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12 yr old Wes' 7 Yr Cancer Battle

$42,165 of $40,000 goal

Raised by 665 people in 6 months
Wes is a 12 year old boy from Hampton Roads, VA who has been battling stage 4 neuroblastoma for half of his life. He was diagnosed at 5 years old and has since relapsed 5 times. We travel back and forth from our home in Virginia to his top team of doctors in NYC at Memorial Sloan Kettering for extensive treatment and care. Wes' most recent scans revealed that Wes' cancer has spread. It is now starting to impact his spinal cord and any further growth could cause paralysis. He is being removed from the current trial and being admitted immediately to begin high dose steroids to try to remove some of the pressure. As of now any treatment beyond that is in the air as his team comes together to try to create the best plan for him.  Any help at all is greatly appreciated at this time to help cover living expenses and costs of being in NYC. I have created this page due to Youcaring and GoFundMe merging causing his other page that we had for years to be shut down.
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My child amazes me! 24 hours after intense, urgent spinal cord surgery with screws and rods and he is standing! Yesterday when he was waking up the nurse wanted to make sure he was alert so she asked him questions like what his name was and where he was at. Wes answered and then expressed to her how dumb those questions were and that she should have asked him questions like where is Croatia located. That tells me my Wes is back lol Last night, the same day as surgery, he also said that his back actually hurt less then than it did before surgery. That truly tells me just how much pain he was in prior. Early this morning they started him on a slight incline in bed and gradually increased it. Physical therapy came in to help him up. Of course he wanted to be independent. He managed to walk around the bed and to the chair where he is now sitting. He says it feels better to stand than it does to sit. He is now allowed to eat and has been moved from the ICU to a regular step down room just a little while ago. His catheter is also out. The team is working on setting up a myelogram scan for Monday which will act as his simulation for the external beam radiation he will receive in a few weeks. The radiation he will be having is called stereotactic body radiation therapy (SBRT) and sometimes known as cyber knife. It allows them to deliver high dose radiation to the area, yet minimal radiation to healthy areas such as his spinal cord. The scan on Monday involves him being put to sleep and having dye injected into his back via a needle. This will give them precise images of what needs to be radiated which is important because Wes has already had a lot of radiation. Hopefully he will be outpatient soon as he is recovering very well considering what all he has gone through.
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Change of plans...

I have been speaking with doctors all day. 20 doctors have sat and met with each other to go over Wes’ case in the last 24 hours. After consulting neurosurgery and because the cancer is already compressing some of his spinal cord causing a sense of urgency, Wes will head into surgery tomorrow morning to relieve the pressure and prevent damage/paralysis. The plan is to remove the bulk of the tumor around his spinal column that they can and preserve stability/function. They will also be adding some small screws and small rod ordered specifically for him and his size to help with stability due to damage already caused by the disease due to some of his bone. Following that they will do intraoperative radiation using P32 to his spinal cord which was designed so that there isn’t much radiation delivered to the cord, but more so the surface where there could be cells remaining. The neurosurgeon says if all goes well Wes should be able to be up in 24-48 hours. He will have a drain tube placed and catheter of course. The ventilator should be removed before coming out of the OR. He will have a decent size incision running along his spine. The surgeon is internationally known for his experience in complicated surgeries in the brain and spine and does around 300 a year. He is in good hands. Wes knows and understands what will happen and is okay. He’s in good spirits about everything. The plan beyond surgery is not set in stone but they are thinking chemo and external beam radiation. My, oh my, how your world can be turned upside down so quickly...
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$42,165 of $40,000 goal

Raised by 665 people in 6 months
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