HELP Jess's (Ehlers Danlos type 6 )
Hello My name is Jessica I’m 23 years old I I have a rare disease called Ehlers Danlos syndrome type 6 with cardiovascular issues interlocking with EDS, autism , moderate intellectual disability , scoliosis , kyphosis, lordosis , intestinal failure and many more diagnoses 34 to be exact , but I need your help see with my rare condition EDS it causes a lot of medical issues which needs me to have surgeries , specialized medications and treatments there is no cure but Doctors can make my life comfortable but to do that I need to travel to the only clinic that knows enough knowledge about my disease in Baltimore USA to be able to treat me appropriately as doctors in Australia do not know much about type 6 EDS and simply can not help me this is my only option left to live a comfortable life as I have tried many treatments here in Australia and none have worked . I will also need equipment such as wheelchair van, hoist as my condition will continue to detariate as I get older and my life expectancy is about 40 years old. my mum is a single parent of 2 including myself and it is hard financially for us so please if you can help me out I would be forever grateful. thank you for taking the time to read this message.
hi everyone i just wanted to let everyone know I'm still in progress of send each of you a personal thank you i have done roughly 2600 replies still got roughly 1700 left doing my best don't worry i haven't forgot you if you haven't received a thank you yet i will get to you :)
hi all just wanted to share with you that someone in WA wanted me to paint pumpkin for them i have started my painting here are a few pics of the current pumpkin painting I'm doing for the person in WA
hello all just an update i have done a youtube video: https://youtu.be/5oWqzY-PLME i have edited down these videos with permission from SBS Australia i only have the film of me and my mum i have cut out all other people from the show due to privacy and respect for the other people. i will be uploading episode 06 very soon and soon after i will be doing a Q&A video to answer some questions and clear the air .please subscribe and like this video and remember to comment .
thank you .
thank you .