Butterfly Boy Needs A New Bathtub
Brody was born on May 24, 2011 missing skin on his extremities. He was diagnosed with a severe and life threatening skin condition called Recessive Dystrophic Epidermolysis Bullosa, or just EB for short. Brody is missing the collagen 7 protein in his body that helps hold his layers of skin together. Without this protein, the slightest amount of friction against his skin will cause it to blister or come off altogether.
He is wrapped in bandages from the neck down. These bandages help protect what good skin he has from developing blisters or wounds, and also helps the wounds he has from developing infections. About 80% of Brody's body is covered with open wounds comparable to 3rd degree burns.
On top of the everyday pain he must endure, 3 times a week he must go through excruciatingly painful baths and bandage changes. The baths are especially painful. Vinegar and bleach are put into his bath to help fight off infections and just getting wet is torture. They are so painful he can't even be unwrapped for baths (please see the bath video on this campaign under the updates tab). With this new microsilk bathtub, it will eliminate the need to use vinegar and bleach as much as we do now, and we may not have to use them at all. The microsilk tub uses oxygen bubbles to help cleanse the body which will help tremendously with the debreedment of his wounds. Overall, this new bathtub will be much less painful on Brody and will also get him a lot cleaner than I can get him right now. A few other EB families have used this new tub and have seen great improvement in their child's EB skin.
With your help, I can hopefully make this new bathtub a reality for Brody. If more than enough is raised, I'm hoping to put it towards building an addition onto Brody's bedroom for a new bath/bandage room so his bedroom can be a bedroom. Right now his bedroom is full of his bandage supplies and all of his toys are in the living room.
Brody lives every single day in more pain than any of us could ever imagine. However, he is one of the happiest and sweetest kids you will ever meet (check him out singing under the updates tab).
I would just like to say thank you in advance for donating and/or sharing our GoFundMe story.
This breaks my heart to see this baby a child of God have to go through this. To be a parent and have to endure the pain of seeing your child in this much pain must be unbearable. I pray for your family and pray this tub will help you and this baby through his long journey. Many people donate for many reasons but this reason is by far one of the most heartbreaking ones one seen on a while. This baby is strong and so are his parents. May God be with you and I hope you get this tub soon
He is in so much pain.I cry looking at his precious face. I want so badly to take his place. I pray and think about him often. Let him know how much he is lobed by many around the wrong that don't even know him bit know of him. I pray this tub does take some anguish away from him. Continued prayer for his healing. He has an awesome sister!! And wonderful family
I am the pastor of a church (DaylightChurch.com) in Kentucky. I would like to shars Brody's campaign with my church this Sunday, including the video you posted of the bath. Could I get permission to do so? We meet in a movie theater and I'd like to show it on the bigscreen and then post the back-of-room shot on our vimeo account. (https://vimeo.com/daylightchurch) - Would you mind confirming here or messaging me on FB to give me permission to do so? Fair Use will allow me to show it to the church but I need your permission to post the video on our Vimeo account.
Oh my sweet baby boy that just broke my heart and put me in tears , baths shouldn't be painful like that I wish I could give u guys whatever u needed I'm so sorry , I will be sharing this as much as I can and on payday I will be sending a little something , this just broke my heart , I lost my baby boy last year I know that's different but see a little boy go threw this kills me I will help as much I can I really hope u get ur bath tub and it helps