Please Support Dylan❤️
Dylan is an awesome 12 year old little boy with a heart of gold and loves everyone !!! This sweet boy just got the news that he has cancer! His parents Vernon and Becky Duncan are wonderful parents to this sweet boy . I want to do everything I can possibly do to help them and with your help we can take away some of there Financial worries!!! She has taken off work for an undetermined amount of time. She also found out that her short term disabilty insurance only covers if she is the one who is sick (not her son). Here is the latest update on Dylan......the oncology team met with Dylan's mom and dad and confirmed that the tumor did appear to be malignant (cancerous). Dylan does not have to go to Vanderbilt this week. The samples that were taken during Saturday's surgery were sufficient. Those samples will be sent to Vanderbilt to determine what type of tumor Dylan has. They will meet with the oncology team on Thursday to discuss treatment plans and options. On Monday Dylan will be admitted back into the hospital and will has his central line port inserted for chemo. He should have his first round of chemo on Tuesday of next week and may be going home on Wednesday or Thursday. He will have 12 weeks of chemo and will then go to Vanderbilt for surgery to remove the tumor. Then will receive roughly 30 more weeks of chemo. It will be a long, difficult process but, if everything goes as planned, he should be cancer-free this time next year! Please keep the prayers coming!!+ Read More
Dylan had an appointment this afternoon with the ENT to address his hearing loss. The office performed another hearing test and discovered that Dylan has had a lot more hearing loss since his hearing test in January. I ask the doctor if we should expect Dylan's hearing to continue to decline. He said that typically the chemo will damage the hearing to a point and then stop. He isn't sure why Dylan continues to lose hearing. Dylan is scheduled for more testing next Thursday to test the function of his cochlear. The doctor said he would definitely need hearing aides, but isn't sure they will help Dylan. If there isn't enough results from hearing aides the doctor wants to do cochlear implants. As frustrating as this all is, Dylan is VERY ready to be able to hear again. He was hoping to get hearing aides today. Tomorrow he has his 3 months off treatment CT scan and MRI to make sure there are still no signs of cancer. Prayers are appreciated as we still deal with the fallout from this nightmare known as cancer. What a year this has been!!
Dylan has steadily improved over the last few days. He had two units of blood and two infusions of platelets on Saturday. His blood count looked good until today. He just received another infusion of platelets. His white blood count is within normal range now, so he is no longer considered neutropenic. He can stop taking his neupogen injections at night. His fluid rate is gradually being decreased in an effort to completely get him off of fluids. His electrolytes are still constantly needing adjusted, so turning off his fluids is a little tricky. They are going to try and stop the fluids tomorrow and see how his electrolytes maintain. His kidneys are starting to "come back online and look happy again" (doctor terminology, lol). Hopefully with happy kidneys his body can maintain a good electrolyte balance. Overnight his breathing started becoming a little labored. He is still breathing hard even though there is no medical reason they can find why. They will continue to monitor his breathing. Yesterday, Dylan started complaining of his knee hurting. It began swelling and is looking very swollen today. The oncologist is going to contact his orthopedic surgeon at Vanderbilt to see what scans he was going to be getting at his appointment. We were told today that he will definitely be missing his appointment tomorrow at Vanderbilt. Hopefully Dylan can get the X-rays or MRI here and the orthopedic can decide what needs to be done. We really appreciate all the prayers and concerns. It is so very difficult to be in the hospital for a month at a time seeing our baby so sick. Your calls and messages really uplift us!
It's a great probability that we will not make it to Dylan's surgery follow up appointment at Vanderbilt tomorrow. He has not made any improvements at all in his nausea and vomiting. He is still getting sick regardless of the medicines he is on. His electrolytes are a little low, but nothing to be too concerned with. All of his daily meds are still being given in liquid form through his J tube. His blood pressure is now starting to run a little high. They are keeping a constant check on his vitals. As if all of these issues weren't enough, yesterday evening Dylan's central line port stopped given blood return. We have had issues in the past, but never this long. The nurse even put CathFlow in the port and let it sit for a while to dissolve any possible clots that may have formed. It always worked in the past, but this time was unsuccessful. The port will flush, it just will not let blood flow out. He gets blood work done twice a day to keep track of his electrolytes and blood counts. Since his port isn't giving blood Dylan has to be stuck to get the necessary blood. Dylan HATES being stuck because he's such a hard stick!!! The plan is to remove the needle and re-access him tomorrow to see if the port will give blood then. If not, the doctors will order a dye study to see if the port is functioning properly. If the port isn't working, he may need surgery to replace the port with a new one. The nurses would re-access him today, but he is allergic to the typical dressing they use to cover the port access. He breaks out in red welts and his skin bleeds where the tape and dressing touches his skin. He has to use a special dressing that is not stocked on the oncology floor. It is only stocked in the oncology clinic that is closed on the weekends. He is really starting to become exhausted. He is looking very pale and puny today. Prayers are appreciated. As a parent, it's hard to watch your child go through this and not be able to fix it!
Dylan has not made any real improvements in his nausea. He is still staying very nauseous and vomiting almost every time he is awake (even with the BAD pump and phenegren). They are trying to keep him sedated as much as possible. He can not be given anymore meds than he is already taking. They are just monitoring his blood levels and electrolytes and replacing as he needs it. He will not even begin to be weaned off of the BAD pump until his nausea and vomiting are under control. We are not sure when he will be discharged from the hospital, but he will be re-admitted in 10 days for more chemo. Please pray he feels some relief soon! This particular chemo really wipes him out!