Help Jakob kick cancer's ASS!
**All funds will be going directly to Jakob's care and will be managed by his mother, Karri Hwang.
It has been a while since I have been able to update our go fund me page. We just found out that our team is getting Jakob into a clinical trial out of Los Angeles Children's Hospital. Jakob will have his T Cell genetically altered to be come cancer fighting cells. We are feeling so blessed that our team found this trial for Jakob. This summer will be spent traveling to California and possible having to stay there for 4-6 weeks. Although this is not ideal it is something that has to be done to give Jakob the best chance at a cure. Thank you for all of your support and donations. These donations have helped us so much. We have used this money to pay for medical expenses and deductibles. Please keep praying hard for Jakob and his many doctors who are helping us get him into remission. Thanks so very much for all of your love and support. It is the army of family and friends around us that keep us strong during this fight. If anyone is interested in following Jakob's journey please ask to join #Hwangstrong on Facebook.
Yesterday's news was great news. Jakob's tumor has shrunk from over 6 cm to 1 cm. It was so amazing to see what medicine and Jakob's team of Doctors and nurses have accomplished. The doctor did request a biopsy to see what exactly was in the small spot left on his sacrum bone. However, the intervention radiologist said it is too risky to try to biopsy that area because the area is where Jakob's nerve roots are. The risk is too great and could cause permanent damage. The official results from the PET scan recommends to add to the the treatment plan to be sure the cancer is all gone. So instead of finishing treatment with round 4 Jakob started round 4 of 7 total treatments yesterday. We had to shift gears a bit and prepare for a little bit longer time period to beat this disease out completely. Jakob had to accept that he won't be able to go back to school until March and I won't be back to work full time until March either. That is ok though, because we feel so very positive that Jakob is kicking cancers ass and that this extra treatment will kick it all out of his body!! So this news really just means a little longer of a race to the finish line. We are so humbled by all of your support. We have a big pancake breakfast to attend tomorrow at Elyria Catholic from 8:30am-11:30 am to benefit Jakob. Please stop by if you are interested. Tickets are available at the door. We can't thank everyone enough for taking care of us. The meals, donations and prayers of support have been absolutely incredible. Please keep praying for continued complete healing and strength for Jakob. He is officially half way there!!
I wanted to take a moment to update this incredible Go Fund me group. Yesterday was day 1 of Jakob's second round of chemo. This time around we were smart and brought in our own freshly laundered sheets, blankets, and pillows so this would look and feel a little more like home. Last night after he was done with his first bag of Chemo he was off for a walk with his ear buds in and he wanted to be on his own. He has had someone by his side pretty much 24/7 for over the last month. So taking a walk on his own is exactly what he needs and deserves. There are not many 16 yr old boys that spend that much time with their parents. Jakob has continued to show such strength and determination through all of this. He does have his moments of feeling down but he surprises us and is back to his upbeat positive self in no time. We can tell that the mass has shrunk more since his first round of chemo because Jakob is walking much better and his pain is subsiding. This round of chemo will be done on Friday and we hope to be discharged some time Friday or Saturday. Jakob will be half way through treatment when this round is over!! Then he will get to rest at home with the dogs! Elmo and Grover have provided so much love and affection for Jakob while he is at home. I'm truly glad we have them because I see the unconditional love they have for each other even more now.
The money this group has raised has been incredible. We will be using it to pay our deductibles for 2016 and2017. It's also a great help since I filed for FMLA and am only working 2 days a week. We feel so blessed to have so many people that care about us. This has deepened our faith and has taught us that God is in everybody. I will send another update beforeJakob starts round 3 of Chemo. Please keep praying for strength and healing for Jakob! We feel the prayers!!
Thank you so much for your support!!