Help Amber's Skull Replacemnt

$4,700 of $10,000 goal

Raised by 52 people in 21 months
Jessica Dover
on behalf of Amber Leigh Tedford
 AUSTIN, AR

20895402_1497623486.2186_funddescriptionEarly in life Amber was diagnosed with Fibrous Dysplasia in the skull, a rare genetic mutation. This caused her skull to grow incorrectly, and in 2011 at 16 years old she underwent her first partial skull replacement surgery. Her pain since then has been debilitating, throbbing and excruciating migraines, often accompanied with vomiting, extreme sensitivity to lights, smells, and sounds. This is her life almost every day.  A cyst between the brain and skull was found earlier this year, as well as built up scar tissue, and more effected area at the base of her skull by Fiboerous Dysplasia. Her bone in her skull base is currently dissolving, resulting in intense pain, and if not fixed surgically she risked paralysis. go t,  replaced 70% of her skull with a 3-D printed mold, got rid of excess scar tissue, removed the cyst, and shaved the bone on the skull base. She stayed in the hospital for 5 days, and still has not recovered to be able to live life completely normal. Because the base of the skull was shaved, some Fiboerous Dysplasia remains contributing the the pain she remains in. Now they have entered a trial and error stage on what may help to get her to a normal healthy life. She had dreamed of finishing college, being successfull in life, and growing her family, but with all that has happened and the debt they are now in, those dreams are unreachable even if she is able to get well. With hospital bills, regular bills (which are behind due to accumulated medical costs already), scans, tests, time spent off work to be in the hospital, meeting with new doctors to see what else can help,  medication and medication changes as they figure out what woks best for her rare situation, and things of that sort are all a big concern. Any donations would be greatly appreciated, and more than anything they ask for prayers as they go through this time. At 22, married, with a daughter, Amber and her family are facing a lot at the start of their young life. 

"God is not unjust; he will not forget your work and the love you have shown him as you have helped his people and continue to help them"
Hebrews 6:10
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Okay guys, I'm un-bandaged and home! This being said, here is a picture of my scar provided. I realize it's a small town, so I'm sure some will see me out and about little by little as I recover. Please, don't make comments to me about the scar. Act like it's not there, and treat me like a person please. Even though I do realize it is pretty scary looking. Lol
If everyone could keep sharing/donating but most importantly praying and keep us in their thoughts as we settle into home life again. It will be two weeks before I can get my staples out, and two months (yes you read that right) before I can drive or pick up Madeline. Or anything else over 10 pounds. So please pray for us though this next transition to normality! ♥️
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I know a lot of people have been keeping up to date with what's been happening through Darren (who by the way has been the most perfect, supportive, and loving husband through all this) but I figured I would go ahead and update everyone here as well. Surgery was Monday, and everything went very well! My new 3-D printed piece fit in wonderfully, and they had titanium mesh (what was used in the first surgery) on standby in case it was needed, and they were able actually get more with the replacing with the mesh as well. So there is little to no fibrous dysplasia in my skull, at least to an amount where a problem should ever arise. I feel like I've been hit by a truck, and my face is pretty swollen. I've had some issues with not just pain, but nausea and my blood pressure being low as well. I lost a lot of blood during surgery, but they are giving me iron and different things to try to prevent me from having to have a blood transfusion. Just please keep us in your prayers as I recover. I can already tell, the pain I feel now is not close to comparable to the pain before, and this pain will eventually heal up! We're certainly not done yet, and we're still in the hospital, but things are all headed to right direction!
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Okay guys we're a week away! I think we are filled with just as much excitement and anticipation, as we are fear. The expenses we are about to be burdened with, and the strain on our family is an added extreme stress. Not too mention the uncertainty of what all is to come. At this time we ask most for prayers. Lots of prayers. For his healing touch, and for a financial miracle. Please also contained to donate, as closer we get the more stressed we become, and please continue to share. Please keep us on your thoughts, its tremendously appreciated ❣️
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Leslie Stinehelfer Jones
12 months ago

I hope that you have a successful surgery and recovery. My husband was given this diagnosis and had his first of many surgeries at age 16. His is of the right mandible. He is 55 now and afraid of the big surgery so remains in pain.

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$4,700 of $10,000 goal

Raised by 52 people in 21 months
Created June 3, 2017
Jessica Dover
on behalf of Amber Leigh Tedford
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$50
Holly Hammonds
12 months ago

Migraines are the worst. I can’t imagine what you have to live with. Good luck with the surgery!

$35
Anonymous
12 months ago
CC
$100
Christie Clevenger
12 months ago

Best of luck my dear. I hope this surgery gives you the life you deserve and need.

$20
A J MacDonald Jr
12 months ago

Lord bless you!

$50
Jena McNeece
18 months ago

Praying for God's many hands of provision to meet your needs, physically and financially.

$20
Anonymous
19 months ago
WH
$25
Will Holdcraft
19 months ago

Just saw this. Hope all goes well tomorrow!

Leslie Stinehelfer Jones
12 months ago

I hope that you have a successful surgery and recovery. My husband was given this diagnosis and had his first of many surgeries at age 16. His is of the right mandible. He is 55 now and afraid of the big surgery so remains in pain.

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