Help For Momoko's Surgery!
Donation protected
Thanks for Visiting Go Fund Me for Momoko’s medical funding .
This site is made by Momoko's father "Emmanuel" and mother "Kiyomi".
(You can see the Japanese message is at the end.)
日本語でのメッセージは英語文の終わりにあります。(このページをそのままスクロールして下さい。)
『ももちゃんを救う会』 が皆様のお陰で正式に設立されました。今後ともよろしくお願い申し上げます。
This page is to assist her surgery.
Please help us to save our 4- year old daughter, Momoko who is currently fighting for life. I'm a father of Momoko. I created this account to help her with the surgery and surgery-related expenses. We would deeply appreciate if you could help her.
Here is a letter from Momoko's mother "Kiyomi".
***********************************************************
Hello everyone, I’m Momoko’s mother.
<Please watch the video I made for this site!>
Thank you for visiting this medical crowd-funding 。page and taking the time to read this. My daughter suffers from Grade III to IV Subglottic Stenosis, having 95% of her tracheal (windpipe) pathway closed. She has overcome many crises that threatened her life, and each time, I was terribly afraid of losing her.
We live in Japan now. I thought that in this country, it would be possible for my daughter to undergo the surgery she needs for recovery. Unfortunately, I was told by her doctor it was not the case and I had to give up any hope.
It also means that I have to be always afraid of seeing her leaving me forever. Anytime, the tube she has in her throat may fall out and cause her breath to stop.
Moreover, she will never be able to speak if she is not operated as needed.
As a mother, I cannot endure such a terrible fate!
In Japan, there are no hospitals and doctors with the technical skills and experience required for a successful operation.
We would not have been in the need for donations if the operation had been possible here in Japan.
However, after some search, mainly on the Internet, I found that the only hospital in the world which can handle the required surgery is in Lausanne, Switzerland.
I finally decided to take her to The Lausanne University Hospital.
As you might imagine, the operation is extremely expensive. In addition, there are the travel costs, and other expenses related to the surgery (with including the fee for Gofundme).
Those are the reasons that led me to ask for help through this funding.
The collecting donations for private reason is very difficult. Actually, there's no system and crawdfunding site for danation base in Japan. So it's true that private activity of collecting donation in Japan is so hard, and it's more difficult for the person who especially doesn't have any organization or group which support mainly. Honestly, it's difficult for me to stand on the street with my sick little child for asking donation or knock the door at each companies.
I need to stay with her 24 hours because of her desease, so using this crowdfunding site for helping her is the only way that I can do now.
My daughter and I appreciate you from the bottom of our hearts for your prayers and gracious donations.
If you have any question, please email to me.
Please click my email on top of this site.
Homepage： 『ももちゃんを救う会』 Official home page ("Help For Momoko's Surgery! " is the private homepage by Momoko's mother, and it's also available to see.)
－ Here is the detail of my daughter’s story －
Momoko was born in 2012. Unfortunately she stayed in the Neonatal Intensive Care Unit (NICU) for 3 weeks due to her SpO2 not being stable. She stayed in an incubator without an artificial respirator, and afterwards, I was finally allowed to bring her home.
However, her condition seemed languish day by day a few days after she left the hospital. One day, I noticed she sometimes stopped breathing. I rushed back to the hospital, and she went into the artificial respirator on the same day.
At first, the diagnosis was that a virus was attacking my daughter, and after some treatment she did get a little better. Then the artificial respirator tube was taken away.
However her condition wasn’t stable and it even got worse little by little. One day, while being in my arms crying, she stopped breathing and became lifeless. Even now, I feel scared when I remember that moment. She regained consciousness after a heart massage. I was forced to go out the room soon after the doctors came in, and waited for many hours without being told her condition. I didn’t know whether she was alive or not until I was allowed to enter the room, and noticed she regained consciousness.
I kept crying in the hall during that time.
When I was allowed to enter the room, she was sitting on a towel tainted with blood with a tired face.
The doctors told me that they had difficulty to insert the artificial respirator, so it had to be forced in.
When I saw her finally resting in the respirator, I thought back on the day she was born. She was big & beautiful, and I could hear her crying. But now she had lost so much weight, and I couldn’t hear her voice.
I couldn’t sleep at all almost one month since then. I was scared of losing her while I slept.
The hospital was a public hospital, but she was transferred to the university hospital of our city after that.I was told in the evening that she had to undergo a tracheotomy surgery soon after we arrived there by ambulance.
I was almost in a panic because, for me, it was very difficult to decide alone and quickly to have her undergo the operation. However, I had no choice because the doctor told me my daughter would die without the surgery....
We stayed at the University Hospital for 5months. After we came back home, she had to live with an oxygen generator and a SPO2 monitor for six months.
There were emergency situations when the tube fell out, and she stopped breathing and lost consciousness in front of me. Sometimes the amount of blood loss through tracheostomy was too much for me to handle. I kept crying. I was just afraid of losing her.
She always has been under the life-threatening condition because once her tube falls out, she becomes unable to breathe. So I have to be with her 24hours a day, and I need to check her breath all the time when she is sleeping.
I’m always scared of not noticing her breathing has stopped during my sleep. So naturally, I wake up many times during the night.
So I started discussing with her doctor at the University Hospital since she lost her consciousness when her tube fell out.
My baby girl was one and a half years old at that time. The doctor told that they would do the operation only when she reaches the age of two.
The doctor recommended using a ‘T-Tube’ as a stent to open up the narrow section of the trachea, but it would take at least 2 years for the skin around the tube to form plus additional time to close the tracheostomy. Also he told he was not sure if that surgery would be successful.
I didn’t feel it was the best solution when I heard of it, so I started doing my own research in hope of finding an alternative solution. I finally found a Japanese doctor who wrote a report about pediatric airway stenosis. At the time, he was working in a hospital in Switzerland ,where we would go, and he worked with a very famous doctor who is considered as the best specialist of pediatric airway stenosis in the world.
I succeeded in contacting him, and he agreed to do test on my baby girl. He was so kind, and came to Japan to help the test. I learned many great things about him. Using the Cotton-Meyer grading system, he diagnosed that my baby girl had ‘Grade III to IV Subglottic Stenosis. This means that her stenosis was very severe, and the surgery method to be used depends on that condition.
The doctor told me that the ‘T-Tube’ operation cannot save her ailment, but the best surgery would be based on ‘Partial Cricotracheal Resection’ (PCTR). Unfortunately no hospital in Japan can perform this surgery. The ‘LT-Mold’ stent used in PCTR is limited to a few experienced centres in Europe, but cannot get out to Japan. My daughter’s doctor confirmed that no hospital in Japan had enough experience to perform a PCTR, and he said “I’m very sorry, but you need to give up”.
However, I did not give up and kept looking for the right treatment.
Some months passed, and in my search for more information, I contacted a doctor who worked at Japan’s largest Children’s Hospital. He told me that he saw a medical report about PCTR which was performed at a hospital in Japan once. I took my daughter to that hospital and she had a test there. However, the outcome was not what I expected. The doctor told me that the surgery had a high risk of failure, and that the rate of success of decannulation (removing the tube when it’s no longer required) was also very low. Moreover, he told me he had no experience in providing that surgery to children. He had only operated a small number of adults who had had many other unsuccessful surgeries at other hospitals. Finally, I was told that I should lower my expectations for seeing my daughter properly use her vocal cords. Her voice would be very weak and it would be very difficult for her to speak normally. I was also reminded that no hospital in Japan had the experience to perform the surgery. I realized that there was no hope in Japan. I was totally dejected, and deflated of hope for my daughter’s future.
I am not the type of person who gives up though. I love my daughter, and I don’t want her to suffer anymore, so I began to think “What if I was to go to Switzerland, and have the operation performed there?” I contacted the hospital that could perform the surgery in Switzerland, which was the same one where the Japanese doctor who worked in Switzerland had been in before (but now had transferred elsewhere). I was also told that some other hospitals in the world conducted this surgery by the doctor who worked in this hospital when we met. Then I knew this hospital is the only one and the best. I sent the medical data of my daughter’s condition to ‘Lausanne University Hospital’, and found there’s a doctor who had a lot of experience with Subglottic Stenosis treatment! And I was told that I don’t need to worry about my daughter’s voice! Hope was back to me!
Actually, Lausanne University Hospital is the best hospital for this disease especially for children with severe subglottic stenosis.
***********************************************************
So now you know the story of my daughter’s condition, but here’s where I need your help.
Please donate to my daughter’s medical crowd-funding campaign. I will keep this page updated with all the latest events, and if you need to contact me or if you have questions, please send an email to me.
The money collected will only be going towards the cost of the operation and expenses relating to the surgery.
I thank you so much for reading about my daughter’s story, and I implore you to spread this information to others who would be so kind and willing to donate towards this risky important surgery.
Again, Please share to as many people as you know.
***********************************************************
日本の皆様へ
このサイトを訪問頂き、ありがとうございます。
娘は生後２か月の時、声門下腔狭窄症となり、気管切開をしました。２度に渡るセカンドオピニオンの結果、手術が非常に困難な症例で日本では手術が不可能だと言われました。探し続けた結果、スイスのローザンヌ大学病院で手術可能だとわかりました。しかし、手術費が高額なため、このサイトで寄付を募ることにしました。
娘の病気の為、２４時間付添いが必要な上、正直子供を連れての街頭募金活動も出来ませんし、個別に一軒ずつお願いをして歩くのも現実問題困難です。
今、出来ることは、この様なサイトの力を借りて募金活動をすることだけです。
ここへ至る過程は決して易しいものではありませんでした。しかし、子供の命がかかっているため、あきらめずに頑張り続けております。もし、ご理解を賜ることができましたら、どうか、ご協力をお願い申し上げます。
疑問点などございまいたら、どうぞご遠慮なく、メールにて日本語でお尋ねください。
（サイト左上の✉マークより入れます）
１人でも多くの方にこのことをシェアしていただければ、幸いです。
寄付をして頂く場合は、ページの上の右側にある、 "Donate Now" を、フェイスブックでのシェアは "Share On Facebook" クリックして下さい。若しくは、下のフェイスブックマークボタンのクリックでもシェア出来ます。寄付は下の "DONATE"のボタンをクリックしても可能です。
何卒宜しくお願い致します。
日本在住の方の応援を受けさせて頂くために、ゆうちょ銀行の口座を利用して頂いております。このサイトでは、クレジットカードを利用し、匿名での募金も可能ですが、クレジットカードを利用しない方法は、銀行振込をご利用して頂けます。口座詳細は、日本語でホームページをご覧いただくか、メールにてお問い合わせください。
日本語公式ホームページ： 『ももちゃんを救う会 』
今後は公式ホームページがメインになります
プライベートHP: "Help For Momoko's Surgery! "
This site is made by Momoko's father "Emmanuel" and mother "Kiyomi".
(You can see the Japanese message is at the end.)
日本語でのメッセージは英語文の終わりにあります。(このページをそのままスクロールして下さい。)
『ももちゃんを救う会』 が皆様のお陰で正式に設立されました。今後ともよろしくお願い申し上げます。
This page is to assist her surgery.
Please help us to save our 4- year old daughter, Momoko who is currently fighting for life. I'm a father of Momoko. I created this account to help her with the surgery and surgery-related expenses. We would deeply appreciate if you could help her.
Here is a letter from Momoko's mother "Kiyomi".
***********************************************************
Hello everyone, I’m Momoko’s mother.
<Please watch the video I made for this site!>
Thank you for visiting this medical crowd-funding 。page and taking the time to read this. My daughter suffers from Grade III to IV Subglottic Stenosis, having 95% of her tracheal (windpipe) pathway closed. She has overcome many crises that threatened her life, and each time, I was terribly afraid of losing her.
We live in Japan now. I thought that in this country, it would be possible for my daughter to undergo the surgery she needs for recovery. Unfortunately, I was told by her doctor it was not the case and I had to give up any hope.
It also means that I have to be always afraid of seeing her leaving me forever. Anytime, the tube she has in her throat may fall out and cause her breath to stop.
Moreover, she will never be able to speak if she is not operated as needed.
As a mother, I cannot endure such a terrible fate!
In Japan, there are no hospitals and doctors with the technical skills and experience required for a successful operation.
We would not have been in the need for donations if the operation had been possible here in Japan.
However, after some search, mainly on the Internet, I found that the only hospital in the world which can handle the required surgery is in Lausanne, Switzerland.
I finally decided to take her to The Lausanne University Hospital.
As you might imagine, the operation is extremely expensive. In addition, there are the travel costs, and other expenses related to the surgery (with including the fee for Gofundme).
Those are the reasons that led me to ask for help through this funding.
The collecting donations for private reason is very difficult. Actually, there's no system and crawdfunding site for danation base in Japan. So it's true that private activity of collecting donation in Japan is so hard, and it's more difficult for the person who especially doesn't have any organization or group which support mainly. Honestly, it's difficult for me to stand on the street with my sick little child for asking donation or knock the door at each companies.
I need to stay with her 24 hours because of her desease, so using this crowdfunding site for helping her is the only way that I can do now.
My daughter and I appreciate you from the bottom of our hearts for your prayers and gracious donations.
If you have any question, please email to me.
Please click my email on top of this site.
Homepage： 『ももちゃんを救う会』 Official home page ("Help For Momoko's Surgery! " is the private homepage by Momoko's mother, and it's also available to see.)
－ Here is the detail of my daughter’s story －
Momoko was born in 2012. Unfortunately she stayed in the Neonatal Intensive Care Unit (NICU) for 3 weeks due to her SpO2 not being stable. She stayed in an incubator without an artificial respirator, and afterwards, I was finally allowed to bring her home.
However, her condition seemed languish day by day a few days after she left the hospital. One day, I noticed she sometimes stopped breathing. I rushed back to the hospital, and she went into the artificial respirator on the same day.
At first, the diagnosis was that a virus was attacking my daughter, and after some treatment she did get a little better. Then the artificial respirator tube was taken away.
However her condition wasn’t stable and it even got worse little by little. One day, while being in my arms crying, she stopped breathing and became lifeless. Even now, I feel scared when I remember that moment. She regained consciousness after a heart massage. I was forced to go out the room soon after the doctors came in, and waited for many hours without being told her condition. I didn’t know whether she was alive or not until I was allowed to enter the room, and noticed she regained consciousness.
I kept crying in the hall during that time.
When I was allowed to enter the room, she was sitting on a towel tainted with blood with a tired face.
The doctors told me that they had difficulty to insert the artificial respirator, so it had to be forced in.
When I saw her finally resting in the respirator, I thought back on the day she was born. She was big & beautiful, and I could hear her crying. But now she had lost so much weight, and I couldn’t hear her voice.
I couldn’t sleep at all almost one month since then. I was scared of losing her while I slept.
The hospital was a public hospital, but she was transferred to the university hospital of our city after that.I was told in the evening that she had to undergo a tracheotomy surgery soon after we arrived there by ambulance.
I was almost in a panic because, for me, it was very difficult to decide alone and quickly to have her undergo the operation. However, I had no choice because the doctor told me my daughter would die without the surgery....
We stayed at the University Hospital for 5months. After we came back home, she had to live with an oxygen generator and a SPO2 monitor for six months.
There were emergency situations when the tube fell out, and she stopped breathing and lost consciousness in front of me. Sometimes the amount of blood loss through tracheostomy was too much for me to handle. I kept crying. I was just afraid of losing her.
She always has been under the life-threatening condition because once her tube falls out, she becomes unable to breathe. So I have to be with her 24hours a day, and I need to check her breath all the time when she is sleeping.
I’m always scared of not noticing her breathing has stopped during my sleep. So naturally, I wake up many times during the night.
So I started discussing with her doctor at the University Hospital since she lost her consciousness when her tube fell out.
My baby girl was one and a half years old at that time. The doctor told that they would do the operation only when she reaches the age of two.
The doctor recommended using a ‘T-Tube’ as a stent to open up the narrow section of the trachea, but it would take at least 2 years for the skin around the tube to form plus additional time to close the tracheostomy. Also he told he was not sure if that surgery would be successful.
I didn’t feel it was the best solution when I heard of it, so I started doing my own research in hope of finding an alternative solution. I finally found a Japanese doctor who wrote a report about pediatric airway stenosis. At the time, he was working in a hospital in Switzerland ,where we would go, and he worked with a very famous doctor who is considered as the best specialist of pediatric airway stenosis in the world.
I succeeded in contacting him, and he agreed to do test on my baby girl. He was so kind, and came to Japan to help the test. I learned many great things about him. Using the Cotton-Meyer grading system, he diagnosed that my baby girl had ‘Grade III to IV Subglottic Stenosis. This means that her stenosis was very severe, and the surgery method to be used depends on that condition.
The doctor told me that the ‘T-Tube’ operation cannot save her ailment, but the best surgery would be based on ‘Partial Cricotracheal Resection’ (PCTR). Unfortunately no hospital in Japan can perform this surgery. The ‘LT-Mold’ stent used in PCTR is limited to a few experienced centres in Europe, but cannot get out to Japan. My daughter’s doctor confirmed that no hospital in Japan had enough experience to perform a PCTR, and he said “I’m very sorry, but you need to give up”.
However, I did not give up and kept looking for the right treatment.
Some months passed, and in my search for more information, I contacted a doctor who worked at Japan’s largest Children’s Hospital. He told me that he saw a medical report about PCTR which was performed at a hospital in Japan once. I took my daughter to that hospital and she had a test there. However, the outcome was not what I expected. The doctor told me that the surgery had a high risk of failure, and that the rate of success of decannulation (removing the tube when it’s no longer required) was also very low. Moreover, he told me he had no experience in providing that surgery to children. He had only operated a small number of adults who had had many other unsuccessful surgeries at other hospitals. Finally, I was told that I should lower my expectations for seeing my daughter properly use her vocal cords. Her voice would be very weak and it would be very difficult for her to speak normally. I was also reminded that no hospital in Japan had the experience to perform the surgery. I realized that there was no hope in Japan. I was totally dejected, and deflated of hope for my daughter’s future.
I am not the type of person who gives up though. I love my daughter, and I don’t want her to suffer anymore, so I began to think “What if I was to go to Switzerland, and have the operation performed there?” I contacted the hospital that could perform the surgery in Switzerland, which was the same one where the Japanese doctor who worked in Switzerland had been in before (but now had transferred elsewhere). I was also told that some other hospitals in the world conducted this surgery by the doctor who worked in this hospital when we met. Then I knew this hospital is the only one and the best. I sent the medical data of my daughter’s condition to ‘Lausanne University Hospital’, and found there’s a doctor who had a lot of experience with Subglottic Stenosis treatment! And I was told that I don’t need to worry about my daughter’s voice! Hope was back to me!
Actually, Lausanne University Hospital is the best hospital for this disease especially for children with severe subglottic stenosis.
***********************************************************
So now you know the story of my daughter’s condition, but here’s where I need your help.
Please donate to my daughter’s medical crowd-funding campaign. I will keep this page updated with all the latest events, and if you need to contact me or if you have questions, please send an email to me.
The money collected will only be going towards the cost of the operation and expenses relating to the surgery.
I thank you so much for reading about my daughter’s story, and I implore you to spread this information to others who would be so kind and willing to donate towards this risky important surgery.
Again, Please share to as many people as you know.
***********************************************************
日本の皆様へ
このサイトを訪問頂き、ありがとうございます。
娘は生後２か月の時、声門下腔狭窄症となり、気管切開をしました。２度に渡るセカンドオピニオンの結果、手術が非常に困難な症例で日本では手術が不可能だと言われました。探し続けた結果、スイスのローザンヌ大学病院で手術可能だとわかりました。しかし、手術費が高額なため、このサイトで寄付を募ることにしました。
娘の病気の為、２４時間付添いが必要な上、正直子供を連れての街頭募金活動も出来ませんし、個別に一軒ずつお願いをして歩くのも現実問題困難です。
今、出来ることは、この様なサイトの力を借りて募金活動をすることだけです。
ここへ至る過程は決して易しいものではありませんでした。しかし、子供の命がかかっているため、あきらめずに頑張り続けております。もし、ご理解を賜ることができましたら、どうか、ご協力をお願い申し上げます。
疑問点などございまいたら、どうぞご遠慮なく、メールにて日本語でお尋ねください。
（サイト左上の✉マークより入れます）
１人でも多くの方にこのことをシェアしていただければ、幸いです。
寄付をして頂く場合は、ページの上の右側にある、 "Donate Now" を、フェイスブックでのシェアは "Share On Facebook" クリックして下さい。若しくは、下のフェイスブックマークボタンのクリックでもシェア出来ます。寄付は下の "DONATE"のボタンをクリックしても可能です。
何卒宜しくお願い致します。
日本在住の方の応援を受けさせて頂くために、ゆうちょ銀行の口座を利用して頂いております。このサイトでは、クレジットカードを利用し、匿名での募金も可能ですが、クレジットカードを利用しない方法は、銀行振込をご利用して頂けます。口座詳細は、日本語でホームページをご覧いただくか、メールにてお問い合わせください。
日本語公式ホームページ： 『ももちゃんを救う会 』
今後は公式ホームページがメインになります
プライベートHP: "Help For Momoko's Surgery! "
Organiser
Kiyomi Futagami
Organiser
North York, ON
Inspired to help? Start a fundraiser for someone you know
