My daughter Jayla is 7 yrs old and has been passing out for about 3 yrs now she had a heart Monitor implanted in her about 6 months ago and still couldn't figure out what was going on . Until June 21st where she passed out on me 3 times and was air med to women's and children's where the cardiologist finally told us that she had a very sick heart and would have to have a pacemaker for the rest of her life we were then sent to New Orleans Children's Hospital where they did the procedure and then were released 2 Days Later I had to bring her back because the site look like it was really swollen we then got released again and here today back at the hospital because she has an infection the cardiologists told me today that they would put it on antibiotics and we will be in the hospital for quite some time. Times are really hard financially physically mentally and emotionally but my baby girl is so brave.. due to staying in and out of the hospital and having to pay for gas food and other things to have to have we have had to borrow money and the income we do have had to be used to pay everyone back and now that we back in the hospital and not sure for how long we need a little help to get us out of the Financial hole we in .
She was diagnosed with sick sinus syndrome where her heart stops beating for 5 to 6 seconds at a time.
Now that today is July 20th we are back in the hospital because her little body is not taken the antibiotics well so the infection is still there and she's n pain please pray for my baby girl
Anyways Jayla got invited to go to camp for heart patients and is super excited about it . So with that being said we can't afford everything she needs to be able to go if anyone would care to donate to her to help her get there we would be greatly appreciative ....
Any little bit helps thanks in advance and good bless
She's needs a lot of diffent things so we need to raise about $400.00
This story hit home with me. I have a 16 year old daughter whom has been passing out for several years now and had to have heart surgery and have a pacemaker placed in December 2015. The morning she had to be at the hospital for surgery 30 minutes exactly before surgery she had a caridac seizure and then flat lined. They let us know it was a good thing we were there or we would not have her today. she continues to pass out and they are still trying to figure it out. She recently had an infection and cannot figure out where. We have been dealing with all this for four years now. I pray for your little girl,your family, your finances and the frustration you deal with too. as we struggle with it all as well. God is good and I have now left it all to him.
Poor girl, Angels are with you. Things went white like that for me as a child too. Hit my head very hard so many times. We never figured out why but I'm 50 now so either it was a miracle or just fainting spells. That's wild though. She's the only one that understands going white! Stay strong. She will be fine.
I know what you are going thru. My daughter has been doing the same thing for about 4 yrs know and I still don't have a answer and they tell me they can not find anything wrong with her. I have a lot of doctor bills that I can't afford and all doctors saying they can't find anything. I will pray for your daughter and your family.
Financially I can't help but we are at chnola going on month 4 with my baby. If you ever need anything feel free to message me were in Picu room 14
I also have sick sinus syndrome! I was diagnosed about 11years ago. I was passing out as well. My resting heart rate is 20 without a pacemaker. I'm 41 now and I promise as soon as you get that pacer going, you will feel so much better! I can still do everything anyone else can do. I'm a little heat sensitive (and I live in Texas yikes) but other than that,everything is good, and soon you will be too. Don't be scared, I promise. Feel free to look me up on Facebook if you have any questions that a real life person (not Doctor) can answer for you. Elisabeth Bernau is my name. Prayers!