Living with Early Onset Alzheimers
So, that's my "main story". I post free music and art as an extra "Thank you" to you that subscribe, comment, share, or donate. And, really in that order... Donations obviously help because disability doesn't provide enough to live off of let alone have any kind of "life". But, whether it's a bum begging for$ for booze or Oprah buying a house, the only difference in EVERYONE'S life is the # of zeros at the end of our bills, homes, expenses, etc.. HOWEVER a comment/subscription/ share helps me emotionally(Plus YOU get free music and art!). Last time I looked,Amazon doesn't sell boxes of "kindness". So, even if you can't spare a penny or don't want to leave a comment, just subscribe and enjoy some free music and art and now that I found the rewards program, well enjoy the goofy ones I'll be putting there! Update is below the art / music and I kind of do things differently here, where I post the 'updates' on main page and archive the old ones. I might change that later.
June 7th. (cleaned up my 'story' and moved the long one to archives. I just discovered the 'rewards' program so going to post some rewards beyond all of the free music and art below!)
Here's a painting I did last night (I couldn't sleep so I just laid in bed with my tablet trying to doze off and well, didn't. Insomnia's a bitch but I'm used to it. and this is what came out while trying to sleep but doing something rather than toss and turn.
Posted this one a few weeks ago...
Here's "House of the Rising Sun". Been 20+ years since I played it. I Messed around for like 10 min, then taped it.
Anyway, I've been in financial hell ever since my tablet that has my entire schedule/doctors/contacts/ everything... broke ( then the replacement broke...) PLUS my phone broke (twice)/had to pay for my meds due to new laws, and just getting slammed left and right financially that I am just drowning right now. I can't even begin to explain everything let alone process it, but it will work out in the end, one way or another. Just have to keep on fighting. If you enjoyed these, please share /comment/subscribe/or donate what you can spare.
May whichever God or Higher Power you believe in bless you as much as you bless me!
However right now I am dealing with something I never expected. I have cancer in my vocal chords and throat. They don't know how widespread it ia(will know when they do biopsies on the 25th.....and really won't know exactly what my options are until the follow up visit on the 3rd of July.
That is the main reason there hasn't been any new music... I cannot talk above a whisper.. So, well hopefully treatment goes smooth and I can get back to making silly songs. Pray to whatever God you believe in (atheists just send some positive energy.......... Same thing really) and let's see what happens.
And to everyone that follows my page, I just want to say have a happy whatever you celebrate! I am seeing an ENT to figure out why my voice is gone and hopefully can put out some music here soon. I think tomorrow I'm just going to tape myself playing the piano as a Christmas gift for everyone. (Not sure if I'll play a christmas song because well, they don't sound right without lyrics. I probably won't talk much either, but you all will witness what has happened to my voice in the past 3 months. It is frustrating because on top of everything else I have going on, now this happened.
Anyway, I'm in good spirits overall. The procedure done on my back has relieved a bunch of pain and I'm trying to keep my mind active by doing a lot of logic puzzles and writing and just keeping it active. Same physically, although my myotisis (i have no idea how to spell it) leads to a lot of fatigue and some pain, I refuse to let myself be useless.
I always say "Quick Update" and then type a novel so I'll stop now lol. House is finally on the market (i'll post pictures soon), hopefully it will sell so I can get out of this town and near my sister so I have someone to help me out besides Dawn (who is amazing).
Happy holidays everyone and just thank you all so much. I wish there was a way I could invite you all over and get to meet you in person and give you a hug!
As for everything else, I'm hanging in there. Money is tight as hell, my myoscopy (or really I don't know how to spell it..) is getting worse but I'm managing. House is finally up for sale 100% and looking beautiful. I'm pretty solidly in stage 2 now of EOAD but I'm keeping everything positive. Kind of just a horrible joke, but with the myoscopy or whatever and my EOAD , I feel like I'm an alcoholic again! Can't remember shit and trip and fall all of the time. So at least I have years of experience with THAT :) Of course, after almost 2 years sober , it's kind of like 'damn, I'm drunk without the buzz!"
Anyway I love you all that read this and I'm trying my best to write the songs but honestly, I know Kathy and Mike don't care too much so not like there's pressure. To the other 6 of you or so that read these, Just thank you for showing me a little care and compassion. I don't have much of that in my life except from the few of you that read this. That's why I'm so excited to move.... I have no friends or family left in Sebring and I live a very secluded life. It's kind of pathetic when you are excited to go to the doctors because you haven't talked to anyone for a month.
Again, I am astounded by the support from all of my fellow Cracked friends. I am going through a very tough time right now and all the well wishes in the comments on my article, and also the unbelievable generosity has really made me feel cared about. Honestly, I seriously have no friends or family left that talk to me at this point except my sister and (occasionally) my father. It's nice to know people care about me still.
To all my long time friends at Cracked.com, thank you so much. I woke up astounded to see how much support I have received. I don't want to thank everyone individually because people donate what they can and 5$ means just as much to my spirit as 50$. But I do have to give a special thanks to J Furlott. Your donation had me in disbelief and even though I'll probably never meet you, I hope you know just how much that meant to me.
To people that have shared or donated, I can't even begin to thank you enough. It is difficult for me to accept charity since many of you know that I've spent a lot of my life helping others. Every donation gives me hope and strength to go on. The money means less to me than knowing that people actually care about me.♥ you all. Kevin
Thank you Rebekah, Ryley and Chris for all the well wishes! I forgot about the comment section because it only appears when I view my own page (and usually, I'm just doing updates etc). But your kind comments are much appreciated! And Ryley, just showing that you care is as important (if not more so) than a donation. I can't buy a big bag of "compassion" at the store!
Hang in their Kevin. Good luck with the house sell and hopefully your voice comes back soon, although there's nothing wrong with singing like Tom Waits!
I hope this passes! At least you may want to lobby your representative and senator... https://www.congress.gov/bill/115th-congress/house-bill/6646/text
Hey Kevin hope you're going good!
I'm sorry you're losing sleep. It's natural, I suppose, with all the stress, but I hope you get some good rest soon. You are talented, but that painting is spooky! I hope your upcoming appointments go well.
Hey Chris! Thanks for the encouraging words, they DO mean a lot to me (I'm not kidding when I say that the compassion and kindness from strangers help me both financially but also keep my spirits up, which can't be bought). I'm glad you like the music! It's a little difficult for me to do right now but it is also healthy for the mind (especially EOAD, but EVERYONE), to continue to do and learn new things! Hopefully, I'll have the next song in a week or so, but I've been so busy living life again after depression took away 3 1/2 years of it. It's good to be back though and I just getting started! Going to be stuck with me for a while Chris, luckily my EOAD was caught early due to hereditary genes / IQ testing etc... I'm hoping to raise enough money to afford to get into some trial treatments and whatever I can do to both help myself and help others! SO stay tuned, Radio Kevin's Alzheimers continues after this commercial break from our sponsors! (dumb tune plays "DO YOU LIKE WATER!!!!! (crowd screams YESSSS).........) WELL THEN YOU WILL LOVE NEW WATER FLAVORED CRAPA COLA!!!!!!!! (crowd quiets down and says huh? ... everyone changes the Spotify / Pandora / FM station)..... :)
Dear Rebekah, (I hope you read this. That is fine if you cannot donate. As I mentioned, the kind comment means more to me than the money (although that DOES help, but like you, we all have financial problems. Mine just became severe because I am not ALLOWED to work) Please subscribe and enjoy all the free music that will be coming over the next year or three or 10 if I am still functioning at that point. (who know's , alzheimer's research has come a long way in the past 10 years. The future is always unwritten and I'm not gone yet! With *hugs and Hope for you to find a job!* Kevin