Support Layne Chesney and family

$78,965 of $100,000 goal

Raised by 1,449 people in 12 months
Created January 1, 2018
Devon Hughes
on behalf of Leigh Chesney
While most of us were celebrating a new year in 2018, Leigh Chesney has been stricken with a terrible tragedy: her young daughter Layne suffered serious injuries resulting in over 90% of her body surface area having third degree burns. It’s a very dark time for the family but by coming together we can help support them through this tragedy. Layne is being treated at Kendall Regional burn center in the Miami area.

Leigh Chesney and her family are close friends of my wife and I, our neighbors, and all around good people. My wife Dianne works closely with Leigh, who is also a teacher. Please be generous!
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Update 87
Posted by Devon Hughes
13 hours ago
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1/14/19 from Leigh Ann:
Layne has adjusted to life in Gainesville. Her team of doctors have been exceptional and very welcoming. She has been kept comfortable and pain free. They have been providing her with conscious sedation during dressing changes and evaluations. That’s just one of the differences in her treatment that we have experienced.

She’s in an actual burn unit, and the rooms are equipped with items that we’ve never seen before. Visiting hours are also limited. That’s been another big change for Layne to adjust to. She’s used to having us with her at all times, but she’s being very brave and cooperative.

As much as we’d like to stay here, we are being transferred out. Unfortunately, Shands only treats pediatric burns that are 50% or less. Doctors recommended that she be moved to Shriner’s.

She’s been accepted to Shriner’s in Galveston, Texas. There, she will receive the best treatment possible. We are just waiting for air transport, and making preparations for the move. Hopefully, this will be our final destination. I won’t be able to post too much until we are settled in Texas, and I won’t be able to respond to all messages either. I’m just too overwhelmed and exhausted. However, please keep us all in your prayers. Please pray for safe travels and an easy transition to Shriner’s. ❤️

#Godissogood #prayforlayne #laynestrong
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Update 86
Posted by Devon Hughes
6 days ago
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Today is the day! Layne is being moved to University of Florida Shands Hospital. I’ve been there when I previously worked for a private ambulance it is an ENORMOUS state of the art facility. Layne is going to get outstanding care there! Very excited for her. Cheers all!

— Devon
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Update 85
Posted by Devon Hughes
7 days ago
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1/9/19 from Leigh Ann:
Layne had another ok day. She’s still not in the best of moods. She’s not very talkative and would prefer to spend her day sleeping. She feels like therapy is pointless. Regardless of her feelings, I’m here to motivate and encourage her.

Today, she worked very hard on range of motion activities. Everyday, she’s improving. She sat in the recliner for over two hours. Perhaps, sitting in the high back wheelchair would be more beneficial for her. However, because of the pressure sore on her sacrum, she can only tolerate it for 15 to 20 minutes. Maybe, we could try a different wheelchair and see if she tolerates it better. Despite her protests, she also went on the tilt table. She did very well, and was able to stay on it for 15 minutes. Tomorrow, we hope to increase her time to 20 minutes. Hopefully, she will have less anxiety going into it. PTSD is very real and is something that she has to deal with on her own.

Her appetite was a bit better today. It’s still nowhere close to were it was. She will have to receive another round of albumin because her levels are lower than what we would like. Her white blood cell count increased from 13 to 22. However, her ID doctor is still planning on taking her off antibiotics on Saturday.
For the past two days, she hasn’t used the passive range of motion machine, or spent any extra time drying under the UV lights. I guess her night nurses are responsible for making sure these things are accomplished.
We are waiting to transfer to a pediatric inpatient burn facility. For insurance purposes, a hospital in Florida would be ideal. However, we are uncertain as to whether such a hospital exists. No matter where she ends up, she will have to go without total skin coverage.
We are concerned about the potential increased risk of infection. Nevertheless, it would be pointless to try and cover her backside until she’s physically able to tolerate laying on her stomach, or being turned to her sides. It’s just another complication due to the severity of her injuries. We will continue to explore all options in Florida. Perhaps, different facilities can provide additional options, or treatment plans. As a parent, I just want what is best for my child. I am willing to confer with other doctors and tour different establishments to find the best fit possible for Layne. In the meantime, we will be patient and continue to encourage her to complete her therapy goals.
Thank you for your constant prayers. Please pray for guidance in helping us decide where we should send Layne for rehab and continuation of care. If anyone can recommend a burn hospital that provides pediatric burn rehabilitation in the state of Florida, please send me the information. ❤️⚾️
#laynestrong
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Update 84
Posted by Devon Hughes
9 days ago
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1/8/19 from Leigh Ann:
Yesterday was an ok day for Layne. She didn’t wake up in the best of moods and she was feeling nauseous. It seemed to carry over into the day. She refused to eat anything, and her tube feeds had to be turned on. Despite being given an appetite stimulating medication, her desire to eat has been nonexistent.

Regardless of her protests, she did very well during therapy. She did some range of motion exercises and worked on sitting up in bed. She was able to actually sit up without support again. This task used to be fairly easy for her. However, we are having to start from the beginning again. It’s frustrating for her, and she feels discouraged. She is extremely hard on herself. Unfortunately, she tends to take her anger out on her therapists. However, they are patient and understanding.

She continued working on the passive range of motion machine. It constantly forces her knees to bend and prevents her legs from becoming too stiff. She also had a new line placed because her white cell count was higher. Hopefully, her numbers will look better today. She wasn’t able to get in any drying time during the day. Her skin on her back still looks a bit wet and needs to dry under the UV lights as much as possible. Hopefully, during the night, she was able to dry. Today, we’ll certainly try to make sure she’s able to go under the lights.

Again today, she woke up feeling nauseous. So far, we haven’t been able to get her to eat much of anything. She’s not being very responsive either.
No talking... just staring off. However, she did manage to stay focused while her teacher was here. She was able to actively participate and correctly answer questions. Thank goodness...

After “school”, she went to the whirlpool to get cleaned up. She has a love-hate relationship with the tub. She enjoys soaking and feeling the jets, but the cleaning part is still pretty painful. At least, it gets her out of the room. I can’t remember the last time she was taken outside. It must be hard to stare at the same four walls everyday. I know I’d go crazy!
We are expecting her to spend the rest of the afternoon sleeping. Tonight, she may feel up to watching her shows. Hopefully, she’ll be feeling better and be in a much better mood.

Prayers are needed to figure out her tummy troubles. We want her to start eating again. She needs to take in as many extra calories as possible.

We are still waiting to transfer to Augusta, Georgia. There is a lot of paperwork for her doctor to complete and be sent to her insurance company for approval. I’m not even sure if it has been started. Apparently, there are also not any open beds available. So, we have to be patient and wait. We are anxious for Layne to go into a new setting. It will do wonders for her emotional state and will give her renewed motivation to meet her therapy goals. A new room, new faces, new routines and schedules... The move will be challenging for us, but we need to make sacrifices for Layne. She deserves the best...Thank you all for taking the time to read our posts and follow us on this journey. We are truly blessed! ⚾️

#laynestrong
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$78,965 of $100,000 goal

Raised by 1,449 people in 12 months
Created January 1, 2018
Devon Hughes
on behalf of Leigh Chesney
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