He is getting in home ABA therapy which is helpful but I have to be present in order for the therapists to work here, and it's only 16 hours per week. I was hoping to supplement with homeschool programs but computers are very hard to manage with Malcom. He chooses to X out and spend time on YouTube and it becomes a power struggle every time technology comes out.
I am also getting labwork and Biomedical Doctors advice on supplementation which is addressing Malcoms serious methylation problems, vitamin deficiencies and prediabetic glucose levels. It's very difficult to keep supplements ordered and understand protocols but I have been trying to do this for years...
I am a single parent and I am struggling along, trying to explain to my friends and family what autism is doing to my sons life as well as mine.
I have been accused of "creating my own victim life" by close family and that I just want a pity party. Nothing could be farther from the truth.
I love Northern Michigan but truthfully, the lack of care providers and options for education for Malcom has been really difficult. I traveled this summer looking at other programs and found several good ones in Florida, Virginia and Indiana.
I was hoping to stay here close to my family in Frankfort and Traverse City but I am getting so exhausted and discouraged.
I don't have enough time to work the hours I need due to the lack of caregivers.
So yes, here I am asking for help. I would very much like to move him to a center based program in one of the cities I researched. I can also find respite and other outreach services, like special olympics in a more networked area.
This is not easy to ask and publish my woes, if you are not interested in helping I completely understand, but please hold back your criticism, this is hard enough. Thank you.
I wish I could put my finger on exactly what happened to Malcom that caused his behaviors to flare up to what they have become. He was the sweetest little boy but around 3rd grade he started having problems at school and they only continued to get more severe.
Malcom can be the most loving boy at times but when his anxiety meter goes into the red, it's very hard to help him calm down.
The future for Malcom is still uncertain as it is for me of course. I'm still researching different centers in areas that have more resources, social group activities and parent support groups, but it's hard to leave Northern Michigan too. So I have my fingers crossed that the therapy he is receiving here will help him get back into school.
Keep him in your prayers and blessing lists! Thank you for being our friends!❤️✨