Alana's Butterfly Life

€13,818 of €5,000 goal

Raised by 323 people in 34 months
Our little Alana, was born in February and was diagnosed with a rare and horrible genetic disorder, called Epidermolysis Bullosa (EB). To put it simply, her skin doesn't work and the slightest touch causes it to blister or tear as it is as fragile as a butterfly's wings, giving rise to its more common name, 'Butterfly Skin'.

It’s a debilitating, incurable condition (for now!) and sadly, Alana will have to endure pain and constant bandages for the rest of her life.

All we can do is try and make Alana's life as comfortable and pain free as we can. She requires round the clock care (obviously more than the average newborn!), which unfortunately makes it impossible for Rachel and Greg to work full time anymore. So we are raising funds to help her in any way we can and to be ready should we get the green light for new treatments overseas. Any donations are gratefully accepted xxx
11510989_1463590194.4062_funddescription
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Thank you so much to everyone who has donated to Alana's fund so far! The response has been really amazing and believe me when I say that Little Alana is worth it! She's an amazing little girl with a smile that would melt the coldest of hearts, despite what she goes through every day.

Keep her in your thoughts!

Thanks again,
Karen xxx
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Apo
1 month ago

best of luck.

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Frances O'Neill
33 months ago

Best of luck. Hope all goes well. From your northside cuz x

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€13,818 of €5,000 goal

Raised by 323 people in 34 months
Created May 18, 2016
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€50
Anonymous
2 months ago
CV
€100
Claire Vaughan
4 months ago

I am so sorry to hear about your beautiful little girl. I can’t imagine how difficult this is for your family.

Apo
1 month ago

best of luck.

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Frances O'Neill
33 months ago

Best of luck. Hope all goes well. From your northside cuz x

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