Renee & Cherise Sheffner Mail box:
7671 Ellis Ave. # B, Huntington Beach, CA 92648
Cherise, my daughter is a sweet 16 year old young girl, who has recently been diagnosed by the Mayo Clinic with Edlers Danlos Syndrome, causing Dysautonomia, the invisible illness. Dysautonomia refers to a disorder of the autonomic nervous system (ANS). ANS is a part of the nervous system that controls involuntary functions in the body, such as heartbeat, widening or narrowing of the blood vessels, breathing, body temperature control, pupil dilation, and digestion, amongst others. When something goes wrong in this system, it can cause serious problems and pain.
With the support and prayers of many we were able to go to the Mayo Clinic in Minnesota where we received answers! They were willing to work with us and set up a payment plan for the balance of the bill and gave doctors in california recommendations on follow up. However they recommend we go back for a 3 week program costing $35,000. to reboot her autonomic nervous system.
Thank you in advance for your support and prayers!
With all our love Renee & Cherise
We would like to thank you for your support and prayers during our time of need this year. Because of you we were able to go to the Mayo Clinic in Minnesota where we got answers! Cherise was diagnosed with a genetic disorder: Ehlers-Danlos Syndrome, a connective tissue disorder, which is the cause of her dysautonomia. Their respiratory treatment has enabled her to avoid ICU visits and her wheel chair thus far.
They recommend GI and genetic follow up, which can be done in California. However, they are recommending a 3 week return visit for a program designed to re-boot her autonomic nervous system. This may or may not be in God's plan.
Please continue to keep her and her doctors in your prayers, so in the future she may have a day without pain.
Presently she is still home schooled and working up her endurance. Her GI problems have progressed, however we have faith the Doctors will soon resolve this.
She keeps a great attitude & continues to bring joy to all.
May God bless you as you have blessed us!
Renee and Cherise
I would love to contact you and receive some information about the mayo clinic. My mother suffers from dysautonomia and we are very concerned. Any chance you would be available for this?
Renee, I am so thamkful you eere able to get at least some viable answers at Mayo Clinic. But I do have a question for you.
Cherise, my sweet niece. I want you to know how much you are loved and what a joy and inspiration you are to us. There are many prayers for you and I have no doubt you will be able to go to the Mayo Clinic where the doctors are experts in this field to be able to fully diagnose and treat your condition(s). I am reaching out to my family and friends to help either by donating or just by prayer to help you get through this. I cant believe you are already 16 years old, Happy Birthday. We know this was not the birthday you had expected for your sweet 16. I feel in my heart that once we are able to get you the care and treatment that is needed, that your birthdays in the future will be bright and happy. Uncle Fred and I are sending you hugs and love and you are in our prayers. Love You!!!!! Aunt Val