1000 Miles for DMD - EVEREST 2017!

$6,982 of $20,000 goal

Raised by 175 people in 27 months
To ALL my former colleagues, my former students, my friends and to the parents of children with Duchenne:

 I am again returning to EVEREST in September to raise funds and awareness for Gus and ALL of the boys with Duchenne Muscular Dystrophy (DMD).

When I reach the  Everest Base Camp I will have hiked just over 1,000 miles to raise awareness of and funds for researching an effective treatment for Duchenne Muscular Dystrophy (DMD)

I need 1,000 of you- friends, former colleagues, former students, and parents of children with DMD - to raise and/or contribute $20 to this campaign.

The breakthroughs keep coming!  DMD in human cells has now been successfully treated using CRISPR. One of the doctors funded by the Hope for Gus Foundation (where your dollars go) is expecting HUMAN TRIALS by 2019! This is OUTSTANDING! 

So, PLEASE step up and participate!  PLEASE!

PLEASE ask your friends, neighbors, and family members to help. PLEASE SHARE this campaign- this message- this goal, far and wide!

And thank you in advance, everyone.  

Thank you from every child with DMD and from every parent of a child with DMD.

Thank you for making this real.

Thank you for supporting HOPE!
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I leave for Nepal tomorrow, which certainly prompts some thoughts...

In the Himalayan villages inNepal, "Namaste" is a standard greeting. But the way it is said is with all the variances that we ascribe to the word "Hello."

So they say "Namaste!" quickly, in delight. Or "Naaaaamasteeee" in a smilingly long greeting. Or "Namasteeee!" rising on the last syllable as if to ask, "Are you as happy to see me as I am to see you?"

And none of the boys, and the few girls, with DMD, will likely experience this genuine warmth of greeting, for two reasons:

1. There are NO roads to these remote places, only trails that take days and days of uphill trekking to get to.
2. When was the last time you greeted someone in a wheelchair with true enthusiasm or warmth?

It is simply the human nature to be cautious of those who appear different from ourselves, to treat them as "special," when maybe all they want is to be treated as the same.

What can we do? Our team? We can bring them with us as much as we can. We post, we climb, we try to represent them, we hike for them as they cannot yet hike for themselves.

We, of the Everest to End Duchenne team are giving our time, our money, and a physical and emotional commitment.

What can you do? You can extend them a hand in friendship, and acceptance. To support hope, you can sponsor a mile for $5, or 10 miles for $10, or a 100 miles for $50.

I'll be asking for sponsors for each day every morning that I have service while in Nepal. Please step up. Please be a hero or heroine. Please help us put an end to this disease. Because with you, we can. And will.

Thank you.

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We raised and double matched the last $100 making it into $300 in about 2 hours time!

It's still a long way to $20,000, so anything you can give - $5, $10, $20 or more is all welcome.

Every cent will go to research, and the research is so promising. We will win this. Be part of that win and thanks.
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$80 has come in since we announced our 2x match (a couple of hours ago!)

Can someone please, please, please kick in the last $20 and then Paula and I will each kick in our matching $100.

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Another matching opportunity:

My spouse and I will each match the next $100 in contributions making a total of another $300 for DMD research/trials.

Hope for Gus is funding the amazing CRISPR research that has successfully been used to cure DMD in human cells in the laboratory.

I'm leaving for Nepal Saturday!

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$6,982 of $20,000 goal

Raised by 175 people in 27 months
Created December 22, 2016
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Chris Balch
16 months ago

Let's finish with a bang.

Lori Bruno
17 months ago

Sending our best as you approach basecamp!

Berta Cummings Horst
17 months ago

I am going to try to make this monthly. I so admire what you are doing for these kids. They need more caring people like you! So many Thank yous.

stevie balch
18 months ago

In awe. With you all in spirit.

18 months ago
18 months ago
Dan Frenette
18 months ago

Hopefully the first of many of these. Keep up the good work!!

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