Joseph S, Pulver Post Surgery Fund

€11,370 of €15,000 goal

Raised by 238 people in 35 months
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Hello everyone,
here is a long overdue update and Thank You note:
As many of you know, the original cause for setting up this fund had to be neglected, due to a health crisis that happened in 2017. In early August Joe had to be hospitalized due to a growth on his braim. Even though the worst diagnosis was avoided and it turned out to be "only" a cyzt, he spet 5 weeks in the hospital.
The stress, fear and worry caused another onset of my (neuro)sarcoidosis which evolbed intp Optic Neuritis - a complete inflammation of the optivcal nerve. I was hospitalized myself only a few days after Joe returned home.
For the next 3 weeks Joe was mostly in bed with a severe pneumonia, which he picked up from e - it took another month to treat his pneumonia, which in turn delayed his gesperately needed rehab.

Fast forward to February 2018: we would have been lost without your ongoing moral and financial support! Joe is doing a whole lot better, physically and emotionally, but still unable to work. The proddding and testing at the hospital revealed glaucomas in both eyes that need to be removed surgically. His eyesight is blurry at best and his first surgery is still weeks away.
I am still at home as well, still being unable to see traffic lights and hence being unable to work, do anything on the computer (I am writing this on a smartphone set up for the viewing impaired) , or to di grocery shopping by myself.

We are heavily relying on friens and family for anything that needs to b taken care of outside of our flat and we can not afford to pay for their gas o public transportation costs.
I'm on paid sick leave since early October, which means I'm down to 70 percent of my regular income. I am also missinh out on shift bonusses and other sales bonusses - which translates into effectively losing 50 percent of my income.

The money you so graciously donated has been and is still being used to pay for hospital bill, rehab costs (like a walker ) and general survival.

Again, we can not thank you enough for your ongoing support and love - we hope to be out of the madness of being viewing impaired / legally blind in the oncoming months ...

Much love,
the Pulvers
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As of today - April 3rd 2019 - Joe and I are officially receiving financial support from our respective governments and I will have to put the campain on holdannd ultimately close it down.
Joe receives a small monthly payment via Social Security and I am receiving Unemployment Benefits due to my longterm inability to work. So far, so good ...
Hoowever, I am required to apply for Disability Social Security (either for limited or complete innability to work) and these payments will be MUCH lower than my current payments. We will ultimately have to appply for additional financial support from the German government - and a GoFundMe campaign seems to imply that we receive a gigantic additional income. To avoid annother round of being declined financial support - we've already been there - we will have to step away from your generous support.

Once again, I want to thank everyone who has donated to this campaign - every single donation, no matter the size, has been critical to our survival and we are eternally grateful to everyone. Please unserstand that we have not been able to thank every single donor in person, as our sight impairments have been keeping us from doing so.
If you have not yet received a personal THANK YOU, please consider this as the long overdue Thank You Note.

If we are not connected via fb or Twitter and you would like to stay in contact or have questions about the whole chaotic situation in general, please feel free to contact me via pulverkat@gmail.com.

Again, thank you so much!
All our love and gratitude,
Joe and Katrin
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January 2019 update:

First of all, again and again, thank you SO MUCH for your financial help, your good wishes and the moral support. Next to keeping our heads above the water and easing the situation in general.

The last few months have been ... interesting. Joe had another (minor) healthscare, that meant yet another stay at the hospital (and, of course, another bill from the HI), new medication and hopefully, finally (!) an end to this madness.

I was finally given the "Go" for a 3 week rehab, which resulted in a pre-liminary assessment of the eye condition: the macula is only parially functioning, one eye has difficulty with red/green colors, the other one with blue colors. I'm still not taking in enough light - not exactly night-blind, but a lower grade of the same ailment. Due to all this, my contrasts are from hell and everything is still blurry / out of focus.
I will probably have to wear colored glasses to enhance the contrasts and can only hope that the physical theraphy tricks will help my eyes to heal.

So, in the near future, this means I will continue to receive sick payment (now from the State, as I have been officially on sick pay for more than 18 months in February), new glasses for everyone and regular check-ups to see when (and how) I can be phased back into the workforce.

Fopr thos of you that are familiar with Joe's work: in German we refer to the disfunctional part of the macula as the Yellow Spot, my glasses will be yellow (not my choice, but the result of a contrast test), and the only primary color I can truly see at this point is ... yellow. How's that for a truly carcosian turn of events?

Once again, thank you all for everything you've done so far! Here's to a better 2019! !!!
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Hello everyone! Fist of all - and once again - Thank You so much for your recent donations! You are still doing magic for us! !!

Joe has gotten much better! The second glaucoma surgery has done wonders for his eyesight (the first one not so much). His right eye seems fully functional again, the left (aka the "lazy" one) is slowly picking back up.
The viewfield is still damaged and down to 25 to 50 percent - it varies somewhat, as he is not wearing glasses just yet. He will, however, get at least one new set in December, so he will be able to slowly get back to work - something he is absolutely looking forward to!

During the last update (and before the surgeries) there was a good chance that Joe would remain with a massive vision impairment - in an unexpected turn of event, it now turns out that I might be the one who remains disabled for the time being.
The results from the "Medical Review Board of the Statutory Health Insurance Funds" are in, and they are not pretty ... There will be a "persistent defect after healing", meaning that the optical nerve is and will remain damaged. As long as it heals, it heals - when it stops, that'll be all I can expect.
Before the HI switches me over to Social Security (Disability pay), they are looking at one last option for a rehab - with very slim chances of finding something that will actually help.

So, here is to another round of additional costs (for rehab and glasses), as well as another ditch in the income. By mid February my sick pay runs out and I will be down to about 700 EUR for Disability - which means welfare until I can get back to work again. Not exactly what we had been hoping for ...

Alas, things are as they are - Joe is doing a lot better and that counts for a lot on the health side! I'm still hoping for my miracle <3
+ Read More
Hello everyone,
here is a long overdue update and Thank You note:
As many of you know, the original cause for setting up this fund had to be neglected, due to a health crisis that happened in 2017. In early August Joe had to be hospitalized due to a growth on his braim. Even though the worst diagnosis was avoided and it turned out to be "only" a cyzt, he spet 5 weeks in the hospital.
The stress, fear and worry caused another onset of my (neuro)sarcoidosis which evolbed intp Optic Neuritis - a complete inflammation of the optivcal nerve. I was hospitalized myself only a few days after Joe returned home.
For the next 3 weeks Joe was mostly in bed with a severe pneumonia, which he picked up from e - it took another month to treat his pneumonia, which in turn delayed his gesperately needed rehab.

Fast forward to February 2018: we would have been lost without your ongoing moral and financial support! Joe is doing a whole lot better, physically and emotionally, but still unable to work. The proddding and testing at the hospital revealed glaucomas in both eyes that need to be removed surgically. His eyesight is blurry at best and his first surgery is still weeks away.
I am still at home as well, still being unable to see traffic lights and hence being unable to work, do anything on the computer (I am writing this on a smartphone set up for the viewing impaired) , or to di grocery shopping by myself.

We are heavily relying on friens and family for anything that needs to b taken care of outside of our flat and we can not afford to pay for their gas o public transportation costs.
I'm on paid sick leave since early October, which means I'm down to 70 percent of my regular income. I am also missinh out on shift bonusses and other sales bonusses - which translates into effectively losing 50 percent of my income.

The money you so graciously donated has been and is still being used to pay for hospital bill, rehab costs (like a walker ) and general survival.

Again, we can not thank you enough for your ongoing support and love - we hope to be out of the madness of being viewing impaired / legally blind in the oncoming months ...

Much love,
the Pulvers
+ Read More
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€11,370 of €15,000 goal

Raised by 238 people in 35 months
No Longer Accepting Donations
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Created August 13, 2016
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