Shane Camp Support

$9,300 of $30,000 goal

Raised by 193 people in 29 months
Rick Camp
on behalf of Sharon Camp
 WEST CHICAGO, IL
This is painful to say and even more embarrassing to ask. But ask I must, so here it is: My family is in need of assistance. My brother Shane, 16, has lost a severe amount of weight and has spent much of the last twelve weeks in the hospital as doctors try to figure out the cause of the weight loss, dangerously low blood pressure and severe nerve pain. In the last year, our dad and grandma (mom’s side) have passed away, so it has been a very tough time for our family, especially Shane, outside of his own health issues. With the hospital bills starting to roll in, my mom has been with Shane the entire time of his hospital stay and has not been able to work for a majority of the last twelve weeks, while also having to juggle the loss of her husband and mom. Without my dad’s insurance, which was job provided, the financial responsibilities for my family are so significant that staying in the only house Shane has ever known, may not be possible. I’m biased, naturally, but Shane is a much better person at 16 than I could have dreamed of being. He is grounded, willing to help anyone in need and has maintained a positive attitude amid all the adversity he has faced this past year. As a family, we are doing everything we can to help Shane get the care he needs and discover the underlying cause of his issues. However, without my dad around anymore, the fiscal aspect of this is daunting. I always think of Shane, not as the teenager that struggles to walk right now, but as the athlete that enjoys football, basketball, track and the work that comes with improving at those. Any help you could provide my brother and my family would be much appreciated.

-Rick Camp
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Hey everyone, I realized I hadn't updated in a while. The latest with Shane is that there is another diagnosis that fills in a lot of the gaps in symptoms that CRPS didn't account for.
Ehlers-Danlos Syndrome, Hypermobility Type is the other disease Shane is fighting. In vague terms, the tissue around his joints is not as strong so he has a much higher likelihood of dislocations. That hurts his ability to rehab and do any workout. It also causes chronic joint pain and more neuropathic pain.
Shane can't catch a break with this but he has stayed positive. I'm amazed at his outlook, I know I wouldn't be able to be as upbeat as he is.
We are currently looking into getting him into a specialist in Kansas to try and help his recovery. If you'd like to learn more about Ehlers-Danlos Syndrome and specifically the Hypermobility type, here are a couple links. Thanks again for all the support.

http://ehlers-danlos.com/what-is-eds/

http://ehlers-danlos.com/hypermobility/

Rick Camp
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Hey everyone, I just wanted to give an update on Shane. We finally got a diagnosis: Complex Regional Pain Syndrome, Type 2. Type 2 is much more severe and he has been inpatient at the Marian Joy in Wheaton working to try and get better. Right now it's looking like he will be in a wheel chair for the foreseeable future as he rehabs. According to the McGill Pain Index, this is one of the most painful diseases out there and Shane has the more severe type.
He continues to keep high spirits and is going to do whatever it takes to get back to school and walking again.
Again, for everyone in the family, I can't thank you all enough for the support you have shown. If you'd like to learn about CRPS, here's a link with some of the basics about the disease.

http://www.mayoclinic.org/diseases-conditions/complex-regional-pain-syndrome/basics/causes/con-20022844

Rick Camp
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Hey everyone, thank you so much for the continued support. Shane is at home now even though we don't have answers to the cause of his issues yet. He has been very diligent in doing what all the doctors have asked of him in terms of diet, physical therapy, occupational therapy, etc. without being inpatient.

My family is very grateful for the support everyone has shown and continues to show. Please continue to share the link.
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Thank you so much to everyone that has shared the page and been able to contribute financially. It means a lot to our family. I told Shane about the care and support that everyone has provided and he said, "wow, that's awesome." Thank you again and please feel free to keep sharing the page!
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$9,300 of $30,000 goal

Raised by 193 people in 29 months
Created June 28, 2016
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$50
Anonymous
22 months ago
PG
$50
Peter Ghandour
24 months ago

Stay strong kid! - Pete, Imma, Vianca & Ethan

$30
KT Maureen
26 months ago

Keep your chin up, always thinking of you! You are awesome Shane!

$50
Anonymous
27 months ago
$50
Anonymous
27 months ago
$15
Anonymous
28 months ago
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