Help Emma get this treatment
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This is Emma Haines. On 4/27/16 Emma and her family received devastating news about her health. She was diagnosed with Pediatric Autoimmune Neuropsychiatric
Disorder Associated with Streptococcal Infections also known as PANDAS. PANDAS
occurs when strep triggers a misdirected immune response resulting in inflammation
of a child’s brain. Some symptoms can be anxiety, OCD, fatigue, loss of different cognitive abilities, fear of choking while eating, weight loss, emotional distress, tics, personality changes, decline in math and handwriting abilities, etc. These are
just a handful of symptoms that are life changing, debilitating and deteriorating.
The treatment path that would help Emma best is heavy antibiotics to prep her body for IVIG. IVIG is an intravenous blood product (the immunoglobulin element of
donors blood) that is regularly given to children and adults alike who have certain immune deficiencies. The hope is that the donor antibodies may “retrain” the abnormal antibodies in the patient or the large amounts administered may simply overwhelm
the harmful antibodies – thereby removing them from the PANDAS patient. It is a process done over a few days. Results vary from a few days to months to a year for severe cases. In seeking treatment as soon as possible we are hoping to steer clear of having her in the severe catagory.
Unfortunately, the best path for Emma does come at a cost. It will be at least $10,000. 00 for each IVIG
treatment. Insurance will not cover this treatment. As a community, we are a family and we need to take
care of each other. Our goal is to support the Haines family in every way that we can and we need to
raise this money so we can get our Emma back. She has too much to do in this world!
Emma is a triplet (2 girls, 1 boy) who is in 5th grade. She likes to do things 11 year olds do like riding bikes, playing outside, swimming, joking with friends and family. She is very artistic and wants to grow up to be a
veterinarian.
Any donation will be greatly appreciated! Every penny counts. Thank you for supporting the Haines family. Keep them in your prayers and thoughts.
Disorder Associated with Streptococcal Infections also known as PANDAS. PANDAS
occurs when strep triggers a misdirected immune response resulting in inflammation
of a child’s brain. Some symptoms can be anxiety, OCD, fatigue, loss of different cognitive abilities, fear of choking while eating, weight loss, emotional distress, tics, personality changes, decline in math and handwriting abilities, etc. These are
just a handful of symptoms that are life changing, debilitating and deteriorating.
The treatment path that would help Emma best is heavy antibiotics to prep her body for IVIG. IVIG is an intravenous blood product (the immunoglobulin element of
donors blood) that is regularly given to children and adults alike who have certain immune deficiencies. The hope is that the donor antibodies may “retrain” the abnormal antibodies in the patient or the large amounts administered may simply overwhelm
the harmful antibodies – thereby removing them from the PANDAS patient. It is a process done over a few days. Results vary from a few days to months to a year for severe cases. In seeking treatment as soon as possible we are hoping to steer clear of having her in the severe catagory.
Unfortunately, the best path for Emma does come at a cost. It will be at least $10,000. 00 for each IVIG
treatment. Insurance will not cover this treatment. As a community, we are a family and we need to take
care of each other. Our goal is to support the Haines family in every way that we can and we need to
raise this money so we can get our Emma back. She has too much to do in this world!
Emma is a triplet (2 girls, 1 boy) who is in 5th grade. She likes to do things 11 year olds do like riding bikes, playing outside, swimming, joking with friends and family. She is very artistic and wants to grow up to be a
veterinarian.
Any donation will be greatly appreciated! Every penny counts. Thank you for supporting the Haines family. Keep them in your prayers and thoughts.
Organizer and beneficiary
Jennell Keller
Organizer
Hanover, PA
Jen Haines
Beneficiary
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