Support for Beckett
Our sweet boy has been diagnosed with Stage 4 Ewings Sarcoma. What we thought four days ago was growing pains has turned our world upside down.
I will post our whole journey in a new thread but right now I just need your help and a lot of it. Beckett will be fighting what the doctors believe will be a year long battle to beat this and with that comes an unimaginable amount of medical care expense. Between chemo, radiation and surgery (all of which he will need), my family just can't do it on our own.
We are proud and hate asking for help, but we need it this time. A mother, (Kymmie Wyatt), a father (Roger Wyatt) and three sisters(Kristen, Tynker and Harper) all drowning in the unimaginable and the weight of the financial burden that is about to hit is just so heavy.
We have $80,000 as our goal and I hope that we can beat that just like Beckett is going to beat this cancer.
We have been aware for several days that Beckett's battle with cancer was not one he could beat here on this earth. He has been such an amazing example of strength fighting back pain and living in spite of what's been happening. We learned yesterday of more tumors in his brain. His time is coming to a close. He was awake and alert last night playing video games And cracking jokes. True Beckett. We ask your prayers as we sit beside him and love him and wait. He will fall asleep soon and not return, it will be painless and we thank God for that. Thank you to our village for walking through this time with us.
March 19th: Roger and Kymmie would like to update you all. Please keep the Wyatt family in your thoughts and prayers. They are such amazing parents and may God continue to bless them with peace and strength during this difficult time.
From Kymmie: "Our sweet boy is still with us and sleeping peacefully. He is tired and sleeping much more than he is awake. He cannot see much of anything anymore but his sweet spirit doesn't seem to be afraid. He knows what is to come. We had a nice talk about Heaven last night and we are all trying to assure him we love him but also let him know it's ok to go home. He told me he knows God will meet him in Heaven. He is such a strong boy it's amazing. His breathing is beginning to slow and I really believe it will be soon. We made some hand prints for family and we have all gotten in some cuddle time. Continued prayers for Beckett to be ready to go. I have a peace I cannot explain that he is ready that we will all be ok."
From Roger: "Words fail at these times. It's all the little things that you notice and remember. He and I are the only ones who really like peanut butter and honey sandwiches and I realized that I won't be making them for him any longer. Something so insignificant weeks ago is now profound. He is comfortable and we will make sure he stays that way. I know that my boy will, very soon, be free of that demon disease that is taking away his body and he will be dancing up a storm. We have today, and we may not have tomorrow with him, but he has an eternity of tomorrows very soon that are free of pain and suffering. I'm ready to let him go. I hope that he gets a million pugs to lick his face and make him smile when he gets there."
[editor's note: The family needs to be with their kids at this time and love on sweet Beckett. Should anyone have questions on updates, please direct them to Erin Brandenburg. Erin has also been posting updates on Facebook to keep our tribe updated. #TeamBeckett]
The next week included appointments for an EKG and echo. They check his heart every once in a while to make sure it’s ship shape. While we waited, Beck worked the waiting room socializing. He was "sooooo tired" when we got out of the car to come in.. LOL. We continued to pray the new drug to be started would keep his cancer at bay. Praying for our miracle that he would somehow become healed. He did get all his numbers checked and the results from all his heart tests. All his numbers looked great and his heart too.
Trips to the clinic have become ones not looked forward to. On March 7th we were blessed with a ride in a helicopter to clinic. Wow wow wow!! What a ride to Clinic!!! Thank you so much to the Y and Heloair and Whit our pilot!! And thank you to all our wonderful friends who came out to support Beck on his first helicopter flight! I was just overwhelmed (as usual) by how much love and kindness people have for Beck and us. I admit that morning made me tear up to see Beck get to have such a cool adventure. There were photographers and reporters of all kinds there. Here are some links to the news coverage… needless to say, we are again overwhelmed. Beckett told me he was enjoying his celebrity status, lol. Seriously though, thank you to everyone who was a part of this!!
I noticed that Beck’s hair is now growing. I've missed that hair. On the good days, it's sometimes hard to believe he still has cancer but I am just so grateful for all the good days we've had. Every moment is a blessing!
On March 10th, We started Beck’s new medicine. We prayed he would have no side effects and that it would slow down the cancer like it's supposed to do until we make another plan. I was so stressed about him taking a pill since it can't be ground up or go through his gtube, but he took it like he had been swallowing pills forever! He is such a good little guy and a trooper for all of this. As I was showing him the Star Wars shirts Jennifer Lynn had made for us and telling him about a high school girl that was working on a special adventure for him, he looked at me all serious and said, "See mom I told you. I'm reliable with the ladies". That's a line from a song in Hamilton he loves to sing. He is so funny.
Beck did well for his first day of the new meds. He was tired but that could have been anything. He needed a little checkup for some jaw pain he had been having but it all looked clear. Thank you to our awesome dentist Daniel Tiesworth for taking time with us. :).
Also, a former classmate has a big sister who goes to Midlothian High School. This incredible girl went to her principal and told him about Beckett and asked for permission to bring him to the Prom. So, on March 11th, she came by with her prom-posal to ask Beck to go. He of course said "yes" as music and dancing is his thing. It was just the sweetest! Thank you to her mother Jennifer Lynn for raising such a great kid! And thank you to the whole family for joining our village. It's heartwarming to see Beckett get to do things like this when I worry for his future. It makes the worry easier.
Here’s the news clip from this: http://wric.com/2017/03/12/boy-battling-cancer-gets-asked-to-high-school-prom/
Make a Wish was coordinating a trip to Puerto Rico for us, but on March 14th, everything turned on a dime. Beck wasn’t feeling good for a couple of days and we took him in for a final checkup before leaving. They did an X-ray of his lungs and found out he had fluid building up that needed to be drained to make him more comfortable. It's hard and it sucks that he has to be a slave to this terrible disease. My heart breaks when I think of the war inside his little body. But he did make a point to tell me out of the blue, "Mom I don't want to give up". My voice cracked a little but I didn't cry in front of him. So now the trip is off and we were admitting for procedures and scans. He was ok with everything because he just wants to feel better. He really is the strongest kid there is. Make a Wish was wonderful about everything.
Beck had scans and was scheduled for surgery to drain his lungs of the fluid that had built up. They thought the fluids would come back, but were not sure how long before it would happen. He was very uncomfortable with leg pains and migraines which are likely side effects of the new drug. They were working on controlling his pain but nothing seemed to last long enough. We thought we had found a new study drug but then found out Beck doesn't qualify. It's a very specific targeted drug and he doesn't have the right genetic makeup for it. It felt like a kick in the gut. So many prayers are being said for Beck but I still see doors closing and I feel powerless to help him. He was screaming and crying in pain and I told him I was so sorry as I held him and I cried with him. Then he said, "No mom! You stop. You did nothing wrong. We can push through this together. You have to be strong". I wish I could be as strong as he needs me to be. I wish we could just go back in time to when he was just a normal boy and cancer was something that happened to other people we didn't know.
Beck did well for the surgery. He was a trooper telling the doctors and nurses stories as he was drifting off to sleep. He was sweet telling me he loved me and not to cry when he was hurting. He also told me he wants to play laser tag but he won't exactly play fair, lol. He even teased me about putting on makeup when he was about to go for surgery. "Priorities! mom! priorities!" He always has that sense of humor even in the midst of the hard times. He has been such a good boy.
As I have said many times THANK YOU to all those who have stood with us during this journey. Thank you being there to celebrate and to cry, to encourage and support and for just showing up even when you have no idea what to say. We are blessed!
To update: Mid-February brought another round of radiation treatment. He was a bundle of energy trying to run me over twice in his wheelchair! He saw our buddy Baby Zachary in VCU waiting for surgery so we had to stop and pray for him and his hall mates right then. He is such a loving little guy especially for smaller kids. We had lots of appointments while also getting ready for a family trip to Disney the following week. The X-rays done before we left of his lungs didn't show much growth of the tumors there. And the radiation was to be shrinking the one on his spine. He remained one tough little guy. Even limping he was still running around with his friends.
The next week brought our Disney trip. Roger drove with the girls and Beck and I flew. We started a new med for the first time on the flight and before the plane landed he was feeling dizzy and a little confused. He quickly became more disoriented and was ambulanced to the nearest children’s hospital when we landed. Things looked very grim for a while as he was mostly unresponsive and incoherent. I was at the hospital with his bestie Ava's dad who just happened to be on our same flight. He stayed with us until he knew Beck was out of the woods. When we were transferred to ICU Beck was trending down in every way possible and we were preparing to lose him. Roger was at the hotel with the girls and came immediately. We prayed over Beckett. And he literally began to come around. He talked to his Ava and to his sister and knew us all again and just completely turned around. The new med was quickly ruled out due to him being way to sensitive to it. He was basically able to "sleep it off" and we were able to hit Disney the next day. Thank you to all the prayer chains and to Jason Brandenburg for being with us and Jennifer Lewis Keller for coming by with those hugs. Thank you to Aunt Kary and Uncle Dan for taking care of all the girls at the hotel.
By the next morning I woke up around 5:30 to find Beck sitting with his iPad and the tv controls searching google earth for Disney. Best sight ever. He was feeling so good. We were able to get Beck to the hotel a little before lunch and in the afternoon we visited Epcot and enjoyed a nice dinner at Rose & Crown. We obtained a scooter for Beck to drive and he rocked it through the parks! We had a great day and all the kids were worn to a frazzle by the end and Beck had some anxiety being a little overtired.
During our stay, we also enjoyed Magic Kingdom, Animal Kingdom and Hollywood Studios and made sure to make time for plenty of rest in between. We went with our friends the Green’s and renamed ourselves the Wyeen family… Wyatt’s plus Green’s. The kids loved it because it sounded funny. We rode lots of rides and enjoyed great restaurants. Turns out Beck loves Goofy and was excited when we got to see him at a dinner. Beck also danced with some dancers in the street there and it was too cute and funny and Harper and Faith did a parade with a bunch of characters. The day at Animal Kingdom was a great, great day!!! We felt like we got the star treatment at Hollywood Studios. Beck and all of us were escorted to meet Darth and Kylo Ren, Chewbacca and a bunch of storm troopers. All the kids did Jedi academy and later on we met up with Orange County Sheriffs department and Beck got to sit in a police car and use their loud speaker to call out orders to us. It was hilarious.
While at Disney, I somehow managed to lose my license. So when it was time to leave, we were blessed to be chauffeured from our hotel to the airport and once there met up with three Orlando police officers. I had filled out a police report and Orlando PD got everything cleared with TSA. The three amazing officers stayed with Beck and I the whole time escorting us through the crowds to the front of the line for having our things looked at and they had to do a pat down since I didn't have a license. TSA was great about it and very helpful. Then we went to our gate and one of the officers went to get me Starbucks (which was incredibly sweet and awesome!). The police stayed and chatted and laughed with us and even took Beck on board right to his seat. We met many law enforcement officers this week and I have to say what a huge blessing these men and women were and how grateful I am for how the serve and protect us all! It was an amazing week for sure!!! Beck and I arrived home after an uneventful flight to a perfectly clean and organized house thanks to some wonderful friends. It was an incredible trip and the following weekend we had Kristen's wedding and family in town. Thank you to everyone who has made the week at Disney amazing for us!
If you'd like to see the news story on the Jeep Parade, you can view it here: http://wric.com/2017/02/11/jeep-clubbers-surprise-midlothian-boy-battling-cancer/
And if you'd like to see the news article recently written by the Richmond Times Dispatch, you can find it here: http://www.richmond.com/life/health/article_e1436748-1931-5bf9-8dc8-0ed752e7fc28.html#.WJ-bgSag5FA.facebook
I do not know you or your family, however I am Paige Nagle's cousin. I have shared this site with my family and friends on fb. I am asking everyone for their prayers or any kind of donation that they might be able to afford, if it's only their love and faith. I Know that God has this. He is the Ultimate Healer. I pray this prayer with you right now. Oh Most Gracious Father God, I come before you right now first to thank you for our many blessings. You are the One and Only God. The Almighty King of Kings. We put all of our faith and trust in your hands today as we so graciously ask for your Healing Powers. Please put your hands on Little Beckett right now Dear God and remove any and all signs of this horrible illness from his body. We are asking for a complete healing that Only your Powerful and Holy Hands can do Father. You tell us that all we must do is but Ask in Complete Faith and you will Answer Our Prayers. We come before you in Complete Faith right now Father. We lay our hands upon this Child, Your Child that you let us have to Love as Ours. Jesus,We Believe that You were born of the Virgin Mary, You were Beaten and Died on the Cross to forgive us of our sins. You were Buried in a Tomb and Arose in Three Days and You continue to Live in Heaven to prepare our home. All to give us Eternal Life with you. We Believe that Only You can Touch Beckett and Heal Him. Give his Family renewed Faith where it may waiver during this very trying time. Take the love we so graciously offer them and let it get them through their difficulties. Let them know in their hearts that we are praying without ceasing. In Jesus name, Amen! I am sending all of my Live and Prayers to your family. Please tell Beckett that he has more people that love him than he can count. Prayers Up!!!
I am just amazed at the support for my sweet boy. He knows he is loved because of all the attention and kindness he has been given over the past few days. I cannot say enough, thank you from the depths of my heart for making the financial side of this awful disease something I don't have to worry over.
So I said yesterday I would post the story of Beckett's journey so here we are. To me, it's easiest to see how fast it's gone as a timeline so I will do that: Two weeks ago: Beckett started complaining about pain in his knee. His knee looked perfectly fine so we all thought it was just growing pains. Saturday: Beck had his Boy Scout end of the year cookout. He is usually so excited to run around with all of his friends you can't get him to chill. But this time, he only wanted to sit on the sidelines. He said his knee just hurt him too bad to run around. This is when my parents realized how bad he was really hurting and they decided to take him to the doctor on Monday. Monday: His regular doctor went to examine him and found a large mass (about the size of a tennis ball) protruding from his right hip. Beckett is super modest so there was no chance really for my parents to see it before this. And, I don't know how, but he said he didn't notice it. An x-ray showed that this mass was solid and not fluid so he was referred to get an MRI the next morning. Tuesday: He went in in the morning to get his MRI and was very nervous about getting the IV but he was a trooper. The MRI and blood work confirmed our worst fears, cancer. The doctor's best guess is Ewing's Sarcoma, a fast growing cancer that is most often seen in children. He was sent home with crutches and a lot of pain medicine. Every day that the tumor is growing, it pushes more and more on his nerve, sending the pain down his leg. Wednesday morning: Beckett got his CT scan to see and big sister was on a plane rushing to be here. He was in really good spirits! Later in the afternoon, it was recommended that we take him in to the ER at VCU just to get all of his tests and information in the system so there is no wasted time with administrative stuff. Wednesday night: This part still hasn't hit us. We learned last night that Beckett's cancer is in stage 4 has spread throughout his body. His lungs, lymph nodes, and spine all have growths. We have two of the best doctors in the state and one of them told us, "This cancer responds extraordinarily well to treatment. I have seen kids in far worse shape than he is walk away from this." Beckett begins his treatment next week with chemo. The doctors are guessing that his treatment will take a year so he will be in and out of the hospital for that time. So all we can do is hope that Beckett remains the fighter he has always been and that we can all be the strength he needs when he's low.
Kymmie and Roger and family, You are such an inspiration to me. Your love for Beckett and your strength is truly amazing. This little one is so very lucky to have you as his parents and you are lucky to have him. It is a perfect match. My thoughts and prayers are with you❤. Know there are so many who are praying with you today. Sincerely, Nancy
Everyone, first off, to say I'm blown away by your generosity is an understatement of the highest order. The kindness of so many people who I have never met is just left me humbled and so grateful. Beck had a good day today and as we await the pathology on the biopsy tissue we are learning more about his treatment plan (if the pathology comes back the way they expect it). At best, we are looking at a year - 36 weeks of chemo at the minimum, 6-8 weeks of radiation, and then surgeries. This schedule can be extended if it takes his counts to recover so he can go for the next treatment. He will be in the hospital for 2 days, then home for the rest of the week and the next, then in the hospital for 5 days and then home for a week - that will be repeated for each of 3 phases. In between he will be going to the clinic for tests and checkups. We are going to sign him up for a clinical trial of an additional drug that is an immunotherapy drug. It will extend his treatment by 6 months, but those last 6 months are just maintenance doses and he can go to school during that time. Again, thank you for your generosity, kindness, and support. Kymmie and I are forever in your debt.
Thinking about you and your family as you rally around your young son to beat this! I watched my young niece battle an aggressive form of cancer several years ago. It uprooted their family's world, but now she's 6 years cancer free and headed into high-school next year. Be strong, keep fighting!
We are praying for you.
May the Good Lord surround this precious child, protect him from pain and sorrow, give him all the strength and courage this will take, wrap your healing arms around Lord, heal him with your miraculous hands and powerful love, as we all know you are the DOCTOR of all doctors, guide the doctors, help them find the best cure, and please also wrap your arms around the family as they go through this nightmare of this precious child, help them understand, be with them, every step of the way, Lord we know that you perform miracles and I know that this one will not go unnoticed, I ask that, those of you that can contribute please do, and if not PRAYERS ARE JUST AS GOOD AS A CONTRIBUTION, as I don't know this family, but I am a friend of a family that is, Lord, I know you will take care of each and everyone of these family members, In your name I pray Amen~~