Luby Recovery Fund
This fund has been established by friends of the Luby family to help them through this difficult time. The funds will be used to cover medical and living expenses. We encourage you to donate to help this beloved family, any amount is appreciated. Thank you in advance for all your hope and prayers.
On this Thanksgiving Day and everyday, we are so very grateful for all you have done for us. The impact you have made and continue to make in our lives cannot be put into words. Through these hard times, you provided us a sense of peace. We appreciate this day we have together and the ability to enjoy it.
Our warmest wishes for you and your families to have a wonderful Thanksgiving Day! The Lubys are thankful for each and every one of YOU!
Theresa, Sam, Grace, Peter & Claire
This is not easy for me to do. Pride gets in the way and I am truly sorry for having to ask this of you. Seeing that we already have been blessed by all of you with nearly $100,000 through GoFundMe is beyond words. With all that is going on in our world today, it makes me feel worse because there are so many people in need. Sam keeps mentioning to family and friends that we may need to send out an SOS and we have been encouraged to do so by many. The bottom line is, WE NEED HELP.
Through your love and support, we have never felt alone and it has proved that you have had our backs. Through the hurdles we have been dealt, one could easily have felt buried. Instead, you lifted our family up and continue to carry us in ways that you cannot imagine. Financially, you have allowed us to stay in our home since the accident, you have given us the ability to afford the health coverage we so desperately need along with the deductibles having been met for both 2016 and 2017, we have stayed afloat with our everyday bills, you have provided our children with the consistency that allowed their surroundings to remain as normal as they could possibly be. For all of this, we could never thank you all enough.
There was a time around November/December of 2016 where we thought we would be able to move on with our physical abilities as they were at the time. It was shortly thereafter that the non-epileptic seizures Sam was experiencing here and there began to rule our world. They became more frequent and are so extremely painful for Sam. After they occur, he is completely exhausted and it takes a while for him to feel as though he can function again.
There are no known triggers. Some of you have been witness to his seizures while we have been out and about. Many of you have stepped in and helped us when they have happened out at the kid’s events, social gatherings, wherever we may be. Thank you to those of you who have provided Sam with the best comfort and have not made him feel so embarrassed. You may see Sam around town and he will be his old self in character but it could all change within moments. Sam can feel when a spasm is coming on. He is given warning signs. He does not lose consciousness. When he is in full spasm his body will go into full convulsions.
We have seen so many doctors in the neurological field and have been told it is a form of a Post Traumatic Dystonia/Movement Disorder from trauma to his brain caused by the accident. At this time, we have no solid solution. Medications do not help him. Currently, we are going with the advice that he needs to try and retrain his brain to control the spasms through Cognitive Behavior Therapy. We have not been promised definitive results but Sam is willing to try anything with an open mind.
Three weeks ago, Sam had another surgery on his knee. He still needs to have surgery on his hip and the IVC filter removed from the double pulmonary embolism that occurred while in the hospital. He has been told to accept the abilities he currently has with his arms and hands. There is permanent damage that he needs to try to overcome.
In regards to my health situation, I will forever have stage 4 breast cancer. It was found in my collar bone, spine, ribs, thigh bones, lymphnodes, along with the two tumors in my right breast that remain there. I am on a first-treatment chemotherapy plan. I take two pills a day, iBrance and Letrizole, and receive an injection for my bones, Xchiva, once a month. The cost of the iBrance is astronomical. It is approximately $118,000 for an annual supply and the blood work run each month for my liver is extremely expensive as well. Something we would never be able to afford without our insurance plan. Thanks to you, we have been able to maintain that plan but are coming upon a situation where our finances will not allow us to afford even that and it truly scares me.
The medication, iBrance, effects my immune system. The cycle for iBrance is three weeks on and one week off. The week off is so that my white cells can rebuild. At the end of that week my average count is 1,300 at its highest. The average person’s normal count is between 10,000 and 15, 000. Despite this and other side effects, I am doing well with the treatment I am currently on. My PET scans have been showing improvement but I have been told eventually the cancer will become smart to the medication and begin to grow again. This is when my treatment will be changed. I hope and pray that it is not for some time but unfortunately one never knows with this horrible disease. I am told my stress levels need to remain low to maintain my health. I try and keep things light and take each day for what it is. Sometimes that is very difficult to do. Taking deep breaths, not looking too far into the future and forging ahead is how I keep going. I truly believe positivity is key.
Our kids are continuing nicely with their own responsibilities. Grace is in her Junior year of high school, on the varsity cheer team, taking drivers education and is working at McDonalds. Peter has started his freshman year of high school and is on the JV9 Football team. And Claire is in 5th grade in elementary school, she is involved in clubs, plays the cello and was assigned the roll of “Golde” in the play Fiddler on the Roof.
They each worry in their own ways and of course it brings added stress into our household but overall, they have adjusted well given our family situation. We are honest with them and speak openly with everything that is going on. It makes me sad they have to deal with all of this but I couldn’t be prouder of how strong they are. As much of the “normalcy” that they were accustomed to prior to all of this is so very important for them. It gives them a safety net to hang onto. And for much of this, we owe great thanks to you.
Sam is trying his very best to not let his physical disabilities get him down. He is doing whatever he can to get himself out of bed in the morning and keep himself busy, although he is in constant pain. Doctor and therapy appointments are still a continual necessity in our life right now.
I recently received my exam results for the Civil Service Clerk Typist test and I scored 100! I am trying to find employment with medical benefits. I have been answering the letters I receive from school districts. I have a plan that I am hoping will come into fruition. I am hoping to find a job that will allow me to dedicate myself 100% to that position along with the hours that will allow time for my doctor visits, while still remaining a presence in my kid’s everyday lives, something more important to me now than ever because of the cancer. I want to be there for every moment while I still can. So, I am working on that.
With all of this being said, we are desperately in need of financial help. Having already been blessed with the generosity of so many, this is so very difficult to ask. Right now, the light at the end of the tunnel feels so far off and we are scared. Any amount that you or someone you may know that has the ability to provide for us in this time of need, would lift us up in ways that you could never imagine. Each one of you are literally lifesavers and this is our SOS.
As always, please keep us in your prayers. I can feel us being watched over every day. Still feeling blessed.
Sam Luby is thrilled to be home with his family recuperating. He is determined as he continues to rehab from his injuries. The road ahead will be a long one, but his determination, coupled with his humor, has gotten him off to a strong start.
Theresa started her cancer treatment on Friday.
They are all so grateful for the love and support of their friends and family. Northport is such a great community. Please continue to keep The Luby Family in your thoughts and prayers.
Sent from my iPhone
That is such great news Theresa! Our continued thoughts and prayers are with you all.
Not a day has gone by without your family in our thoughts and prayers. Keeping the faith.