Living with Early Onset Alzheimers
So, that's my "main story". I post free music and art as an extra "Thank you" to you that subscribe, comment, share, or donate. And, really in that order... Donations obviously help because disability doesn't provide enough to live off of let alone have any kind of "life". But, whether it's a bum begging for$ for booze or Oprah buying a house, the only difference in EVERYONE'S life is the # of zeros at the end of our bills, homes, expenses, etc.. HOWEVER a comment/subscription/ share helps me emotionally(Plus YOU get free music and art!). Last time I looked,Amazon doesn't sell boxes of "kindness". So, even if you can't spare a penny or don't want to leave a comment, just subscribe and enjoy some free music and art and now that I found the rewards program, well enjoy the goofy ones I'll be putting there! Update is below the art / music and I kind of do things differently here, where I post the 'updates' on main page and archive the old ones. I might change that later.
June 7th. (cleaned up my 'story' and moved the long one to archives. I just discovered the 'rewards' program so going to post some rewards beyond all of the free music and art below!)
Here's a painting I did last night (I couldn't sleep so I just laid in bed with my tablet trying to doze off and well, didn't. Insomnia's a bitch but I'm used to it. and this is what came out while trying to sleep but doing something rather than toss and turn.
Posted this one a few weeks ago...
Here's "House of the Rising Sun". Been 20+ years since I played it. I Messed around for like 10 min, then taped it.
Anyway, I've been in financial hell ever since my tablet that has my entire schedule/doctors/contacts/ everything... broke ( then the replacement broke...) PLUS my phone broke (twice)/had to pay for my meds due to new laws, and just getting slammed left and right financially that I am just drowning right now. I can't even begin to explain everything let alone process it, but it will work out in the end, one way or another. Just have to keep on fighting. If you enjoyed these, please share /comment/subscribe/or donate what you can spare.
May whichever God or Higher Power you believe in bless you as much as you bless me!
Second, I have my first "Reward" winner with Kathleen Diaz-Latham. I have contacted Mrs. Latham and she wants me to share her song with all of you. We have worked out what style she wants and the song has been written. It should be finished in a few weeks and I am planning on having it posted on July 1st just as a way to kick off a new month. (also Michael, technically you donated before I posted that rewards thing, but you have helped me out so much over the years that man, you are an exemption. shoot me an email about your song ok man?
And finally, I am still working on making the front page a little cleaner and adding more content and all of that. I think when I post Kathleen's song / video on the 1st, I'm going to post THAT video and then just have links to all of the previous ones that I've done as 'archives' in my old way of 'updating my page'. I also have about 20 songs that are uploaded to a different youtube account so will be uploading those as well.
So basically, July 1st should be a BIG day for any of you who follow me for my music. Kind of going to be a complete reboot / restructure of my whole page but staying focused on my main ideals about this page. Yes, donations help... but again, subscriptions / comments help just as much because you can't buy compassion and kindness. Anyway, lots more coming so please share this page if you haven't already or post it on your facebook page and say "Check it out, this guy is in financial trouble, but you don't have to donate if you don't want to, he is giving away free music just for subscribing / showing him kindness.
I also started a reward program. They don't really give you much space to explain the rewards but basically, I am recording unique songs for donations. You will have to respond to my thank you email if you want the reward so I know WHAT you would like me to record.
Remember, I do have my limits on what KIND of music I can play, so it could be something like "Play whatever you want" or it could be "I want to buy "Vampire Sonata" (one of the songs I've written but haven't recorded yet.)
Whatever you choose It will be YOUR song and you will 100% own it and can do whatever you want with it. It WILL have end credits like "Written and Produced by Kevin M. du Charme from Payne Road Studios for "your name"'s generous GoFundMe donation" or something. Dunno, again this will have to be discussed via GoFundMe's email to create something you are happy with!
Anyway, hope you all enjoy the reward program, although I can't reward everyone over the years, but if you have donated and want the reward, shoot me an email / make a comment, and well, I'll see what I can do :)
Don't need to read below this line.
Final Archive. ***My story, LONG version***
A lot has changed in the 3 years or so since I wrote the article for cracked and since this page was created.I don't like the way gofundme keeps your front page as your "original story" instead of your updates "updating it". Basically my updates are PREVIOUS front pages... hope you'll get used to my style :)
I was diagnoesd with Early Onset Alzheimer's about 3 years ago. I am now finally on the road to being tested for OTHER diseases that mimic EOAD (because well, the diagnosis is based on my symptoms and genetics and family history.) So, it is possible that it will be something like Werneke's or C.T.E. or like 20 other neurological conditions, because MANY of those have very similar beginning symptoms. However THOSE can be managed / healed / even cured unlike EOAD.... It got to the point where I can't get or even afford the tests and help I NEED if I want to live more than another 7-8 years NO MATTER WHAT IS GOING WRONG WITH ME..... I can barely afford the doctors / medications that I take for my other disabilities. End of story basically... below is just details and ramblings :)
So, well that is why my sister set this up for me. I am completely unable to work. Technically, I'm not ALLOWED to work because I could be a danger to myself or others in any work environment. Also, whatever I have (EOAD is the most likely) has COMPLETELY destroyed my ability to process and comprehend new information. BUT I am STILL able to function mentally very well with things that I am familiar with and am able to learn new things (it just takes me a LOT longer than it used to). In a way, I have made GoFundMe my job. (As a way to get financial help AND return the spiritual and emotional help that I receive by knowing people care about me, even just with a comment. Also, it is a way to keep my mind active since I can still create and share my music, art, poetry etc because I can still do THAT!
The reason I mention EARN the donations is because I am not used to charity and it is difficult for me to even resort to GoFundMe (hence why my sister started it up for me to begin with). I had to put aside my pride when I realized and accepted the fact that I can't continue to survive without help, both financially and spiritually. The kindness of both small donations, or large ones help me financially, but ALSO the compassion from strangers helps my spirit, hope, and soul! (even if all you can spare is your time and a comment). That is WHY I want to return the favor in some way, so for now it is enjoy the music and feel free to download it and share with your friends :) Thank you all for everything!
I ALSO don't want people to feel bad about just commenting "I wish i could help but I cannot afford to.....", nor do I want for people who can afford to donate more make others feel that way. IE SUBSCRIBE because well, continue reading :) It is difficult to explain....maybe it's just because of who I am, or because of my conditions (EOAD/ whatever it is) is just ONE of many of my health issues but is obviously the main one). The donations help IMMENSELY because I am broke and in debt. But ALL of us are in debt in some way or another (doesn't matter how much money a person has, the only thing that changes is the price of their bills / toys / houses/ cars / living expenses etc.)
So while donations DO help me very much, the fact that people show kindness and compassion to me is something that is priceless. I can't pick up a box of "Someone Cares About Me" at the dollar store. Hence again, *SUBSCIRBE* no matter what you can donate, even if it's just a comment, and enjoy all the free music and art and whatever else I think of to give to you all compassionate people in return for bringing happiness and hope to me!
I am a little nervous that people might start thinking I am doing this as a scam claiming EOAD etc, but I hope it isn't taken that way. After all, my article on cracked has received like 5 million views so if it ISN'T EOAD at least I spread awareness of it. If it turns out to be something ELSE, well that doesn't change the fact that I am completely disabled at 43 (almost 44) and am in deep shit financially, physically, emotionally, and mentally.
So, that is why all of my music / art / poetry etc is for free. (I mean it's all copyrighted so well, yeah share it don't steal it) In the future maybe I might start some kind of "Donation level" like donate a content, you get the music free, donate 5$ you get the music free, donate 10 $ you get the music free. (lol). Really, that's completely honest but also just a joke. Because, I AM thinking of doing free lance work for people so that I EARN the money people donate to me. For instance, maybe you like a drawing I did, well for say 10$ donation I will send you a print, for 25$ i might just draw you a personal one, $500 and yeah, pretty much I'll do whatever you say and tape me doing it as long as it's PG-13 and legal, etc etc. Dunno, not really at that point yet.
I hope that all made sense and maybe it does... It is difficult for me to express myself clearly nowadays, but that doesn't stop me from trying. And a big reason behind me trying (not just on GoFundMe, but in life overall) is because of all you amazing strangers that both help me financially as well as spiritually. So I THANK YOU ALL SO MUCH, even if you just read this and didn't leave a comment OR donation, then well enjoy the free music too and thanks for visiting!
Here's a painting I did last night while I couldn't sleep because I was stressing out about everything I have to do today and how I'm going to financially, physically, and mentally make it through the month. Right now I have 3 doctors visits (June 13,15,18th) and 4 physical therapist days in there....plus xrays whenever I can fit them in. Meanwhile, my bank account is dryer than the Saraha.... Anyway archive is down below....enjoy the painting.
*quick update I am really financially struggling.. if anyone can spare a few dollars it would help immencely. I've cut out all of the "creature comforts" in life like netflix / cable / cheaper internet / whatever just to stay afloat. Sure, it SEEMS like I've raised a lot of money, but notice almost 6000$ of it was from 2 years ago when I published my articles on cracked.com. (some of the anon "$100-200" donations were actually payments for work I did that the people paid me here so they could write it off for taxes) So even if you can't donate, please subscribe and share my story with others and leave a kind message ;)*
What I probably have..... https://www.conciergecareadvisors.com/news/hippocampal-sparing-alzheimers/ For those of you who may not know what EOAD is, this is an article I wrote about it. Click Here! and hopefully you enjoy the article while learning about something new.
*QUICK UPDATE MAY 1ST I am healed up from that bike accident but now am just so deep in doctors visits and trying to survive with very little help except for my sister, who no longer lives near me, and very few friends that give me rides when they are able to. I AM trying to keep my promise on continuing to create music for everyone that subscribes / has donated / left a comment etc, but really right now I have much bigger problems that I need to focus on. Hopefully at some point, life will cut me a break and I can go back to fooling around with my music and video software again and actually relax for a day or two... *End update What my page is about (short version). I am in deep financial trouble because of my conditions. I can not even afford my current health care which does not include any treatment for HSP-EOAD. As a return for a donation, or even a kind comment,I create music/videos, post art, write stories, etc as a way I can return some of the kindness you all show me. So I encourage everyone to subscribe and share, not for MORE donations from people who have already, but so you will get an email update every time I post a new song! BTW I also do my updates in reverse because I don't like how the front page isn't the update, but is the original post my sister made 2-3 years ago... Read on for more details!
Again, I am astounded by the support from all of my fellow Cracked friends. I am going through a very tough time right now and all the well wishes in the comments on my article, and also the unbelievable generosity has really made me feel cared about. Honestly, I seriously have no friends or family left that talk to me at this point except my sister and (occasionally) my father. It's nice to know people care about me still.
To all my long time friends at Cracked.com, thank you so much. I woke up astounded to see how much support I have received. I don't want to thank everyone individually because people donate what they can and 5$ means just as much to my spirit as 50$. But I do have to give a special thanks to J Furlott. Your donation had me in disbelief and even though I'll probably never meet you, I hope you know just how much that meant to me.
To people that have shared or donated, I can't even begin to thank you enough. It is difficult for me to accept charity since many of you know that I've spent a lot of my life helping others. Every donation gives me hope and strength to go on. The money means less to me than knowing that people actually care about me.♥ you all. Kevin
I'm sorry you're losing sleep. It's natural, I suppose, with all the stress, but I hope you get some good rest soon. You are talented, but that painting is spooky! I hope your upcoming appointments go well.
Hey Chris! Thanks for the encouraging words, they DO mean a lot to me (I'm not kidding when I say that the compassion and kindness from strangers help me both financially but also keep my spirits up, which can't be bought). I'm glad you like the music! It's a little difficult for me to do right now but it is also healthy for the mind (especially EOAD, but EVERYONE), to continue to do and learn new things! Hopefully, I'll have the next song in a week or so, but I've been so busy living life again after depression took away 3 1/2 years of it. It's good to be back though and I just getting started! Going to be stuck with me for a while Chris, luckily my EOAD was caught early due to hereditary genes / IQ testing etc... I'm hoping to raise enough money to afford to get into some trial treatments and whatever I can do to both help myself and help others! SO stay tuned, Radio Kevin's Alzheimers continues after this commercial break from our sponsors! (dumb tune plays "DO YOU LIKE WATER!!!!! (crowd screams YESSSS).........) WELL THEN YOU WILL LOVE NEW WATER FLAVORED CRAPA COLA!!!!!!!! (crowd quiets down and says huh? ... everyone changes the Spotify / Pandora / FM station)..... :)
Dear Rebekah, (I hope you read this. That is fine if you cannot donate. As I mentioned, the kind comment means more to me than the money (although that DOES help, but like you, we all have financial problems. Mine just became severe because I am not ALLOWED to work) Please subscribe and enjoy all the free music that will be coming over the next year or three or 10 if I am still functioning at that point. (who know's , alzheimer's research has come a long way in the past 10 years. The future is always unwritten and I'm not gone yet! With *hugs and Hope for you to find a job!* Kevin