xavier's warriors
Donation protected
I have a genic disorder called Tuberous Sclerosis Complex aka TSC. This is a rare genetic disorder that causes tumors to grow on my brain, heart,kidneys, eyes and lungs. I have several on my brain that cause me to have seizures. We have been on many medications to stop these that didn't help . As you see we have been on this long journey for a while. Since the start of my campaign I have had 3 brain surgeries . My family and I travel to Memphis and Austin tx from pa for these . We just returned from Memphis 6 mth post from my last brain surgery on November. Which my family all traveled and lived for 5 wks . So I could stop having seizures and enjoy my childhood. We now have to return to Austin for another surgery on the left side of my brain. It was a surprise to all of us . We thought we were in the clear for a while. But I have a tumor growing at a steady pace that will block the fluid in my brain . My daddy has to take time off work again so we can travel . We save everything we can to travel . We need some help with travel expense that can add up and we will be in Austin a few weeks for recovery after surgery again . Any help would be a huge blessing to our family so very much . We are forever grateful for all of those in our lives that support us on our continued journey . Love Xavier and family.
Organizer
Sue Ball
Organizer
Coalport, PA