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Save the child - SMA II Type

Varvara lives in Belarus. She is a smiling and funny girl, and at first she was an ordinary child.
When Varvara turned 1 year old her parents noticed that the baby was weaker than other children of her age and they decided to consult a neurologist in Belarus. The baby did not walk and crawled very slowly; but their neurologist didn’t diagnose any disease. Despite that  Varvara was feeling weaker and weaker and stopped crawling altogether. 
Eventually her parents decided to go to  Israeli doctors, where the cause of Varvara’s condition was discovered and the correct diagnosis was made. It is spinal muscular atrophy of the second type. It is an awful disease, day after day all the muscles in the body become weaker and in the end a complete atrophy happens- the child can’t move anymore but the brain still functions. 

The only chance to save Varvara’s life is to buy and inject the only medicine for this disease – Spinraza. The first year of the treatment consists of 6 injections and is rather expensive -$570 000.

In Belarus there is no government program assisting people and children with the same diagnosis. The authorities advice people to buy the treatment at their own expense.  That is why we are asking for your help.

Today Varvara’s parents managed to collect $220,000 - this is the amount for 2 injections.  $10 000 will be given by a German charity fund; the third injection will be paid for by a Belarusian charity fund  .  To continue the treatment it is necessary to collect another $250 000.

Please help Varvara to become an ordinary and a happy child.

http://help.blog.tut.by/tag/varvara-nazarevich/ 

Varvara's website 

Youtube video about Varvara 

Supporting documents

1) Birth Certificate


2) Medical Report

Organisateur et bénéficiaire

Nadya G.
Organisateur
Manassas, VA
Nadya Graham
Bénéficiaire

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