Shan's Meatball Diary: The Sequel

Arnold...you're wrong again, it IS a Tumor! Part II. Let's begin the sequel...

My name is Shannon, and I was diagnosed with my first Category II Optic Chiasma Meningioma in 2016.

Last year, in 2019 I was told that my Tumor that was removed through a procedure where they had to cut out the skull behind my nose and go in through my face to cut it out piece by piece, and also had so many painful and dangerous complications, is growing back.  

Well, it's been 4 years almost to the day when I had my 1st brain tumor removed....life was getting back to normal and I was healthy after almost a year long recovery.

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I've lived alot of life in those 4 years, seen alot of happiness, and sadness - got engaged! Planned a Wedding! Rented a cute little house!

...

And now I have the news that a second brain tumor is growing at the site of the last one.

Now, I've had to cancel our dream wedding, with an unknown date now looming, not only with my treatment but due what's going on in the world right now, our family is scattered around the globe, and there's no word on when we can actually be together. We are disappointed to say the least - lots of tears and heartbreak on that one.

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I'm now planning to try to stop this tumor from growing and causing any more damage by direct radiation treatments into the brain.

3 MRI's, 1 CT Scan, Radiation Mask and another final MRI to go - and we will be starting radiation in the next week or two.

I'm actually terrified. People think I'm strong - I'm not. Not even close.

There was so much trauma with the first surgery, that this is the best option and safest option if we hit this now before it causes any symptoms that cannot be reversed, or attempt a surgery that may not have the most successful outcome later.

Obviously, there are risks involved with this, some may happen, some may not...short term memory loss, fatigue, hair loss, skin rash/damage, possible vision loss or partial loss in one or both eyes, pituitary gland damage...and this raises the risk of Cancer down the road, months or years later.
And this is honestly still better than attempting surgery a second time around.

The radiation will be every day at the hospital, around 30-45 minutes each time, for 5-6 weeks.

These tumors are recurring, so I'm sure this is a lifelong battle I will have to fight, hopefully always with a positive outcome.

If anyone wants to help alleviate the financial burden of the unknown, helping our family save for our dream wedding, or the stress of trying to keep up with debt and bills while going through treatment, we'd again be forever grateful.

I can't express how amazing it's been to have the love and support I've been so blessed to have over the years...to those I know, to those I have yet to meet. THANK. YOU. XO

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All my love,
Shannon
XO

Donations

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  • Justine Exner 
    • $100 
    • 2 d
  • Arun Sharma 
    • $500 
    • 4 d
  • Crystal Rudser 
    • $50 
    • 5 d
  • Anonymous 
    • $50 
    • 5 d
  • Paula DiFruscia 
    • $150 
    • 5 d
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Organizer

Shannon Rozon 
Organizer
Calgary, AB
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