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My Journey With Arachnoiditis

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My name is Callie Sass, I am 31 years old and I was recently diagnosed with Adhesive Arachnoiditis. Adhesive Arachnoiditis is a debilitating neurological disorder caused during surgery and absolutely unrepairable. It is not something that you have it is something that is caused. I have found a doctor in California that specializes in my disorder and I sent my information to him along with my current MRI that showed the Arachnoiditis and he called me back today and said it is Adhesive Arachnoiditis with adhesions on my cauda equina(the bundle of nerves at the bottom of your spinal cord) which causes severe pain, headaches, numbness and paralysis along with bowel and bladder dysfunction. He insisted that I need to be seen asap in California to be put on a treatment plan that will help to control the disorder from furthering damage to my spinal cord. If I don't go to see him and get on the right treatment plan I will in fact be paralyzed and in a wheel chair. I have three young children that deserve to have their mother back. Please if you can help it will definitely go to a good cause. I will be using the money to help fund the trips to California to see the specialist. If you can't donate please pray for me that I can get the right treatment. I have an appointment scheduled for May 14th and 15th which is Mother's Day. I missed Mother's Day last year because I was in the hospital but my kids understand mommy is going to try to get better.

To learn more about this disorder you can click on the links below or just google https://www.painnewsnetwork.org/stories/2016/7/9/new-treatment-gives-hope-to-arachnoiditis-patientshttp://www.cofwa.org/arachnoiditis.htm

Organizer

Callie Sass
Organizer
Imperial, MO

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