HELP Jess's (Ehlers Danlos type 6 )

$126,313 of $60,000 goal

Raised by 3,157 people in 24 months



Hello My name is Jessica I’m 23 years old I I have a rare disease called Ehlers Danlos syndrome type 6 with  cardiovascular issues interlocking with EDS, autism , moderate intellectual disability , scoliosis , kyphosis, lordosis , intestinal failure  and many more diagnoses 34 to be exact , but I need your help see with my rare condition EDS it causes a lot of medical issues which needs me to have surgeries , specialized  medications and treatments  there is no cure but Doctors can make my life comfortable but to do that I need to travel to the only clinic that knows enough knowledge about my disease in Baltimore USA to be able to treat me appropriately as doctors in Australia do not know much about type 6 EDS and simply can not help me this is my only option left to live a comfortable life as I have tried many treatments here in Australia and none have worked .  I will also need equipment such as wheelchair van, hoist as my condition will continue to detariate as I get older and my life expectancy is about 40 years old. my mum is a single parent of 2 including myself and it is hard financially for us so please if you can help me out I would be forever grateful. thank you for taking the time to read this message.

From Jessica
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https://youtu.be/lUzJF_QO4sU
hi guys SBS are doing a follow up story / mini doc there is tons more exciting news coming up in the extremely near future so please stay tuned make sure your subscribed to my youtube channel and have the post notifications turned on so you don't miss an update or a video.
https://www.youtube.com/channel/UC-5l...
thanks for watching :)
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hi all just a update i have done a Q and A video on my youtube channel if you would like to check it out here is my youtube link https://www.youtube.com/channel/UC-5lFmhEgpIigc0yttxSXwA
please subscribe and turn on post notifications so you don't miss a video . :)
or you can click this link to take you directly to the video : https://youtu.be/Bt92sYBj-wg
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hi everyone i am doing updates on my youtube channel you can follow me here https://www.youtube.com/channel/UC-5lFmhEgpIigc0yttxSXwA?view_as=subscriber
make sure you subscribe and turn on post notifications on so you don't miss a video there are some great new videos coming up for you all and some news to go along with it :)
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hi everyone i just wanted to let everyone know I'm still in progress of send each of you a personal thank you i have done roughly 2600 replies still got roughly 1700 left doing my best don't worry i haven't forgot you if you haven't received a thank you yet i will get to you :)
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$126,313 of $60,000 goal

Raised by 3,157 people in 24 months
Created May 28, 2016
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$20
Anonymous
13 days ago
$20
Anonymous
13 days ago
MS
$20
Marion Semmler
19 days ago

You touched my heart. All the best Jess.

TC
$20
Tim & Alanna Clark
1 month ago

Best of luck in the US

$30
Anonymous
1 month ago
KR
$20
Karen Ratcliff
1 month ago

Good luck in Baltimore, Jess!

$50
Carol MacArthur
1 month ago

Good Luck Jess, your doing a geat job Michelle. All the best to you both

$30
Anonymous
1 month ago
BL
$10
Bella Leslie
2 months ago

All the best Jess x

AJ
$10
Alexandra Jones-Fernandez
2 months ago

All the best Jess , saw you on the tv series and feel for you . I wish you all the best stay strong ! Xx

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