Ayden Zeigler -Kohler, 10-years old, passed away after battling DIPG for 7 months. In honor of Ayden, the 4AydenStrong Foundation was created.
Our mission is to bring awareness to not only DIPG but to all pediatric cancer and to fund research given the limited funding that is currently in place. Unfortunately, only 4% of government funding goes towards pediatric cancer research. We also provide financial assistance to families who may be experiencing hardship while seeking treatment , clinical trials or more importantly making as many memories as possible until a cure is found. Many families have already benefited from 4AydenStrong. Ayden’s wheelchair was donated and shipped to another child with DIPG, money has been donated to multiple families to help with their needs, and items to assist in caring for and keeping a child comfortable have been donated in Ayden’s name.
Our battle has just begun. These brave, courageous children deserve the chance to live a long and happy life!
Ayden Zeigler-Kohler was a 9 year old, very active, athletic, funny and caring kid who was at football practice on August 8, 2016, when he suddenly fell while running and was unable to get up. The next few days were filled with imaging studies, blood work and surgery to figure out what exactly was going on. Then, on August 16, 2016, his parents were given the devastating news. Ayden had DIPG (Diffuse Intrinsic Pontine Glioma).
DIPG is an aggressive, inoperable brain cancer with no cure. Ayden was given only 9-12 short months to live. The doctors advised his parents that the standard care for DIPG is six weeks of radiation, which would shrink the tumor and allow Ayden to have a few months of “normalcy”. Steroids would be administered to help with inflammation. Chemotherapy was an option they could try, however there was not a ton of data to prove that it would even help in this situation.
As his parents made the 45 minute trip to John Hopkins Cancer Center five days a week for six weeks for radiation, they continued researching this evil cancer. They found that their only other option was to try to find a clinical trial which may or may not help to extend Ayden’s life. They also found that not all patients are accepted to clinical trials and most times these trials are not covered by insurance.
After being denied by multiple clinical trials the Kohler’s applied for, they decided to try chemotherapy. As Ayden slowly began to decline, his family decided that rather than continuing to put all of their time and effort into finding a trial willing to accept him, they were going to make a lifetime of memories in whatever time they had left with him.
In between physical and occupational therapy, chemotherapy, trips to the lab for blood work, and so on, they went on fishing trips, hunting trips, daily outings, an NBA game, NFL games, and many other adventures, Ayden even had the opportunity to host is own hunting show.
Unfortunately, Ayden passed away just 7 months and 7 days after his diagnosis at the age of 10 years old. Our mission is in honor of Ayden.
"Our battle has just begun. We will not stop. We will not give up. We will forever remain Ayden Strong!"
Please visit the foundation's website at http://4aydenstrong.com/
Thank you for your support!
Thanks again for all of your love & support!!
EVERYTHING WILL BE AT THE YORK EXPO CENTER IN THE UTZ ARENA (at the Fairgrounds)
Dress casual/camo/sports jerseys/Ayden shirts/School Shirts
Friday (March 31st) - 8am.......we need help to set up the room
If anyone has pictures of Ayden, please make a photo board and bring it on Friday!!
Saturday (April 1st)
Viewing is 1-5
Service is after
Celebration of life (PARTY) 6-9
"If people gather to remember me, I want them to dance, sing & take group pictures" -Ayden Zeigler-Kohler
"If anyone asks how I want to be remembered, please say the following about me: happy, funny, athletic, wise, a fighter, caring and selfless" - Ayden Zeigler-Kohler
EVERYBODY IS WELCOME TO ATTEND!!! LET'S FILL THE ARENA UP!!!!
‘In lieu of flowers, gifts in memory of Ayden Zeigler may be directed to support DIPG research in the Dr. Eric Raabe laboratory at the Johns Hopkins Kimmel Cancer Center. Please make checks payable to Johns Hopkins University. Gifts may be mailed with a memo indicating that this gift is in memory of Ayden Zeigler to the Johns Hopkins Kimmel Cancer Center, PO Box 17029 Baltimore, MD 21297-1029 or make a gift online at www.hopkinscancerresearch.org’
Is there a way we can write the family? I also have a brain tumor on my stem and I am a survivor of this. It was found when I was 10 and I am now 24 married and have a son of my own. I would love to speak to the father and write to his son to keep his spirits high and no he isn't alone in this. Please if anyone has information texts or call me at 973-420-6392
You don't know me, but I wanted to reach out to you and your family. As a mom who has lost a son and has another son fighting childhood cancer, my heart goes out to you. If you need that person who knows every feeling you are going through and the battle you have on your hands please don't hesitate to reach out to me or my husband. We are not pros by any means, we have just been through almost 5 years of for a lack of better terms hell with trying to be a family. We know the anger, the hate, the sadness, the why me and everything in between that you feel. It was an amazing group of women that helped me make it through both the loss and the first few months of my sons fight. With out them I don't know I would have made it this far. Please reach out if you need to. Your family will be in my thoughts and prayers.
Has the family considered Proton Therapy? The procedure targets tumors at inoperable locations with minimal damage to healthy cells. The facility is located at Hampton University in Hampton Virginia. Here is the website for more information: www.hamptonproton.org. Blessings to Ayden. Keep fighting young one.
Hi! I used to volunteer with and organization called the Believe in Tomorrow Children's House at John's Hopkins. They provide temporary housing for families with children attending John's Hopkins and specifically have a military initiative. Google them and also the Ronald Donald house- they made be able to provide you with a place to stay here in Baltimore while Ayden is receiving treatment. Best wishes and your family will be in our thoughts.
I walked the same path with my 6 yr. old boy. I truly wish Ayden all the very best moments surrounded by his family doing the things he loves. To his family I wish you all the strength and courage as you share this journey with Ayden. There is no battlefield in the world that compares to what you are going through Bill, this is a fight you will carry with you for life, but Ayden won't ever be far off. Much Love to you all!
Your story is touching, sad, and brought me to tears as I feel what you are going through. We lost our 8 year old daughter, Sofia, to DIPG on Sept 11, 2015. You've probably met others like us, but if you want to meet another, even if from afar, please don't hesitate to contact me. You're in my thoughts. ~Mario
Hi, First of all I want to let you now that I am keeping Ayden in my prayers. I know that everyone is giving you al kinds of ideas. I wanted to let you know that I own a breast cancer store and I was looking for all kinds of things to help my patients. I found out that using essential oils had helped some of my patients including my father. I am not trying to sell something to you, but I try everything before I show it to my patients. I was just wondering if you had tried anything like that. Praying for both you and Ayden. Lori Timmreck
I want you all go know that you touched my heart so deeply. Not just because of the Cancer but because of the amazing little boy you are and because of tge amazing family you are surrounded by...myself, my husband and our 2 yr old twins along with all our friends and family are praying for you. On another note, I see you like wrestling...I happen to know Tommy Dreamer and I was telling him about you today and I would love to put you in contact with eachother. Please message me and I would love to get contact info for you guys so that I can also send some cards to Ayden but also so Tommy can get in touch....if possible please get ot to me today as I will see him again tomorrow. Sending love and prayers
God Loves Ayden, please log in to Robert Kayanja Ministries and get to see, hear and experience the healing that God gives to his people. Ayden has a miracle in store for him. Pastor Robert Kayanja is an anointed minister from Kampala Uganda Africa with an anointing to pray for people to get healed from all kinds of illnesses. In these current days there is a 3rd phase of 77days of glory revival going on in Kampala Uganda Africa. Please trust in God he has the best for Ayden and all those who love him. Mobile 25678527731