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Aaron's back surgery

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In May 2010 we noticed that Aaron had a curve of his spine. The initial x-Ray showed a 29 degree curve of his spine. Nobody in Atlanta was willing to help us give my baby what he needed to prevent his back from getting worse. One orthopedic Dr put him in a brace to wear at night that was terrible. It went on his back and went down 1 of his legs. It made my then 18 month old completely immobile at night. We finally heard about the Shriners Hospital for Children. We had our 1st appointment there in October 2010. His curve has then gone from 29 degrees to 81 degrees. At that point he was critical. Infantile scoliosis is a type that causes and S shape curve to the spine. This curve can get so bad that it can cause the spine to crush the heart and lungs. Our sweet boy has been out in countless casts and a few braces. Each time he has had a Mehta Cast applied, he was put under anesthesia. The goal was to get his spine straight in each cast and hold it straight for 12 months. At that point he would have been cured. Unfortunately the casting did not cute my baby. We knew early on that we needed to keep him in a cast until he was 8 and the Dr was ready to do surgery. Life was so hard for Aaron while in the cast. It did not come off for 6 weeks. He got a 1 week break without it. When he had it on he could not take baths. He had to have sponge baths. The cast would begin to sour because of how active he was. He could not go swimming. He missed water birthday parties. He lived like that for 6 years. We just went to the Dr and his curve has progressed to 90.1 degrees. It is now time for surgery. We go back to meet with another ortho at Shriners on in October 6th to see if he is a candidate for for the magnetic rods. These rods will be inserted surgically in his back. They will be magnetically adjusted every 3 months and surgically once a year. We really want him to be a candidate for these rods. If not, he will have to have the regular titanium grow rods. Those rods will have to be surgically adjusted every 3 months. We really want to reduce the amount of surgeries he has. He will continue with rods until he is done growing. At that point he will have a spinal fusion done.
The reason for this account is because I do not have enough vacation time to stay home with him during his recovery. There will be hotel expenses and food expenses for us and my parents. Luckily the hotel gives a rate of $39 for the hospital families. We are looking at a minimum of a 1 week stay in the hospital. Please, if you can donate anything, even just $1 and share this it will be a great help.









Organizer

Amanda Poore
Organizer
Social Circle, GA
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