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Into the Storm May 14, 2017 / my daughter in law wrote this the best. I had no idea this had been going on for 3 years.
From Kim. #THROUGHTHESTORM2017 It was something that, once I heard it, I couldn’t stop hearing it. It was a simple truth spoken in a sermon by the head pastor at Bridgepoint Church.“In life, we are either in a storm, coming out or about to go in.”As I sat there, I knew there was a storm brewing and I was heading straight for it. Little did I know exactly how big that storm may end up being. On Friday May 12, 2017, my husband, Corey, got the unofficial diagnosis of Ewing’s Sarcoma.For those of you, like us, who may not know what it is, Ewing’s Sarcoma (ES) is a type of bone cancer. Usually presented in childhood, it is very rare to see it in adults. It is characterized by pain and/or a lump where the tumor is, fatigue, loss of appetite, loss of sleep; all of which can be seen in my husband. Because of its rarity in adults, there is little known about the prognosis and treatment outside of childhood, and most of the research is contradictory.Now, I say unofficial because the only way to know if it is ES would be to rule everything else out. Multiple molecular tests have to be run on a biopsied sample of his bone and tissue. The final test has yet to come back, but the doctor at the Florida Cancer Specialists was fairly certain.The cause of this cancer is still uncertain, but it is likely from some DNA change that occurs deep in the chromosome make-up. John Hopkins gives an excellent explanation of what can happen. The treatment for ES is long and drawn out. Likely, Corey will be going through chemotherapy, surgery and another set of chemotherapy. Lots of chemotherapy.The good news in all this? The sarcoma is localized to his rib and there is a high cure rate with this disease. Once we get a team of doctors in place we can start moving onto the treatment and getting him better.But this is what this blog will be about. My storm. Our storm. And the journey through it. This is the storm surrounding not only my husband and myself, but also our family and those close to us. We are going through this. But we are going through this storm together.
From Kim. #THROUGHTHESTORM2017 It was something that, once I heard it, I couldn’t stop hearing it. It was a simple truth spoken in a sermon by the head pastor at Bridgepoint Church.“In life, we are either in a storm, coming out or about to go in.”As I sat there, I knew there was a storm brewing and I was heading straight for it. Little did I know exactly how big that storm may end up being. On Friday May 12, 2017, my husband, Corey, got the unofficial diagnosis of Ewing’s Sarcoma.For those of you, like us, who may not know what it is, Ewing’s Sarcoma (ES) is a type of bone cancer. Usually presented in childhood, it is very rare to see it in adults. It is characterized by pain and/or a lump where the tumor is, fatigue, loss of appetite, loss of sleep; all of which can be seen in my husband. Because of its rarity in adults, there is little known about the prognosis and treatment outside of childhood, and most of the research is contradictory.Now, I say unofficial because the only way to know if it is ES would be to rule everything else out. Multiple molecular tests have to be run on a biopsied sample of his bone and tissue. The final test has yet to come back, but the doctor at the Florida Cancer Specialists was fairly certain.The cause of this cancer is still uncertain, but it is likely from some DNA change that occurs deep in the chromosome make-up. John Hopkins gives an excellent explanation of what can happen. The treatment for ES is long and drawn out. Likely, Corey will be going through chemotherapy, surgery and another set of chemotherapy. Lots of chemotherapy.The good news in all this? The sarcoma is localized to his rib and there is a high cure rate with this disease. Once we get a team of doctors in place we can start moving onto the treatment and getting him better.But this is what this blog will be about. My storm. Our storm. And the journey through it. This is the storm surrounding not only my husband and myself, but also our family and those close to us. We are going through this. But we are going through this storm together.
Organizer and beneficiary
Diana Hill LaFave
Organizer
St. Petersburg, FL
Kimberly LaFave
Beneficiary
