HELP Jess's (Ehlers Danlos type 6 )

$126,778 of $60,000 goal

Raised by 3,171 people in 27 months

Hello My name is Jessica I’m 23 years old I I have a rare disease called Ehlers Danlos syndrome type 6 with  cardiovascular issues interlocking with EDS, autism , moderate intellectual disability , scoliosis , kyphosis, lordosis , intestinal failure  and many more diagnoses 34 to be exact , but I need your help see with my rare condition EDS it causes a lot of medical issues which needs me to have surgeries , specialized  medications and treatments  there is no cure but Doctors can make my life comfortable but to do that I need to travel to the only clinic that knows enough knowledge about my disease in Baltimore USA to be able to treat me appropriately as doctors in Australia do not know much about type 6 EDS and simply can not help me this is my only option left to live a comfortable life as I have tried many treatments here in Australia and none have worked .  I will also need equipment such as wheelchair van, hoist as my condition will continue to detariate as I get older and my life expectancy is about 40 years old. my mum is a single parent of 2 including myself and it is hard financially for us so please if you can help me out I would be forever grateful. thank you for taking the time to read this message.

From Jessica
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hey everybody thanks for watching and supporting me and my videos today i explain me and palliative care.
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here is a photo of me when i had surgery to get a feeding tube placed
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hey everybody thanks for watching and supporting me and my videos today i explain my new extra diagnosis and i explain how they affect me .
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here is the new update video day 3 of the USA medical trip for jess
its so hard for me to do because I'm not doing well in my health more videos coming soon.
if your new here please subscribe and turn on post notifications so you don't miss a video. thanks for watching and support :)
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$126,778 of $60,000 goal

Raised by 3,171 people in 27 months
Created May 28, 2016
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Dougie Ryder
1 day ago

Good luck mate

Michelle Flanagan
6 days ago

I just watched your video, you are incredibly strong and I although my donation is small I hope in some way it can make your life a just a little bit better. All the best to you and your Mum :) xoxo

Sarah Jane
23 days ago

Jess, your special soul and your amazing courage have touched so many. You and your Mum inspire all Australians to be better human beings. If only we could all leave a legacy as important and enduring as yours. Thank you for sharing your story. We love you xox

Tim Plumbe
1 month ago

Hi Jess, I hope you and your Mum get some reprieve from the difficult time you are going through. All the best .

Kirra Masters
1 month ago

Watched your latest video sorry to hear the sad news. I hope you get some relief soon. Thoughts and prayers xo

1 month ago

Good luck Jess you are a beautiful girl

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