night and God bless. Kimm and family
MRI and results today, Good news is the treatment Avastin is continuing to work. The results of the MRI indicated that there has been a decrease in the overall area and size of the tumor, which is more nodular now. But yet and shows signs of some cell activity. Left side deficits have increase which is a result of brain swelling, an increase in decadrone(steroids) will help control this, along with more round of Avastin. I will be having another MRI in six weeks now to back up the good news today. I will be following up with my primary neuro-oncologist tomorrow to confirm the information from today.
Thank You Again for the love, prayers and support! We would not be doing this with out you
Thank you for everyone who has donated to date. 4 weeks ago we worried about reaching one to two treatments worth of funding, with generous gift's of time and effort someone made this possible, someone made it possible for the media to feel this was worthy of discussion. These people will be thank privately and publicly. I am blessed to have such an incredible support team around me, family, friends, and people like you who have donated. Thank you for being part of my life and thank you for being so kind.
Friday night we reached our one year goal, in less then 3 weeks we were able to put our minds at ease that I can continue to go to treatment, Thank you.
We will not raise our goal at this time, we wish others like me to be able to reach out and get the help and funding they need.
I promise to those who are part of my journey that I will keep fighting and for the family that pointed me in the right direction with information and support, that I will help who I can to get Avastin funded!
With the incredible support from friends, family, strangers, media and our MPP, I have happy to say that we never imagined to reach our goal of six months but we did. The one year mark was our second goal and we are close. After visiting with my Dr. on November first, since my last MRI, our first Avastin treatment, the tumour has not gown. So what has been rapid growth now has shown no growth! Yes treatment is working, yes round 1 win! Yes Deb Mathews more evidence! Thank you.
Kimm's current diagnosis is advanced stage 4 Glioblastoma Multiforme (GBM) the most dangerous of brain tumours. Kimm's oncologist has said the best treatment possible is AVASTIN. AVASTIN, although not a cure will prolong Kimm's life.Kimm's insurance Company and the Ontario government will not fund this life saving medication as they regard this drug to expensive and do not value anyone's life worth this . As a result of lack of funding, this valuable medication will cost Kimm and Scott $8000 a month.
Let's come together to support Kimm's fight against brain cancer. Every cent counts!!! Thank you for your donation!!