Where There's A WILL, There's A Way

$18,395 of $10k goal

Raised by 270 people in 8 months
Sue Sim
on behalf of Megan Rogan
 ALBANY, NY
Where There's A WILL, There's A Way!
   In January 2016, we found out that Megan and Justin(JAR) were having a baby! Things progressed normally and in the beginning of March we found out it was a boy! He would be named Will.  Megan went for her 20 week ultrasound and received some devastating news that no parent ever wants to hear.  They were told that there was an abnormality in Will's aorta, the main artery from the heart.  Subsequent ultrasounds confirmed a diagnosis of critical aortic stenosis with a possibility of HLHS (hyperplastic left heart syndrome).  At this point Megan's pregnancy was deemed high risk and they were referred to child cardiac specialists.  After much consideration, they were referred to Boston Children's Hospital as they are the leaders in this field and would provide Will with the best chance of a successful outcome.
   The doctors decided that Megan needed to be in Boston before she went into labor.  So on July 10th, we went to Boston to get her set up in an apartment near the hospital.  The doctors advised her to be prepared to rent for 2 months.  Five days later on July 15th, Will was born by C section.  Immediately a catheterization was performed on him to open up the aortic valve.  He began to retain fluid and on July 18th, an emergency surgery to open his chest was performed.  Bands were placed on the pulmonary arteries to reduce fluid in his lungs.  This helped him immensely as the fluid began to be eliminated.  The cardiologists were still concerned about the pressure in the left atrium of his heart so a second catheterization was performed on July 21st.  We remain impressed with Will's strength as he is improving a little each day.
   Megan and JAR are fortunate to have health insurance but they are finding out every day that there are uncovered medical expenses.  Additionally, uncovered travel and living expenses are continuing to mount at a rate we were not prepared for.  Meanwhile, their life in Albany continues.  Reese who is 15 months old must be cared for and the usual bills such as mortgages and the like must be paid.  Compounding their financial concerns, Megan's employer advised her that since this is her second pregnancy in 24 months, policy dictated that there would be no paid maternity leave.  She had 2 weeks vacation only.  Several of Megan's co-workers wanted to donate some personal time to her but that was denied also.
  Once Will is discharged, medical expenses such as home nursing and equipment will be needed. The doctors have advised them to prepare for future trips and surgeries in Boston which will require hotel stays, increasing costs even more.
  We would like to thank everyone for their support.  It is during times like this that you realize the friends you have.  Your help would be greatly appreciated and would truly go a long way for the Rogan Family.  We couldn't do it without each and every one of you and your prayers, loving thoughts, kind words and support.
  Please forward this website to your friends and family on our behalf.
                    The Sim and Rogan Family
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Jennifer White Childs
8 months ago

Bob and I are keeping you all in our prayers. You are in a great place. BCH is the place to be. My niece have Cystic Fibrosis and they are there for checkups every 3 months. They stayed at DevonNicole house while my younger niece was there for 6 months.

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Colby Davis
8 months ago

Joe and I are keeping you guys in our prayers.

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Kelly Lynn
8 months ago

Praying!!! He's a fighter! ❤️

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$18,395 of $10k goal

Raised by 270 people in 8 months
Created August 2, 2016
Sue Sim  
on behalf of Megan Rogan
MS
$100
Maryann Serbonich
10 hours ago
CW
$40
Carl Westphal
11 hours ago
JR
$235
Jenn & Rob Riberdy
16 hours ago

Here is the commission from the Pampered Chef Fundraiser we did for Will. I hope that this will help even if it is just a little bit. We are in your corner Will. Stay Strong Little WARrior. Love You Buddy

DK
$20
Donald Kirk
17 hours ago
DD
$100
Debbie D'Agostino
2 days ago

Continued prayers for Baby Will and his family!!

TW
$50
Todd Wilson
14 days ago

I wish I could be paid in providing if anyone has a method let me know. I'm willing to travel. I'm sick of building for people to sit in cubicles.

GT
$100
Gina Taylor
14 days ago

Welcome home baby Will! Prayers for your continued health. <3

JM
$100
John and Jude Martin
1 month ago

Sorry we could not make it to the race...but you are always on our minds.

CW
$50
Carla Ward
1 month ago

I pray for a speedy and complete recovery

EW
$200
Erin Weisberg
1 month ago
2
2

I was lucky to have a healthy baby in August. I do not know you but I have cried for you. My daughter's teacher told me about you and I wanted to contribute.

Jennifer White Childs
8 months ago

Bob and I are keeping you all in our prayers. You are in a great place. BCH is the place to be. My niece have Cystic Fibrosis and they are there for checkups every 3 months. They stayed at DevonNicole house while my younger niece was there for 6 months.

+ Read More
Colby Davis
8 months ago

Joe and I are keeping you guys in our prayers.

+ Read More
Kelly Lynn
8 months ago

Praying!!! He's a fighter! ❤️

+ Read More
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