Helping Stella access her World

Stella is a 3.5 year old girl that was born with a neurological condition called Atypical Congenital Rett's (FOXG1) syndrome.  There are only a 100 know cases like Stella in the world. She can not walk, talk or sit without assistance.

Stella is a happy litte girl most days, except when she is fighting off an illness. She spends a fair time in hospital because a simple cold makes her very sick. Also, she lands in hospital with every seizure as once they start they are difficult to stop.

Diagnoses:

1-Focal seizures
2-Autonomic dysfunction-which means her brain doesn't regulate body temperature, breathing and heart function properly
3-Gastric reflux
4-Autism
5-Constipation 
6-Gtube fed
7-Severe low muscle tone
8-Visual impairment
9-Microcephalic
10-Hyperkinetic movements (which mean her body moves when she doesn't want it to).
 


Stella's family is in need of financial assistance for the following:

1- Wheelchair van
2-Stair lift inside home 
3- Build deck so Stella to access outside yard
4- Electric hospital bed
5- Wheelchair accessible bathroom


Our goal for Stella is  to adapt her environment so she can access her world....

Love to all and thanks for your support xo
.