Mayo Clinic Summer2014 TeamDustina!

$5,971 of $10.5k goal

Raised by 112 people in 44 months
Jennifer Lanier  VANCOUVER, WA
www.advocate.com/women/2013/04/27/grimm-actress-seeks-help-save-wifes-life

My beautiful wife, Dustina (on the right), is one of most generous, open-hearted people I have ever known. She is an amazing woman, a beautiful picture of victim to survivor to activist. For 14 years, she has been working for survivors of domestic violence and sexual assault as an advocate, as a trainer of advocates, and as a speaker at many regional and national conferences. And now, this tireless fighter needs help in fighting a completely different battle. Any help you can give is greatly appreciated.

At a conference in late 2010, Dustina began to notice that she was having difficulty walking and standing for long periods of time. Her left leg would stop working for no apparent reason. A few months later, in one terrifying week, she lost 70% of her vision and had to have emergency sheath fenestration of her optical nerve. But the pressure in her brain continued to build. She was diagnosed with pseudotumor cerebri and discovered to have a chiari malformation of her brain. After 19 spinal taps to relieve the pressure, she had surgery to implant a stent in her brain to drain off the excess spinal fluid. As she recovered from that surgery, her ability to walk became more impaired. First, she could only walk as far as the living room to the kitchen, then only from the bed to the bathroom. A walker helped briefly but then her arms and hands started losing strength. She began to use a wheelchair sometimes, then half of the time, and by summer of 2012, full time. But, the medical team that she worked with was determined to find the underlying causes and that was enough to keep hope alive.

February 2013, without any notice, Dustina's employer eliminated her position and the subsequent loss of health insurance meant the loss of access to the medical team. At her last visit before the insurance ran out, her neurologist recommended that the Mayo Clinic was the next logical step. She would even advocate for Dustina to receive an assessment, diagnosis, and treatment without charge through a special program.

But even with their services pro bono, a trip to the Mayo Clinic means other expenses: travel there and back; lodging during the stay; food; and as I would have to go with her as an aide, the expenses of home for a month (rent, utilities, insurance for our accessible van). We have gone through all of our savings already covering medical bills and prescriptions. We do not know what you can do but any help you can give will be greatly appreciated and any funds raised that we do not end up needing will be donated to the domestic violence shelter where Dustina first went as a client and later worked in as an advocate. Thank you so much for opening your heart and reading this.
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Update 10
Posted by Jennifer Lanier
39 months ago
It has been a tough day for the Haase-Lanier family. Dustina and I went back to sleep after sending the boys off to school and awoke again to the smell of smoke. I found a fire raging in our kitchen, yelled for Dustina to get out, called 911, got the dog and ran outside. The fire dept was there in a few minutes and put it out but the smoke damage was intense.
The management is working on another ADA compliant apartment for us and the Red Cross got us a hotel for a couple of nights. We are ok but shaken.
Please, send some of your loving light our way. We are so blessed with this family of friends. Thanks for all of your help in the coming days.
Love,
Dustina and Jennifer
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Update 9
Posted by Jennifer Lanier
42 months ago
Last night's Benefit for Princess Pride Dustina was an amazing success! The staff at Tiger Lily Restaurant and Bar in Vancouver WA was fantastic and patient.
The Poetry Slam started off the evening, a celebration of words, rhyme and rhythm from youthful poets that excited the crowd! Love me some Triple Point. Super Queer hankies were given to the finalists. Keep writing, poets...there will be more.
The benefit performances were outstanding...best in the Metro for sure! Thanks to Ivory Cox for her surprise appearance and no hair; to Max & Moana Storm (y'all give good support); Kitty KariAll, meow!; Slylyka Foxx, giving good Winona and clipper love; Annie Vergnetti for a beautiful song and for joining Team Dustina on the Cue Ball Crew; Kellie for being a new Crew member (they both shaved their heads for the benefit. ..mad ovaries for that one, grrls! Thanks to Tommie Girl, Richard, Emilio, Rasha, Sir Awesome (all the way from Tacoma), Johnny O (magic pants!) , Belinda Carroll (got your funny on); Bettie Monroe, and Poppy Beaverhausen ; DJ & Darius selling raffle tickets and dealing with being up late without crankiness; Mom Dianna for beautiful raffle prizes and all the Avon action (and care packages: love you, Mom); Mikey Ford running the sound & making Bruce push his gender-markers by Shotgunning "Love Me Like a Man"; Jackie Stone for the use of the hall and donating some of the drink proceeds; and everyone whose donations big and small (over $104 in change!) added up to an incredible $1178.91 for the night! We are moving rapidly to our goal with everyone's help.
Y'all are all a beautiful, loving, generous community. Thank you from Dustina (working the hats & headbands!), thank you from Bruce (available to perform anywhere, anytime!), and thank you from me. I love you madly!
Love my family!
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Update 8
Posted by Jennifer Lanier
42 months ago
Hi beautiful people,
A reminder for folks in the Portland/Vancouver Metro area: the benefit for Dustina, the Princess Pride Benefit will be on Wednesday, June 5th (next week) at the Tiger Lily Restaurant and Bar in Vancouver WA. Show starts at 8pm. Bruce TD King will be your emcee. There will be great performers, raffle items, and of course the terrific food & cocktails that Tiger Lily is known for. Look for the special "Dustina Cocktail!" Can't wait to see you!
The Vancouver Gay Prides #3
HIRH Princess 36 Dustina
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Update 7
Posted by Jennifer Lanier
42 months ago
Hi, beautiful people.
After suffering through handfuls of hair coming out with each stroke of the brush, Dustina decided to take some control. She talked with our dear friend and hair stylist, Allen Fertuna, and decided to shave it all off on Saturday, May 25 at Allen's salon.
When we arrived, a big surprise was in store: two brothers, their families, and her mom were there to lend support. Not only that but her brothers Jerry & Jim; Jerry's son, Luke; Jim's son, Jacob; and Allen and our friend Andrew, better known as Kitty KariAll, stepped up and shaved their heads as well!
It really was a celebratory atmosphere. Terrie Quinteros and Chris Lira were there, bringing fun and margaritas! Our boys were helping with the younger kids. Other clients in the shop were delightful and patient with all the ruckus and made donations as well. It made an emotionally difficult situation much easier to bear.
We are halfway to our goal and spirits are high. Thank you everyone for sharing so much with us. Please share this page as widely as you can!
And if you are in the Portland/Vancouver area on Wednesday June 5th, please join us at the Princess Pride Benefit at the Tiger Lily Restaurant & Bar, 1109 Washington St., Vancouver, WA 98660
(360) 828-1245. Show starts at 8:00pm.
Thank you and bless all of your hearts!
Before...
Cue Ball Express!
The whole crew!
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Kay Long
39 months ago

Oh my geez, my poor ladies! I'm sending positive generating thoughts your way!! Hugs!

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$5,971 of $10.5k goal

Raised by 112 people in 44 months
Created April 19, 2013
SJ
$40
Stormageddon Jourabchi
30 months ago
$50
Anonymous
33 months ago
JB
$20
James Bermea
39 months ago
$10
Anonymous
39 months ago (Monthly Donation)
$10
Anonymous
40 months ago (Monthly Donation)
BS
$10
brandy spears
40 months ago

I hope everything works out for....I can't give much, but it all helps

KV
$25
Kay Vail
41 months ago
$10
Anonymous
41 months ago (Monthly Donation)
$10
Anonymous
42 months ago (Monthly Donation)
TG
$100
Terry Gilbert
42 months ago
Kay Long
39 months ago

Oh my geez, my poor ladies! I'm sending positive generating thoughts your way!! Hugs!

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