Wheelchair Van For Sean
Sean is normally a very happy boy and even with his limited vocabulary is quite a clown and he knows it. His favorite thing is listening to his music. Since he was an infant he has loved pop classical, especially Il Divo. They have been our magic since he was an infant and almost always is soothed when they are playing. He also likes Josh Groban, Celine Dion and the soundtracks to The Lord of the Rings and Star Wars. He loves playing with his toys which are usually infant/young toddler toys. He loves his learning toys that play music.
This year Sean has grown quite a bit. He is now 70lbs and over 4 ft tall. I currently transfer Sean from his chair into his car seat and stow the wheelchair in the rear of the van we have. Lifting him in and out of his car seat is getting to be more of a challenge. In my life I have already had 2 back injuries and a back surgery. My fear is that eventually my back will give out and I will be unable to care for Sean. He has specialist appointments almost 2 hours away and therapy sessions 3 days a week. 30 min away. Now a wheel chair van has become a necessity.
I have had Sean in my custody since he was 6 weeks old and adopted him when he was 3 1/2.
Thank you so much for your interest in Sean and your desire to help him. God Bless you all. Lisa and Sean Vinson
Because the air in our existing van has been going in and out, plus the windows don't go down, a couple of weeks ago I had scheduled a medical van for his Shriner's appointment today. I found out this morning that the ride was never scheduled and they never bothered to let me know so I could make other arrangements. So I wound up taking our van. It was pretty warm in there on the way but I literally laid hands on my van when we were leaving and asked the Lord to get us home and with at least cool air. It was warm for a bit and then the air kicked in the rest of the way home. It wasn't cold but it was much cooler than on the way. Thank you Lord!
Sean weighs 103 LBS Yikes. He's gained 10lbs since the end of Sept and he is 56 inches. He's hitting those early puberty growth spurts. He also had his usual x-rays and they said his hips and spine look perfect. You could see where he had his hip surgeries and they have healed well.
I am so thankful that he travels so well. He's sound asleep as we had a long day. Thanks to all who are praying for us and are helping with the fundraising especially the shares. God Bless. Lisa and Sean
Edit: He was being sneaky when I checked on him because just as I was about to hit send on this he began knocking on his bed LOL He wasn't ready to go to sleep after all even if Mama is :)
Does anyone want to take guesses on Sean's weight when we go to Shriner's for his appointment on the 29th? He was 93 lbs. the end of September. Because he can't stand on a regular scale they weigh him in his chair on a big scale then take him out and weigh just the chair which can vary depending on how much junk we've packed into his backpacks. I'm going to take the first guess at about 105. The last time I measured his length he was 55 inches about 6 weeks ago. I'll measure him before we go to Shriner's to give them an accurate measurement.
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THANK YOU and God Bless you to the recent donors as well as everyone who has donated here and to us in person. We are getting there.
This past Friday, a reporter and photographer from our local paper came to Sean's therapy. The owner of the therapy place had called them and asked them to help us in our goal to raise the money we need for the wheelchair accessible van. The reporter also knows the man from the Knights of Columbus who I had meet a few weeks ago.
Here is the link to the article which I thought would be a blurb somewhere in the paper but which actually takes up almost the whole front page plus another 1/2 page.
I am seeing the light at the end of this tunnel.
In the last month The Knights of Columbus here in Citrus County have gotten involved with fundraising for our van thanks to Lin Brown, the owner of Central Florida Clinic for Rehabilitation where Sean has gone for therapies since he was 2 and he is now 11 years old and very close to beginning huge growth spurts.. They have opened a dedicated bank account for the funds raised. Also, a friend who sells AVON is doing an 8 week long fundraiser and donating out of her own profit towards the van fund.
Here is the link for the AVON fundraiser.
For those who have asked what you can get Sean for Christmas, please consider donating towards the van in lieu of gifts. Sean seriously needs no toys or clothes right now. But, in the not too distant future I will have to quit lifting him into his car seat. I probably should have stopped already but I guess I am too stubborn. At last weight check at Shriner's a few months ago he was 95 lbs. and 55 inches. So he will go to school on the bus as usual and I will have to get the medical transport for his doctor's appointments. Other than that he will not leave the house until we have the wheelchair van where I can just roll him in and leave him in his chair.
I am going to post some of the pictures I did for the Knights of Columbus.. They had asked me to do a presentation for them to show to the other Knights Councils.
Thank you so much to all who have helped already.
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