Thank you and God bless.
Posted by Dan Pietrowski
Once again, the Pietrowski Family would like to thank you for the outpouring of love and support for Hunter. Shortly after the last update here in October, the decision to deny stem cells treatment was revoked and Hunter has received his stem cell therapy as recommended by his doctors. There was a rush of news on social media and the local news station where Hunter lives provided great coverage. We are so thankful for all the support which contributed to this vital change in treatment.
The last few months have been an emotional roller coaster. Hunter has been in and out of the hospital for chemotherapy, fevers, infections and other complications common from chemotherapy. He spent several holidays in the hospital including: Halloween, Thanksgiving and Christmas. After each chemotherapy session, Hunter has become Neutropenic (a combination of low white blood cell count) and has had to be readmitted during these times. And through all of this Hunter has kept up his beautiful smile and positive attitude. He truly is a remarkable child. He is a warrior.
There are many untold parts of a child with cancer. These children battling cancer and cancer treatment. The toll it takes on the parents and family members of these children is often overlooked. While patient care is the utmost importance, we also need to acknowledge that the parents of these children play a vital role in their children's treatment (and this role is a trying one to say the least). Once they are home from chemo, parents need to be on constant alert for any sign of fever or infection and be ready to head back to the hospital at a moment's notice. Hospital rooms are often not conducive to both parents staying in the room with their children (tiny rooms, lack of cots or beds and/or not enough room for beds or air mattresses in the rooms) These parents, cancer parents put on a brave face and a smile for their children. Hunter's parents have, (as their sister in law, I have listened on the sidelines) embraced these challenges with grace and strength that I am in awe of. They continue to monitor his health, ask questions and advocate for Hunter-- all while juggling their other three children, work and severe lack of sleep. They work to keep all of us updated with progress and setbacks on social media. They advocate and work to bring awareness to childhood cancer research. They have created a network of New England Patriots Fans through social media that have provided support for Hunter--always looking for ways to bring him happiness. Truly, Hunter's parents are heroes.
Hunter's last scan showed no new cancer growth. This was done before Christmas. He had also gained significant weight before his December chemo session (surprising doctors) which allowed his doctors to increase his chemo dosage.
Hunter is scheduled for a final chemotherapy session this coming week, January 12th and will stay until the 18th for treatment. In February he will have more scans to check for any possible new cancer growth. We continue our prayers that these scans will be clear. Moving forward if his scans in Feb are clear, he will be placed on an intensive follow up schedule for 5 years.
Because of the network through Patriots fans, Hunter has had a special video message from Rob Gronkowski himself. Hunter and his family are also looking forward to a trip sponsored by the Make A Wish Foundation which is scheduled for 2018. These uplifting moments of support have brought excitement and joy to Hunter and his family during this extremely challenging time.
If you would like more regular updates on Hunter's journey, please visit his Facebook page. You can even see his special message from Gronk and all the news coverage going into his last chemo session.
Thank you again for your support, prayers and thoughts.
The Pietrowski Family
On behalf of Hunter's family we would like to extend our gratitude for the amazing support, generosity, prayers and love from all over. This is a trying time, to say the least, but the outpouring of support brings comfort to our family.
Hunter completed radiation treatment at the end of September and had a few weeks off. He was able to travel up to MA to visit with family and friends and even caught a Pat's game at Foxboro Stadium with his parents, siblings and grandparents. Hunter was able to spend quality time with friends, cousins, grandparents, aunts and uncles. It was a wonderful time to reconnect with family and friends who hadn't been together since his family had moved to NC.
In preparation for chemotherapy, Hunter had a port placed in his chest to make medication injections more accessible.
On Oct. 19, Hunter was admitted to Duke Hospital to start aggressive chemotherapy. Part of his treatment needs to include stem cell therapy to help his progress and recovery from chemo. While there has been a denial from NC medicaid to cover the cost of the stem cell treatment our family is hopeful that this decision will be revoked and Hunter will be able to receive the proper treatment he needs. Please visit his facebook page for updates on his progress.
Thank you again for all your prayers, love, support and generosity. Please know that your support is very much appreciated by Hunter and his family.
The Pietrowski Family
Posted by Dan Pietrowski
To give you all an update my son was diagnosed with a Medulloblastoma which is a malignant brain tumor. It has spread to his spinal cord. To get him the best care possible and best chance we have to leave our home in NC to go to St. Judes hospital in Memphis,TN. Unfortunately they can't house my entire family and I have to spend the next 7 weeks away from my other 3 children while Hunter endures radiation therapy. He will have a 5 week break and then will have 4 months of straight chemo where he can't come home. This is going to be torture on my family and we have no idea how we're going to deal with this. Hoping God guides us thru.
Our family wants to thank each and every one of you donating, praying, sharing and supporting our family through this very hard time. We are going to take it one day at a time. It seems to be easier that way since its all happened so fast. Hunter still has the drainage tube in his head for his hydrocephalus (fluid in brain) and will for the next couple days. He will remain in ICU until the drain is removed and transfer to progressive care after where we will work with the wonderful doctors here and obtain his chemotherapy and radiation information. The MRI today confirmed NO new tumors were located and a very minimal amount is left in his cerebellum. In about 2 weeks he will have a spinal tap to make sure there are no cancer cells in the spinal fluid. We will keep you all updated during his treatment. May God bless you all. With love and hope, The Pietrowski Family.
You all made my day! As I sat here this morning opening my email, I came across these generous donations. I can’t tell you how much we appreciate your support for Hunter and his hard journey beating cancer and supporting our family through this. Our goal is to make sure that while Hunter undergoes his extensive treatments he never feels the pressures his treatment will finacially put on the family and he can focus on getting better. A child should never have to go through this but having you all behind us is amazing. Your generous donations will go a long way to helping us with gas, parking, meals during treatment, entertainment for Hunter during his treatment. In fact, with your donations, daddy can be by Hunter's side and not worry about lost income. Thank you! You have made a real difference in our lives. ♥
God Bless Hunter, I will keep him in my prayers always. Wishing you all the best with Hunter's recovery. Thank you to CBS for airing Hunter's story tonight and for the information that got me to this page. Go Hunter, Go Gronk, Go Pats! OX