This is my grandson, Silas Cipollone, he is only 4 years old and this week has been diagnosed with stage 4 Alveolar Rhabdomyosarcoma, a rare and agressive childhood cancer...He has a tumor in his lower abdomen and recent PET scan results show that cancer has spread to his spine.
Read about Rhabdomyosarcoma here:
Silas started Chemotherapy on July 13, 2018 and it will continue for 54 weeks. Once the tumor has shrunk, he will undergo surgery to remove it then radiation therapy to kill off any lingering cells in hopes that it doesn't relapse. In addition he may need reconstructive surgery, depending on what the tumor is attached to. After treatment he will need to be monitored frequently to make sure the cancer doesn't reoccur. As of today, July 19, 2018 Silas isn't able to walk without pain and may need a wheelchair and or walker to assist him and physical therapy to get him mobile again. All of this makes this GoFundMe project so very vital to this family.
Silas was going to start VPK in the fall and his mommy was looking forward to moving back into the workforce after being a stay at home mom for 4 years. All of that has now changed. Silas will be undergoing chemo for 54 weeks and his immunity to fight infection will be very low, he will not be able to go to school and his mommy will remain a stay at home mom as long as he needs her.
His daddy and mommy will have a long struggle ahead. Their expenses have already started mounting and will continue for years to come. In addition to the medical bills, they will need to make many changes to their home in order to care for an immune compromised child.
Please give what you can, share this with everyone and pray for him and his family. You can read more about his story at the link posted below.
We have returned home recently, and are adjusting to the way things are going for the time being. Silas has shown progress so far through his treatment, but we still face a long road. We have been put on a weekly schedule for chemotherapy treatments, and go every Thursday to the hospital. His body's reaction to the meds have been great so far, with minimal side effects. The tumor, while still very present, is shrinking. This has allowed for Silas to have his nephrostomy tubes removed. We will be getting another evaluation in 4 or 5 weeks, and pray to see a decline in the presence of cancer cells in his body as well.
My son has shown incredible strength through all he has gone through so far, and continues to do so every day. Since being admitted to the hospital on July 5th, he's been unable to walk due to the pain the tumor has caused on his legs. But that hasn't stopped him from learning to get around by crawling, which he has started doing recently to get around the house. He will continue to go through physical therapy along side of his chemotherapy treatment, and we hope that someday soon he will be back on his feet. He is a fighter, and has shown me that even when being faced with a life-threatening disease at such a young age, he is stronger than we could ever imagine.
Again, we can't thank everyone enough for their support through all of this. While we still have a long road ahead, and there is still uncertainty of the outcome we face, we are blessed to have everyone in our lives. Thank you, from the bottom of our hearts.