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My Battle With Sarcoidosis

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This is hard for me to do but my options have run out. I have worked hard as a single mom of 2 beautiful kids. Started a job in the trades as a Plumber/Gasfitter. By hard work and dedication earned my way to my journeyman certificate. I was more then taking care of my kids, they had everything they needed. Was pretty proud of myself. 3 years ago it all came to a crashing halt. It started with a cough that wouldn't stop, I was put on light duty while my doctors tried to figure it out. My health quickly declined leaving me breathless and unable to go to work at all. I was given a medical lay off. I had blood work and multiple scans. My scans came back with masses riddled in my lungs and in my chest. Had many failed biopsy attempts. Finally demanded a new specialist. I was sent for two procedures with an anesthesiologist that would make sure I stayed asleep. They were successful in these biopsy. My results, Sarcoidosis. Sarc is a autoimmune disease that affects different organs of the body, most commonly the lungs and lymphnodes systems. I was put on high doses of steroids and many inhalers, I just kept getting worse and breathing became more of a struggle with each day. They kept prescribing all sorts of treatments making life difficult to function in. My kids have suffered by me not being physically able to do anything with them. Again I asked for yet another specialist, and was put thru the same series of tests all over again. Upon new scans the masses have grown substantially. Next course of treatment is a form of chemo to try and shrink them. At this time i was also informed from the damage and scaring in my lungs I would be unable to return to my career as a Plumber/Gasfitter without putting myself in significant danger of lung failure. This was devasting to me as I have put everything into achieving this career and striving to become the best I could be. I cough all the time to the point where I have destroyed my bladder and have thrown up so much to were my throat is being burnt out from the acids. They have tried everything to get this illness under control to no avail. In this time my unemployment has run out, disability has not been approved yet, went to social services seeking help and was told the child support, that's court ordered, (but I don't receive as he avoids it by working under the table), was more then they allowed for a family. I appealed it as I don't receive a dime and was still turned down. Our system is very broken. My savings has run dry and I can no longer support myself or my children and the stress from this has not helped with my illness what so ever. I'am about to lose everything I worked so hard for. I feel like a failure as a mother to my children as providing the necessities of life have become a daily struggle. Thank you for taking the time to read my story. If your not comfortable donating thru here I can accept etransfer at [email redacted]

Organizer

Joleen Doucet
Organizer
Edmonton, AB

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