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Support for Nick

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This is for my dear friend Nick DeCarlo. Many might know him for his infectious personality and big smile, something he is always doing! Nick loves to live life to the fullest. He is usually found on his motorcycle with Yonkers MC, or spending time with friends and family.

I know you’ve heard a lot over the last 2 years regarding the DeCarlo Family and their health struggles. Thankfully, both of his brothers have received their new, healthy hearts. Now, it is Nick’s turn.  Nick has been officially listed for a heart transplant since 6/01/16.   As of 9/30 he was moved up on the priority list- meaning he needs a heart quickly.

First, a little background for those of you who aren’t aware. Nick, like his brothers, have a genetic form of Dilated Cardiomyopathy….which is a disease that over time, causes the heart to dilate and weaken no longer allowing for proper blood flow to the body. This causes heart failure. Nick has been in heart failure for many years, but it was being managed my medicine.

 However, this past April, the heart failure was no longer manageable with just pills and diet. He had a picc line inserted into his arm that runs through his veins directly delivering medicine to his heart.

 As I speak right now, Nick is in the hospital. He has developed an infection in his picc line and it was discovered that despite increasing the dose to his IV medicine, it is no longer working for him.  He received the news that he will not be leaving the hospital until he receives his heart….. That is a very tough blow to his wife Robbin and the rest of his family. I should mention that BOTH of his brothers and have just gone through this process. His younger brother Dominic was transplanted on May 7, 2015, and his older brother Anthony, was transplanted on July 12, 2016. Can you imagine what this family has endured in the last 2 years?

I am asking for any help you can offer to this honorable man and his family. Robbin is still working, and trying to manage things at home. His mother was first helping to take care of one son in California, then the other in Texas, and now she is trying to help take care of Nick here. Travel costs are adding up.

There are many costs that your generous donations will go toward. First and foremost are the anti-rejection medicine that he will need to take in order for his body to not reject his new heart for the rest of his life.( up to $7,000 a year – out of pocket)  But, there are other smaller costs that add up, such as parking in NYC which usually runs more than $35 a day.  Not to mention all of the doctor visits and follow up appointments he will have once he finally gets his heart.

I am asking for any help you can give. Nick, along with Yonkers MC participates in many charitable events throughout the year, helping kids have a Christmas and making sure kids can go to College. Now it is his turn to receive. Please help if you can, and share this if you can’t. I want to see my friend smile again! Please keep the DeCarlo Family in your thoughts and prayers, I can tell you they need all they can get.

If you are not a registered organ donor, please go to organdonor.gov and register today.
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Donations 

  • Anonymous
    • $776 
    • 7 yrs
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Organizer and beneficiary

Robbin Decarlo
Organizer
Furnace Woods, NY
Robbin DeCarlo
Beneficiary

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