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Help bring my newborn "Karma" home

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My daughter was born 6/23/17. We knew she had issues but we never anticipated them being as bad as they are. Her brain is SEVERELY malformed and she's got a condition called "Arnold Chiari malformation" And she has type 3 which is the most severe... she was born with an occipital encephlocele, heart defect, severely malformed brain & many other issues. She is able to breathe on her own but then her brain tells her body that she can't and she stops. Because of this we will need to either let her go "comfortably" and take the tube out or get a tracheostomy a gtube and most likely a ventilator. It's been so hard getting financial help because I've spent every penny I had saved up on good and personal care items. My baby is in the PICU and will be here at least another month and a half. I have to start taking classes and have to be here to learn trach care and if I can't than she will get placed in a nursing facility that is over 4hrs away and that for me Is just not an option therefore it's crucial I am able to be here with her to learn what I need. If she gets placed i would have to relovate and i don't have anything to my name so itd be so hard to get there to take tjese classes for over a month....help would be greatly appreciated. Please help me take my little girl home...

UPDATE
She got her trachesotomy and gtube surgery yesterday. Training starts tomorrow and I've hardly raised anything.. any help would be greatly appreciated...my daughter's father is just recently put of the picture completely so I have absolutely no help financially.... 

Organizer

Tiffany Torres
Organizer
Gainesville, FL

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