The Gordon Trio

$41,561 of $40,000 goal

Raised by 364 people in 77 months

Money's collected during which years:
January 2013 = $10,000
September 2015 = $9,300
November 2016 = $10,300
November 2018 = new donations are being received.  Truly grateful...more than you'll ever know!

December 18, 2018 - Update
Mason is still in the PICU (pediatric intensive care unit) today.  This past weekend was very challenging for him. A whole new level of gut wrenching developments concerning Mason’s brain.  The neuro surgery team met on Monday, 12/18/18 and the consensus of the team is Mason’s hydrocephalus in the 4th ventricle cannot be controlled by a shunt, which has become clear due to the repeated malfunctions.  Hydrocephalus is a life threatening disease and patients are dependent on shunts to survive.  We’ve discussed the next step forward to control Mason’s hydrocephalus is to remove the cyst and shave off the top of his tumor, they will not remove the complete tumor.  It is very serious and not without careful consideration to operate on an inoperable tumor.  This is an invasive surgery and there are life altering risks. The team is always evaluating the risks to his quality of life and to do the least harm.  He has never undergone anything like this before.  They will perform a craniotomy which is the opening of the brain, the recovery time is 3 months for bone healing and there could be changes related to his personality and/or cognitive/intellect.  He will continue to be here for a while. It’s not what I was expecting the team to propose but I know it’s what’s best because he cannot continue to have repeated malfunctions.  The hope is this surgery will connect his ventricles to communicate and have less shunts and his hydrocephalus will be controlled and continue to protect his brain.

Surgery is scheduled for Wednesday 12/19/18 at 11:30AM hospital time.

I’ve learned sometimes things get worse before they can get better. I believe in miracles and I trust it’s going to be miraculous.  I trust his doctors and I know they care for him. Another opportunity to be comfortable in the not knowing.

December 13, 2018
Mason has had 7 surgeries since Oct 26th when hydrocephalus was discovered in a new area of his brain, in the 4th ventricle.  On 12/11/18 Mason started having complications related to low sodium levels.  He was admitted to the PICU on 12/11/18 after another surgery.  We post updates on his community Facebook page. 

You are amazing examples of generosity and kindness, it is heart wrenching to be in a position to receive this way.  One day we will be able to give like we've taught us.

On  Friday, Oct 26, 2018 , Mason collapsed and lost consciousness at the Lake Washington high school football game where he works as the team ball/water boy. The school athletic director insisted on an ambulance to Children’s, in the ER Mason started vomiting, the CT scan showed a new development in the 4th ventricle, a build-up of cerebrospinal fluid CSF in the brain.  The shunts are all working good. The neuro team was being cautious as there have been times when he worsens quickly, so he was admitted to the ICU.  The next day he improved and they could not determine the loss of consciousness was due to this new fluid in the 4th ventricle.  Mason seemed fine with a bit of nausea on Sunday 10/28 and went to school on Monday 10/29. 

On Monday, Oct 29th, in the evening Mason started vomiting and was admitted again to Children's on Tuesday ,Oct 30th. 

Wednesday, Oct 31th, Mason’s case was discussed at the SCH brain tumor board, confirming the fainting, vomiting, nausea and dizziness is caused by the accumulation of CSF in his 4th ventricle which is not controlled by shunts. After neuro-radiologist review, they think there may be some sort of tissue causing a blockage in the 4th ventricle.  He was suffering from uncontrollable bouts of vomiting even with anti-vomiting medication which left him weak and exhausted, he slept most of the day.

On Thursday, Nov 1st, Mason had an EVD (external ventricular drain) placed and during surgery his pressure measured 30, which is very high for him and lead them to decide on an the next steps.

On Friday, Nov 2nd, Mason had a second surgery to place a 4th shunt in his 4th ventricle.  He is feeling better after this surgery and he will probably be able to go home this weekend.  He is being watched carefully.

We have been in this challenging situation before and it’s important for Mason and our family to stay present and we’ve learned to find comfort in not knowing…because we never really know any way.  
It's going to be okay.

If you 're interested, here’s a link that explains what hydrocephalus is Hydrocephalus .

Thank you to everyone who is caring for Joey and feeding Greta dinner while we're at the hospital.

We are super duper grateful for our Tribe...our People.  You make us strong.  We love you...more than you'll every know.

www.facebook.com/masongordonhope

Love,
The Gordon Trio
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_________________________________________________

2016 Update from Lindsey Gordon:
Mason continued to have many shunt malfunctions in March and April 2016. On September 15, 2016 Mason was admitted for a left shunt malfunction. After a failed revision on the 15th it was decided to externalize Mason's shunts to EVD, external ventricular drains. He had a second EVD placed on the 22nd and he had complications related to low sodium levels and brain swelling associated with bleeding which can cause a coma. He was sent to the PICU the night of Thursday 9/22 and as of today 9/27 he is still in PICU. He is doing much better and he still needs another surgery to place a left shunt system within the next week.

Mason's tumor has grown 1 CM since in last August 2016 MRI and a biopsy was done on 9/26/16 to determine the next best path forward to treat his inoperable brain tumor.

Thank you for all they ways you love, support and encourage us. There just are no words to express how our hearts feel.  Love,



Lindsey

September 2015
Kim and Melanie among others decided it was time to launch and restart this campaign again with the resent developments with Mason's brain shunt malfunctions and emergency surgeries this month, Sept 2015.  Details @ Mason's Hope 
The Gordon Trio is so so grateful for everyone's contribution, the phone won't be disconnected, Mason can have his medicine, the rent will be paid, and Lindsey won't have to make stressfull decisions about choosing to pay a bill over buying food.  She can stop trying to sell furniture to make ends meet.  Mason will get new prescription glasses and frames, he just visited the opthamalogist this week and needs new lens and his frames are getting small.  He really wants contact but they are expensive.  Greta will get the retainer she needs for her teeth.  These are all the things that have been on hold because Lindsey has not been working as much this past month.  

January 2013 - Kat Howell in California
Lindsey is a dear friend of mine who's 7 year old son Mason was diagnosed with brain cancer.  She is a single mama who works hard to support her 2 children but she needs our help.  Her rent has not yet been paid for January and February is almost here.  My goal is to raise enough money so she doesn't have to worry about paying her bills and rent and can focus on helping Mason heal.

Lindsey so freely gives her time to help others and I want to give back to her.  Thank you!! Love, Kat

January 2013 from Lindsey...
Mason was diagnosed with brain cancer on June 20, 2012. There are oh so many super amazing people that love him and want to be connected to him. We feeeeel ALL your love and we are in AWE!

Description
Mason's brain tumor is inoperable because his optical nerves is part of his tumor and it surrounds his basillar artery and rests on his pituitary gland. Mason's tumor is a grade 1, juvenile pilocytic astrocytoma and low grade cancer.  A summary timeline:
November 2012 - 1st chemotherapy treatment (6mos)
November 2014 - 2nd chemotherapy treatment (2yrs)
February 2015 - Human Growth Hormone treatment
August 2015 - 3 separate shunt malfunctions and 3 separate emergency surgeries.

Mason is hanging tough, he has good days and difficult moments. We are all staying positive and living in gratitude every day no matter what.

God's got this...
+ Read More
Hi family and friends,
Thank you all for your continued support for Lindsey, Mason, and Greta. Lindsey has posted updates on Masons Adventures Facebook page. People have been asking how they can help, so I wanted to let everyone know this gofund page is active and ongoing. Any donations given help to relieve any financial burden so they can focus on healing and living life! Thank you all, kat
+ Read More
Money's collected during which years
January 2013 = $10,000
September 2015 = $9,300
2016 = new donations are being received.

2016 Update from Lindsey Gordon
Mason continued to have many shunt malfunctions in March and April 2016. On September 15, 2016 Mason was admitted for a left shunt malfunction. After a failed revision on the 15th it was decided to externalize Mason's shunts to EVD, external ventricular drains. He had a second EVD placed on the 22nd and he had complications related to low sodium levels and brain swelling associated with bleeding which can cause a coma. He was sent to the PICU the night of Thursday 9/22 and as of today 9/27 he is still in PICU. He is doing much better and he still needs another surgery to place a left shunt system within the next week.

Mason's tumor has grown 1 CM since in last August 2016 MRI and a biopsy was done on 9/26/16 to determine the next best path forward to treat his inoperable brain tumor.

Thank you for all they ways you love, support and encourage us. There just are not words to express how our hearts feel. Lindsey
2 external drains now!
Brain EEG to rule out brain seizures!
+ Read More
Always Grateful!
Thanksgiving Holiday Card 2015
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From Lindsey Gordon:
Hi Everyone!
We’ve been home two weeks without a shunt malfunction!! WHoooHOooo!!
September was a wild ride, we got through it because of ALL of you. Mason is doing great. He hasn’t had a headache since his last surgery September 18th which is AMAZING and makes us so happy. Mason has struggled with frequent headaches since he was diagnosed. It’s amazing what a different kid he is without dealing with headaches. We’re hopeful headache free will continue and the 3 shunts he now has will work with no problems for the rest of his life. A mama can hope!! When Mason is in the hospital he loves getting visitors no matter how he feels. It really means a lot to him when friends show up for him and it melts my heart to see him smile when he’s so sick. Life is getting back to “our-kind-of” normal. Mason still continues to be monitored closely with frequent visits to SCH for his current chemo treatment which started last November among many other appointments. Greta is back to dance lessons and her next competition is October 17th in Seattle. I’m back to working part-time about 20-25 hours per week.
We are deeply grateful for all your love, encouragement, support and generosity. You save us!
Thank you for showing me again the universe always provides and how the world is so beautiful.
With Love and Gratitude Always
The Gordon Trio
Lindsey, Greta, Mason + Joey
Mason as water boy 4 LWHS Football Kangs
Walking at of SCH, lemonade in hand
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Read a Previous Update
Dwight
7 months ago
2
2

Is it possible to update this account with Mason's current condition? I know a lot of people at Lyndsey's work who like to help out. Thank you!

+ Read More
Stella
6 months ago
1
1

Update from Masons Mom : Tuesday 12/18/18 - Mason is still in the PICU (pediatric intensive care unit) today. This past weekend was very challenging for him. A whole new level of gut wrenching developments concerning Mason’s brain. There are now 3 areas of concern in Mason’s brain. I’ll post MRI images soon. The neuro surgery team met on Monday, 12/17/18 and the consensus of the team is Mason’s hydrocephalus in the 4th ventricle cannot be controlled by a shunt even with the EVD which has become clear due to the repeated malfunctions. Hydrocephalus is a life threatening disease and patients are dependent on shunts to survive. We discussed and the next step forward to control Mason’s hydrocephalus is to remove the cyst and shave off the top of his tumor, they will not remove the whole tumor. This decision was made with careful and mindful consideration of Mason. This is an invasive surgery and there are life altering risks. The team is always evaluating the risks to his quality of life and to do the least harm. He has never undergone anything like this before. They will perform a craniotomy which is the opening of the brain, the recovery time is 3 months for bone healing and there could be changes related to his personality and/or cognition/intellect among other things. He will continue to be here for a while. It’s not what I was expecting the team to propose but I know it’s what’s best because he cannot continue to have repeated malfunctions. The hope is this surgery will connect his ventricles to communicate/circulate together and have less shunts, control hydrocephalus and protect his brain. Surgery is scheduled for Wednesday, 12/19/18 at 11:30AM hospital time. The good News: Mason had two walks today. Didn’t have to swallow salt. Saw some special people: Greta, Frank, Kenny and the Knights. Saw a video message from Mrs. Bilanko and Mrs. Miller. All his visitor and kind messages have touched his heart. ♥️ Thank you to our friends who have sat with Mason when he was sleeping and not talking. The pictures I post are of small amazing moments, that I’m grateful for and want to share with you, but please realize they don’t represent how he is 100% of the time. Mason has times when he struggles too, i just don’t take pictures of those moments. We focus on the positive but we need to be real too. He’s not able to see everyone he wants due to the PICU rules. And visitors are exhausting and Mason needs to sleep. The brain only heals when it’s sleeping I’ve learned sometimes things get worse before they can get better. I believe in miracles and I trust it’s going to be miraculous. I trust his doctors and I know they care for him and his well being. This is another opportunity to be comfortable in not knowing...because we never really know anyway. #PICU #craniotomy #alwaysgrateful #hydrocephalusWarrior #youMakeUsBetter #thereIsAPurpose

+ Read More
Stella Childs-Sanchez
33 months ago
1
1

For those asking about Mason- Here is a new update from Masons Mom: Mason's Hope: Day 13 Mason is doing much better is biopsy yesterday went well and he has had a good night, he is still in PICU but will hopefully be moved to the normal floor sometime late today, Tuesday, 9/27. He is awake now and more his normal self. Mason's tumor has grown, 1 cm since his last August MRI. Tumor board is tomorrow and the process of evaluating another treatment option for Mason's tumor will begin. He still needs another shunt surgery before he can go home, so he will still be here many more days. When the final surgery is scheduled I will post an update. I will contact people for visiting, so I'll be in touch. with some of you. Thank you for all your love, encouragement and support. We are so super duper grateful.

+ Read More
Stella Childs-Sanchez
33 months ago
1
1

They still need help, please donate if you can. Mason has been in the hospital the past 6 days. Update from his mom posted on facebook this morning: Mason's internal shunt surgery is tentatively scheduled for 1:45PM today, he's an add on so the time is not solid. We are hoping this surgery will make him better. Today is our 6th day here. Wow! What a week!

+ Read More
Traci Greene
35 months ago
1
1

I noticed there is no recent update. Oh, I certainly hope that is because the Gordon Trio is so busy having fun with Mason ❤️

+ Read More
Lindsey Gordon
77 months ago
1
1

You ALLLLL are rocking our lil world....holyWOW!! I'm oh sooooo overwhelmed and in absolute AWE, my heart is just bursting with love...i've been crying lots!! I wanna hug you all but you're not here with me....so here's a HUGE (((SQUEEEEEEEZZZZZE)))...did you feeeeeeel IT?! ~We love you....yes Y-O-U!!~ Thank youThank you Thank you...just WOW!

+ Read More

$41,561 of $40,000 goal

Raised by 364 people in 77 months
Created January 27, 2013
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JP
$50
John Phipps
3 months ago

Wishing Mason a recovery and hope to see him out at Everest with his humor and charm!

CB
$500
Cary Basnar
4 months ago

We are parents of Shannon Rene the football photographer at Lake Washington high school and mother of Caleb and when we found out the situation we just had to help. What an amazing story of courage and love and support. How could you not want to be part of that?

MZ
$300
Miaomiao Zhang
4 months ago
$30
Anonymous
5 months ago
$25
Kati2 Quigley
5 months ago
KE
$100
Kristin Estes
5 months ago
$100
Anonymous
5 months ago
$10
Anonymous
5 months ago
KS
$15
Kim Sheppard
5 months ago
LF
$20
Lisa Frazier
5 months ago
Dwight
7 months ago
2
2

Is it possible to update this account with Mason's current condition? I know a lot of people at Lyndsey's work who like to help out. Thank you!

+ Read More
Stella
6 months ago
1
1

Update from Masons Mom : Tuesday 12/18/18 - Mason is still in the PICU (pediatric intensive care unit) today. This past weekend was very challenging for him. A whole new level of gut wrenching developments concerning Mason’s brain. There are now 3 areas of concern in Mason’s brain. I’ll post MRI images soon. The neuro surgery team met on Monday, 12/17/18 and the consensus of the team is Mason’s hydrocephalus in the 4th ventricle cannot be controlled by a shunt even with the EVD which has become clear due to the repeated malfunctions. Hydrocephalus is a life threatening disease and patients are dependent on shunts to survive. We discussed and the next step forward to control Mason’s hydrocephalus is to remove the cyst and shave off the top of his tumor, they will not remove the whole tumor. This decision was made with careful and mindful consideration of Mason. This is an invasive surgery and there are life altering risks. The team is always evaluating the risks to his quality of life and to do the least harm. He has never undergone anything like this before. They will perform a craniotomy which is the opening of the brain, the recovery time is 3 months for bone healing and there could be changes related to his personality and/or cognition/intellect among other things. He will continue to be here for a while. It’s not what I was expecting the team to propose but I know it’s what’s best because he cannot continue to have repeated malfunctions. The hope is this surgery will connect his ventricles to communicate/circulate together and have less shunts, control hydrocephalus and protect his brain. Surgery is scheduled for Wednesday, 12/19/18 at 11:30AM hospital time. The good News: Mason had two walks today. Didn’t have to swallow salt. Saw some special people: Greta, Frank, Kenny and the Knights. Saw a video message from Mrs. Bilanko and Mrs. Miller. All his visitor and kind messages have touched his heart. ♥️ Thank you to our friends who have sat with Mason when he was sleeping and not talking. The pictures I post are of small amazing moments, that I’m grateful for and want to share with you, but please realize they don’t represent how he is 100% of the time. Mason has times when he struggles too, i just don’t take pictures of those moments. We focus on the positive but we need to be real too. He’s not able to see everyone he wants due to the PICU rules. And visitors are exhausting and Mason needs to sleep. The brain only heals when it’s sleeping I’ve learned sometimes things get worse before they can get better. I believe in miracles and I trust it’s going to be miraculous. I trust his doctors and I know they care for him and his well being. This is another opportunity to be comfortable in not knowing...because we never really know anyway. #PICU #craniotomy #alwaysgrateful #hydrocephalusWarrior #youMakeUsBetter #thereIsAPurpose

+ Read More
Stella Childs-Sanchez
33 months ago
1
1

For those asking about Mason- Here is a new update from Masons Mom: Mason's Hope: Day 13 Mason is doing much better is biopsy yesterday went well and he has had a good night, he is still in PICU but will hopefully be moved to the normal floor sometime late today, Tuesday, 9/27. He is awake now and more his normal self. Mason's tumor has grown, 1 cm since his last August MRI. Tumor board is tomorrow and the process of evaluating another treatment option for Mason's tumor will begin. He still needs another shunt surgery before he can go home, so he will still be here many more days. When the final surgery is scheduled I will post an update. I will contact people for visiting, so I'll be in touch. with some of you. Thank you for all your love, encouragement and support. We are so super duper grateful.

+ Read More
Stella Childs-Sanchez
33 months ago
1
1

They still need help, please donate if you can. Mason has been in the hospital the past 6 days. Update from his mom posted on facebook this morning: Mason's internal shunt surgery is tentatively scheduled for 1:45PM today, he's an add on so the time is not solid. We are hoping this surgery will make him better. Today is our 6th day here. Wow! What a week!

+ Read More
Traci Greene
35 months ago
1
1

I noticed there is no recent update. Oh, I certainly hope that is because the Gordon Trio is so busy having fun with Mason ❤️

+ Read More
Lindsey Gordon
77 months ago
1
1

You ALLLLL are rocking our lil world....holyWOW!! I'm oh sooooo overwhelmed and in absolute AWE, my heart is just bursting with love...i've been crying lots!! I wanna hug you all but you're not here with me....so here's a HUGE (((SQUEEEEEEEZZZZZE)))...did you feeeeeeel IT?! ~We love you....yes Y-O-U!!~ Thank youThank you Thank you...just WOW!

+ Read More
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