Help Amber's Skull Replacemnt
Early in life Amber was diagnosed with Fibrous Dysplasia in the skull, a rare genetic mutation. This caused her skull to grow incorrectly, and in 2011 at 16 years old she underwent her first partial skull replacement surgery. Her pain since then has been debilitating, throbbing and excruciating migraines, often accompanied with vomiting, extreme sensitivity to lights, smells, and sounds. This is her life almost every day. A cyst between the brain and skull was found earlier this year, as well as built up scar tissue, and more effected area at the base of her skull by Fiboerous Dysplasia. Her bone in her skull base is currently dissolving, resulting in intense pain, and if not fixed surgically she risked paralysis. go t, replaced 70% of her skull with a 3-D printed mold, got rid of excess scar tissue, removed the cyst, and shaved the bone on the skull base. She stayed in the hospital for 5 days, and still has not recovered to be able to live life completely normal. Because the base of the skull was shaved, some Fiboerous Dysplasia remains contributing the the pain she remains in. Now they have entered a trial and error stage on what may help to get her to a normal healthy life. She had dreamed of finishing college, being successfull in life, and growing her family, but with all that has happened and the debt they are now in, those dreams are unreachable even if she is able to get well. With hospital bills, regular bills (which are behind due to accumulated medical costs already), scans, tests, time spent off work to be in the hospital, meeting with new doctors to see what else can help, medication and medication changes as they figure out what woks best for her rare situation, and things of that sort are all a big concern. Any donations would be greatly appreciated, and more than anything they ask for prayers as they go through this time. At 22, married, with a daughter, Amber and her family are facing a lot at the start of their young life.
"God is not unjust; he will not forget your work and the love you have shown him as you have helped his people and continue to help them"
If everyone could keep sharing/donating but most importantly praying and keep us in their thoughts as we settle into home life again. It will be two weeks before I can get my staples out, and two months (yes you read that right) before I can drive or pick up Madeline. Or anything else over 10 pounds. So please pray for us though this next transition to normality! ♥️
I hope that you have a successful surgery and recovery. My husband was given this diagnosis and had his first of many surgeries at age 16. His is of the right mandible. He is 55 now and afraid of the big surgery so remains in pain.