Joseph S, Pulver Post Surgery Fund

€10,190 of €15,000 goal

Raised by 209 people in 28 months
Hello everyone,
here is a long overdue update and Thank You note:
As many of you know, the original cause for setting up this fund had to be neglected, due to a health crisis that happened in 2017. In early August Joe had to be hospitalized due to a growth on his braim. Even though the worst diagnosis was avoided and it turned out to be "only" a cyzt, he spet 5 weeks in the hospital.
The stress, fear and worry caused another onset of my (neuro)sarcoidosis which evolbed intp Optic Neuritis - a complete inflammation of the optivcal nerve. I was hospitalized myself only a few days after Joe returned home.
For the next 3 weeks Joe was mostly in bed with a severe pneumonia, which he picked up from e - it took another month to treat his pneumonia, which in turn delayed his gesperately needed rehab.

Fast forward to February 2018: we would have been lost without your ongoing moral and financial support! Joe is doing a whole lot better, physically and emotionally, but still unable to work. The proddding and testing at the hospital revealed glaucomas in both eyes that need to be removed surgically. His eyesight is blurry at best and his first surgery is still weeks away.
I am still at home as well, still being unable to see traffic lights and hence being unable to work, do anything on the computer (I am writing this on a smartphone set up for the viewing impaired) , or to di grocery shopping by myself.

We are heavily relying on friens and family for anything that needs to b taken care of outside of our flat and we can not afford to pay for their gas o public transportation costs.
I'm on paid sick leave since early October, which means I'm down to 70 percent of my regular income. I am also missinh out on shift bonusses and other sales bonusses - which translates into effectively losing 50 percent of my income.

The money you so graciously donated has been and is still being used to pay for hospital bill, rehab costs (like a walker ) and general survival.

Again, we can not thank you enough for your ongoing support and love - we hope to be out of the madness of being viewing impaired / legally blind in the oncoming months ...

Much love,
the Pulvers
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Hello everyone! Fist of all - and once again - Thank You so much for your recent donations! You are still doing magic for us! !!

Joe has gotten much better! The second glaucoma surgery has done wonders for his eyesight (the first one not so much). His right eye seems fully functional again, the left (aka the "lazy" one) is slowly picking back up.
The viewfield is still damaged and down to 25 to 50 percent - it varies somewhat, as he is not wearing glasses just yet. He will, however, get at least one new set in December, so he will be able to slowly get back to work - something he is absolutely looking forward to!

During the last update (and before the surgeries) there was a good chance that Joe would remain with a massive vision impairment - in an unexpected turn of event, it now turns out that I might be the one who remains disabled for the time being.
The results from the "Medical Review Board of the Statutory Health Insurance Funds" are in, and they are not pretty ... There will be a "persistent defect after healing", meaning that the optical nerve is and will remain damaged. As long as it heals, it heals - when it stops, that'll be all I can expect.
Before the HI switches me over to Social Security (Disability pay), they are looking at one last option for a rehab - with very slim chances of finding something that will actually help.

So, here is to another round of additional costs (for rehab and glasses), as well as another ditch in the income. By mid February my sick pay runs out and I will be down to about 700 EUR for Disability - which means welfare until I can get back to work again. Not exactly what we had been hoping for ...

Alas, things are as they are - Joe is doing a lot better and that counts for a lot on the health side! I'm still hoping for my miracle <3
+ Read More
Hello everyone,
here is a long overdue update and Thank You note:
As many of you know, the original cause for setting up this fund had to be neglected, due to a health crisis that happened in 2017. In early August Joe had to be hospitalized due to a growth on his braim. Even though the worst diagnosis was avoided and it turned out to be "only" a cyzt, he spet 5 weeks in the hospital.
The stress, fear and worry caused another onset of my (neuro)sarcoidosis which evolbed intp Optic Neuritis - a complete inflammation of the optivcal nerve. I was hospitalized myself only a few days after Joe returned home.
For the next 3 weeks Joe was mostly in bed with a severe pneumonia, which he picked up from e - it took another month to treat his pneumonia, which in turn delayed his gesperately needed rehab.

Fast forward to February 2018: we would have been lost without your ongoing moral and financial support! Joe is doing a whole lot better, physically and emotionally, but still unable to work. The proddding and testing at the hospital revealed glaucomas in both eyes that need to be removed surgically. His eyesight is blurry at best and his first surgery is still weeks away.
I am still at home as well, still being unable to see traffic lights and hence being unable to work, do anything on the computer (I am writing this on a smartphone set up for the viewing impaired) , or to di grocery shopping by myself.

We are heavily relying on friens and family for anything that needs to b taken care of outside of our flat and we can not afford to pay for their gas o public transportation costs.
I'm on paid sick leave since early October, which means I'm down to 70 percent of my regular income. I am also missinh out on shift bonusses and other sales bonusses - which translates into effectively losing 50 percent of my income.

The money you so graciously donated has been and is still being used to pay for hospital bill, rehab costs (like a walker ) and general survival.

Again, we can not thank you enough for your ongoing support and love - we hope to be out of the madness of being viewing impaired / legally blind in the oncoming months ...

Much love,
the Pulvers
+ Read More
Due to Joe's recent health scare and his prolonged stay at the hospital, our needs and priorities have changed - and so many of old and new donors have came to our support. I can not even find words to express our gratitude, amazement and deep thankfulness. All of you have been helping to make the hospital stay less scary and worrisome.
Joe is getting better day by day, but will have to stay for quite a while longer, as he is still at ICU.

Again, thank you so much for your (financial) help, moral support and the loving messages we have received! We are humbled and amazed at the help we received.

Much love from Carcosa and Berlin <3
+ Read More
Hello everyone :) It's been awhile, due to a constant change in my work schedules (which are now finally settling in to a more predictable timeframe) and also due to me being busy with English to German translations of assorted short stories by Joe. So sorry for being silent for so long!

After having paid off the bank and being on a new meds schedule, we are still looking at affordable desk chairs (Joe def. needs a more ergonomic one than the one he is using now) and are desperately looking for a new bed that suits our needs.

At this point we haven't found anything, but we're still hunting.

Again, thank you so much for help and support you have given us in the past few months!

Love,
Kat and Joe
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Read a Previous Update
Alicia Graves
27 months ago
1
1

So glad to hear things are looking up! Love you both.

+ Read More

€10,190 of €15,000 goal

Raised by 209 people in 28 months
Created August 13, 2016
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€50
Anonymous
1 day ago
€100
Anonymous
9 days ago
MK
€5
Mitch Keith
12 days ago

I love Joe!

€50
Anonymous
12 days ago
CT
€50
Christophe Thill
14 days ago

Get well, you great ol' Beast !

€10
Anonymous
14 days ago
DC
€5
Dragos Cilibiu
15 days ago

I always loved his perspective on books and authors on Lovecraft eZine podcast, also .... read some of his books.

Alicia Graves
27 months ago
1
1

So glad to hear things are looking up! Love you both.

+ Read More
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