Urgent Help for Son's Growth Medication

Hey everyone I am starting this Go Fund me for a very dear friend of mines son her story is below: I NEED HELP!

I’m going to try to make this as short as possible but I cannot make any promises.

As most of my friends and family know, my son was born with an ectopic posterior pituitary gland and small sella turcica. Since the pituitary is the master gland of the body, this underdevelopment has resulted in him having Adrenal Insufficiency, Growth Hormone Deficiency, Testosterone deficiency, and Central Hypothyroidism.

I have FOUGHT with insurance companies since he was 7 to get Growth Hormone covered as it is extremely expensive. I finally got approval about 3-4 weeks ago. I was elated and so happy for my son. I called today to check on the delivery status of the medicine and this is what I was told:

The original price of the medication Genotropin (which is made by Pfizer) at a dosage of an injection of 3mg per day for a 31 day supply is $16,647.15 a month. My insurance covered $7,782.92 a month. A discount was applied by the pharmacy and after that discount the patient cost each month is $4,283.85. Pfizer offers copay assistance of $5000 A YEAR! That means you’ll exhaust their copay assistance in ONE MONTH leaving it the patients responsibility for 11 months. That’s a total of $47,122.35 for this medicine. Genotropin, for a years supply without insurance is $199,765.80. UNBELIEVABLE….and what’s more unbelievable is they only offer $5000 A YEAR for copay assistance. This is for a medication for A CHILD THAT WILL NOT GROW WITHOUT IT!!!!

Honestly, I’m a deflated balloon. I am lost. I don’t know where to turn. I do not know what to do from here. He’s got to have this medicine to grow. He’s got to have medications to force him into puberty. He’s SEVENTEEN!!! I do not even have the vocabulary to describe how I feel. I cannot imagine how he feels. I have fought and fought and fought. This should be illegal. I am just numb.

Any advice. Anything. Prayers. I don’t care at this point. A Devine intervention. I’ll take it all. Jesus, take THIS wheel. I am lost.

I guess I’ll have to start having fundraisers or something. I don’t know. I’m rambling. I’m sorry. My mind is like a maze of thoughts right now. . How do you help your children when you literally cannot help them. Please help make this make sense.