Help Parsis to have a chance
Donation protected
Hello friends!!!!
The reason I'm writing this is because of this little angel named Parsis and is dear to my heart . She is a 8 years old that's been in and out of hospital since she was born back in 2007. She has a very rare kind of Mitochondrial disease called "Pearson Syndrome " . It's so rare that only less than 100 people have this worldwide. This disease is scarier than cancer as there are no cure for it and no treatment options either. You can't catch this disease as people are normally born with it. Most kids with Pearson die during infancy and those who make it past that die before adulthood. The disease effects different body organs and in time results in organ failure and ultimately death. Many Pearson kids loose their ability to see and hear by the time they turn 10 and it only gets worse from there. This precious girl is having kidney, Pancreas, digestive system and muscle failure. Her eyes are too sensitive to light and she spends many days on the sofa with her eyes closed. She can hardly walk. She is really weak and very tiny for her age as another problem she has is growth failure. She is a size of a 3 years old and only 36 pounds. She has spends many days in hospital and has had numerous tests and procedures done on her poor body. She has never had a normal day in her life and me and her mother miss her smile and beautiful eyes so much. Recently a scientist who lives in Israel has been able to come up with a new curing method that hasn't been yet tried on humans but she is confident this will work, her parents spoke with her and she is willing to help us but we either have to do it here which will require FDA approval and lots of money or we have to go to Israel which will require money if nothing else. Her parents have limited income there is no way they could afford this and they wouldn't be asking you for help. The bottom line is they need money and we need connections to maybe pull some strings to speed up the process as I believe there isn't much time left. I hope you find it in your heart to help her however you can. We are desperate at this point. Spread the word and help as much you can to save this precious angel ❤❤❤
The reason I'm writing this is because of this little angel named Parsis and is dear to my heart . She is a 8 years old that's been in and out of hospital since she was born back in 2007. She has a very rare kind of Mitochondrial disease called "Pearson Syndrome " . It's so rare that only less than 100 people have this worldwide. This disease is scarier than cancer as there are no cure for it and no treatment options either. You can't catch this disease as people are normally born with it. Most kids with Pearson die during infancy and those who make it past that die before adulthood. The disease effects different body organs and in time results in organ failure and ultimately death. Many Pearson kids loose their ability to see and hear by the time they turn 10 and it only gets worse from there. This precious girl is having kidney, Pancreas, digestive system and muscle failure. Her eyes are too sensitive to light and she spends many days on the sofa with her eyes closed. She can hardly walk. She is really weak and very tiny for her age as another problem she has is growth failure. She is a size of a 3 years old and only 36 pounds. She has spends many days in hospital and has had numerous tests and procedures done on her poor body. She has never had a normal day in her life and me and her mother miss her smile and beautiful eyes so much. Recently a scientist who lives in Israel has been able to come up with a new curing method that hasn't been yet tried on humans but she is confident this will work, her parents spoke with her and she is willing to help us but we either have to do it here which will require FDA approval and lots of money or we have to go to Israel which will require money if nothing else. Her parents have limited income there is no way they could afford this and they wouldn't be asking you for help. The bottom line is they need money and we need connections to maybe pull some strings to speed up the process as I believe there isn't much time left. I hope you find it in your heart to help her however you can. We are desperate at this point. Spread the word and help as much you can to save this precious angel ❤❤❤
Organizer and beneficiary
Nazanin Hosseini
Organizer
Encino, CA
Parsis Shadkam
Beneficiary
