Rexs School Campaign
Watch the Video. Share and donate what you can.
Any funds that are not used for Rex will be donated straight to http://www.mustardseedautism.co.uk/ who have been an invaluable support to Rex.
Huge thanks to everyone who has shown such kindness and support, we deeply appreciate it. We well know that Rex is one of many children in a similar position, and we hope that our fight might also help and encourage others, and hilight some of the issues around autism that are thankfully beginning to get wider recognition. We hope to raise more money than we need for our immediate case so the rest can be donated to the amazing Mustard Seed Trust who have been instrumental in helping us to understand autism and what specialist help is needed so that Rex can live a happy and successful life.
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hi,im from farnborough,id love to contact mum,we have a six year old who we are waiting for assessment for autism,everything you describe is exactly like what she goes through,Farnborough has no support,even local pediatricians keep sending out for support but it comes back services over crowed...referred on :(
I can't donate money at the moment but I can donate some of my time to talk with you and rex and support iin any way I can. I am an Autistic adult (who has multiple other disabilities including anxiety and depression and being a wheelchair user), I had very similar problems and reactions to Rex when I was at school and only made it through bbecause of my own parents amazing efforts. I am now nearly qualified as a creative arts teacher working in SEND schools (I tried working in mainstream but it damaged my health to much and I was having constant severe meltdowns). I also give talks at a few universitys and schools about autism education prevision from an autistic perspective (ie no abusive interventions, no quite hands, all communication iis good communication, suitable sensory environments, etc). You are amazing for fighting so hard and well for your son, I hope he gets the education he deserves in a safe environment soon.
A million thank yous to everyone that has donated to the campaign so far. I am really pleased to tell you that I have now secured an Education and Health Care Plan for Rex so are half way there! Unfortunately the plan that Hampshire have drafted does not name the right school for Rex and does not meet his needs according to the specialists involved so I will be issuing an appeal to Hampshire and taking them to tribunal once again. In the mean time Rex is still out of school in limbo the poor love. This situation absolutely sucks for him, The fundraising will begin again in the new year but until then we are going to have a bit if a rest from it all!
I've worked with children that have ASD for a few while I was with IDS and many of my friends also have ASD so I have a very good understanding what your son is going though. As in the video you said he spend most of his time at home if he's into video games believe I still have an Xbox account if he'd like someone that understand everything to play games with.
Hi, I'm moving to the area at the weekend and have a 7 year old with Aspergers who experiences many of the same sensory and social issues as Rex. I would love to make contact with Rex's mum to offer a friendly ear and to share experiences if it would be of interest. Good luck with your fight to get Rex the school environment he needs and I hope he can feel better soon x
I have a 6 year old with ADHD. We live in Wales and the NHS has failed on all accounts. The school does give some help be we had to hire an Advocate to assist us and we have to keep on top of them. ADHD children see the world different and just need so assistance to keep up with the rest. I hope that you get somewhere, we will never give up fighting for our son.
Hi Guys, just wanted to say I have been through the same thing with my son (who has Asperger syndrome) At about Rex's age he suddenly changed from a happy easy going child into a very anxious and introverted child. I soon realised it was school that was causing him these worries. He would cry every day saying he didn't want to go to school and didn't understand why the other kids wouldn't listen to him when he told them he didn't want to join in their games at play time. The school refused to listen but put him on "school action plus" to help with his severe dyslexia. At 9 (even though he has a higher than average IQ) he still couldn't read, the school used to write in his reading record "good reading today" but my son had memorised all the books, he couldn't actually read!! I took the difficult decision to take him out of school completely and home schooled him for nearly three years whilst trying to get a statement of special educational needs (which is obviously now an EHC plan). I didn't stick to the curriculum, I just did day to day schooling disguised as fun stuff (cooking, shopping, working out the change I should get that kind of thing) It took three attempted to finally get the statement. writing and re-writing the forms adding proof etc etc. Once I had the statement they suggested my son could get the help he needed in a main stream secondary, I ignored this suggestion and when they asked me to provide three schools I would consider I put down the special needs school I wanted my son to go to three times lol. Anyway very long story short (sorry) he's now 15 and loving school, He's doing so well, he's with kids of all abilities and as he's high functioning he says he feels the most normal! not very PC but I'm just so glad that I don't need to worry about his future. The school is fantastic, teaching life skills and encouraging social skills too. Don't give up, it's a hard road for a while but it will get easier. My son's last meltdown was at 9 about a week before he left that school, he's never had one since. xxx
Hi. Did you consider taking the case to Tribunal? There are many good Social Media support groups who can point you in the right direction for support in fighting the LEA decision. Sadly, this is a situation so many of us have been in/are going through. My Facebook contacts & groups helped keep me going when we were at our lowest ebb. Good luck.