Malcoms Way

$2,755 of $7,000 goal

Raised by 28 people in 34 months
Malcoms needs have continued to change as he is getting older and I feel overwhelmed with the level of care he  warrants. This year has been especially challenging trying to  work out the educational piece of schooling. The few days I took him to public school, he lashed out with physical aggression at students and staff, I pulled him out for safety reasons.
He is getting in home  ABA therapy which is helpful but I have to be present in order for the therapists to work here, and it's only 16 hours per week. I was hoping to supplement with homeschool programs but computers are very hard to manage with Malcom. He chooses to X out and spend time on YouTube and it becomes a power struggle every time technology comes out.
I am also getting labwork and Biomedical  Doctors advice on supplementation which is addressing  Malcoms serious methylation problems, vitamin deficiencies and prediabetic glucose levels. It's very difficult to keep supplements ordered and understand protocols but I have been trying to do this for years... 
I am a single parent and I am struggling along, trying to explain to my friends and family what autism is doing  to my sons life as well as mine. 
I have been accused of "creating my own victim life" by close family and that I just want a pity party. Nothing could be farther from the truth. 
I love Northern Michigan but truthfully, the lack of care providers and options for education for Malcom has been really difficult. I traveled  this summer looking at other programs and found several good ones in Florida, Virginia and Indiana.
I was hoping to stay here close to my family in Frankfort and Traverse City but I am getting so exhausted and discouraged.
I don't have enough time to work the hours I need  due to the lack of caregivers.
So yes, here I am asking for help. I would very much like to move him to a center based program in one of the cities I researched. I can also find respite and other outreach services, like special olympics in a more networked area. 
This is not easy to ask and publish my woes, if you are not interested in helping I completely understand, but please hold back your criticism, this is hard enough. Thank you.
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Niki and Malcom this morning doing some discrete trials
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Thank you to all of my friends and family who donated to my fundraiser for Malcom!❤ I really appreciated your generosity in helping us get through a rough patch of transitions. Malcom is getting in home therapy services with the Autism Center of Michigan. Niki is an excellent therapist and Malcom really likes her. This week we are going to give the new center a try and see how he likes attending his therapy sessions there. I'm hoping he enjoys being in a different setting, being home so much is definitely not what I want for my teenage son but managing his anxiety is key for his success and helping keep aggressive behaviors down.
I wish I could put my finger on exactly what happened to Malcom that caused his behaviors to flare up to what they have become. He was the sweetest little boy but around 3rd grade he started having problems at school and they only continued to get more severe.
Malcom can be the most loving boy at times but when his anxiety meter goes into the red, it's very hard to help him calm down.
The future for Malcom is still uncertain as it is for me of course. I'm still researching different centers in areas that have more resources, social group activities and parent support groups, but it's hard to leave Northern Michigan too. So I have my fingers crossed that the therapy he is receiving here will help him get back into school.
Keep him in your prayers and blessing lists! Thank you for being our friends!❤️✨
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$2,755 of $7,000 goal

Raised by 28 people in 34 months
Created August 29, 2016
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$20
Anonymous
30 months ago
JB
$100
Jim Barnes
30 months ago

You deserve the most and then best of what you want and need

GE
$20
Gretchen Eichberger
32 months ago

You are a hero!

MV
$75
Maureen and Hans Voss
32 months ago

Your dedication and courage are inspiring, Heidi! Here is a little support and encouragement to ask for what you need! love to you and Malcom!!

RY
$50
Robyn Yates
32 months ago

you are awesome!

TH
$50
Tracy Harbold
32 months ago
JS
$125
Jamie Schwemin
32 months ago

I love who you are!

CN
$25
Cari Noga
32 months ago
1
1

Asking for help is an act of courage and shows your dedication to Malcolm. Wishing you a brighter light to find Malcolm's way.

SF
$20
Susan Fisk
32 months ago

Wishing you all the best!

TB
$155
Timothy Brunette
32 months ago

Best of luck to you both! Give me a call sometime! Hugs

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